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Losing my mind!
This is driving me crazy! I am on continous bcp so that I won't my period because it makes me flare so much but I've been having some breakthrough bleeding. With the breakthrough bleeding comes more pain. Apparently it has also caused more freq/urgency. I was going every 10 minutes earlier this morning. I'm not even drinking that much water for what I usually drink. It's 12:05 pm and I'm only about half way through my second 24 oz bottle of water. That is nothing for me, usually I'd be on to my third. Last night I got up at least 4 times. So now I am tired, lots of pelvic/bladder pain, lower back is killing me and I am literally going to the bathroom somewhere between 10-20 minutes between each time. I want to scream. I go to the uro on Friday, YEA :woohoo: and hopefully he will be scheduling my hydro since I haven't had one yet but I am sooooo worried that it's going to take like 2 weeks to get it scheduled and he's not going to want to do anything for me in the meantime. I better go, should not be posting while at work and not on my break!
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Christine
I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
I have tried every oral medication as well as rescue instills and DMSO.
I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)
Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
Also proud mom to the best Bullmastiff on earth, Claus
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You might need a differnt kind of BCP. I had the same problem on the orthro tri something one with less hormones or whatever was in it. I went on the yasmin and had no problems with it and only had my period every 3 months and then it only lasted one day. -
you have my sympathies
current meds:
cytotec 200mcg twice daily
toprol
allegra
ONLY 3 MEDICATIONS!!! YAY! Would never have dreamed this is possible
dx: hashimoto's thyroiditis 1998
dx: interstitial cystitis via cystoscopy with hydrodistention and biopsy 2003
dx: endometriosis 2003
dx: innapropriate sinus tacchicardia 2005
meds tried but failed:
elavil (6months)- severe tachycardia
elmiron (1yr6mo.)- no improvement, nausea, hair loss, stomach ulcers
a bunch of others
Me and my best friend's baby (also my Godson!)Comment
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Thanks,
I may have to ask my gyn about changing, I have to make an appt w/ them anyway.Christine
I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
I have tried every oral medication as well as rescue instills and DMSO.
I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)
Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
Also proud mom to the best Bullmastiff on earth, Claus
Comment
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Ask for a b/c with the same hormone levels everyday.... (not the ones that vary week to week)....
my mom loves seasonal, so that might be something to try! I'm yet to find one that works bestcurrent meds:
cytotec 200mcg twice daily
toprol
allegra
ONLY 3 MEDICATIONS!!! YAY! Would never have dreamed this is possible
dx: hashimoto's thyroiditis 1998
dx: interstitial cystitis via cystoscopy with hydrodistention and biopsy 2003
dx: endometriosis 2003
dx: innapropriate sinus tacchicardia 2005
meds tried but failed:
elavil (6months)- severe tachycardia
elmiron (1yr6mo.)- no improvement, nausea, hair loss, stomach ulcers
a bunch of others
Me and my best friend's baby (also my Godson!)Comment
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so sorry you are going thru this and flairing.. sending hugs your way'The will of God will never take you where the Grace of God will not protect you.'
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(((((((Cindy)))))))) thanks for the hugs, I needed thatChristine
I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
I have tried every oral medication as well as rescue instills and DMSO.
I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)
Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
Also proud mom to the best Bullmastiff on earth, Claus
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