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I was just wondering if anyone else feels like they have to pee all the time with the IC? Meaning that even though you just peed, you still feel like you have to go? Is this a normal feeling with the IC?
Jen
Jen
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Jen,
I think this is very normal. I think this is what urgency means. Meaning you feel the urge to go even though you just went. I have this sometimes and it's really annoyingChristine
I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
I have tried every oral medication as well as rescue instills and DMSO.
I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)
Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
Also proud mom to the best Bullmastiff on earth, Claus
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That was my biggest IC symptom.Kim
Diagnosed August 2001
Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)
Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)
I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.
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“We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl
“You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian TracyComment
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Its one of my biggest symptoms too. I have it almost all the time. When I flare, that feeling becomes REALLY pronounced, like I have to go NOW (aka urgency), and it also hurts.... But normally, I just kinda feel like I always gotta go.Comment
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That is one of my biggest problems......Hugs
Ronda
ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!
Link to Patient Handbook:
http://www.ic-network.com/handbook/
Diet Reference Sheet:
http://www.ic-network.com/diet/icndi...tsheet0909.pdf
Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring
Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure
Meds I have Tried:
Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
Lexapro< Bad reaction to this med!
Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..
Dx With IC in Nov 2006 with Hydro/Cysto
Hydro/Cysto Caused Bladder to Rupture.
Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.
ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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I think it's pretty typical of interstitial cystitis.
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
Patient Help: http://www.ic-network.com/patientlinks.html
Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined foolComment
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This is my major complaint. Unfortunately, its a normal part of IC.
Feel better, dear!
Diana(\__/)
(o.O )
(> < ) This is Bunny. He's on his way to world domination.Comment
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That's my major complaint when I'm flaring. Always feel like I gotta go.mom_in_maComment
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yes it is a problem with IC.
that and my horrible urgency
'The will of God will never take you where the Grace of God will not protect you.'
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Thanks ladies for the replies. It is a very aggravating symptom. It feels like I still have pee in there even shortly after I went. There are even times that I pee and can pee more 10 minutes later, especially if I drink something. I temd to process what I drink Fast sometimes. Like if I drink a glass of water, I can pee in like 10 minutes. Thanks again for the replies.
JenComment
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I have been diagnosed with IC. But my girlfriend just told me that she has this symptom, and was wondering if she has IC. But can't this symtom happen with pelvic floor dysfunction as well (among other things)? Thanks.Comment
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I am exactly the same Jen. I can drink something and then 10 minutes later need to pee. One of my biggest problems is urgency - but I have bad days and slightly bad days - never good days of course. But my bladder is so unpredicatable. Now I could never consider commuting to work as I never know how bad or better I am going to be. Luckily I only work a 15 minute cycle ride away but it is limiting my life a lot!!Comment
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Me too. Sometimes though if I hold it the feeling will go away. Sometimes though there's no way I could hold it and I just keep peeing every 10-15 mins.
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If we pee every 20 minutes, does this mean that we are retaining urine?
JenComment
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That's an interesting and very intelligent question - I am surprised quite often that I still have enough left in me to pee out - perhaps someone can answer your question.Comment
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