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does IC make you feel like your baldder is full alot??

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  • does IC make you feel like your baldder is full alot??

    I was just wondering if anyone else feels like they have to pee all the time with the IC? Meaning that even though you just peed, you still feel like you have to go or that you have pee in the bladder? Is this a normal feeling with the IC?
    Jen

  • #2
    HI! Yes that feeling is called frequency.......and we all have it. I go to the bathroom........stand up and feel like I have to go again........then I go some more.....then walk a few steps from the bathroom and get that feeling again......ugh! Medication has helped....Elavil is a wonderful drug......as is Freeze dried AloeVera. Roxie

    Double Spinal Cord Stimulator surgery 8/09
    Unsuccessful MiniArc sling surgery 12/07
    Dx'd Hypothyroid
    Dx'd Chronic Axonal Neuropathy & Myopathy
    June 2007
    Dx'd IC May 2006 (after suffering for 25+ yrs!)
    First Cysto 1979
    First Hydro 1981 (Many treatments since then!)
    Collagin"Durasphere" injections for urethra
    Gall bladder surgery Aug. 2004
    Gastric Bypass Dec. 2004
    Dx'd: Barrett's Esphogus July 2004
    Dx'd: Vaginal Atrophy 2005
    Bladder surgery 2000
    Dx'd: IBS 2000
    Hysterectomy (fibroids) 1999
    Laminectomy 1989
    Dx'd: Degerative Disk Disorder 1989

    For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
    I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

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    • #3
      Thanks Roxie for replying. It is a very annoying feeling,I agree.
      Jen

      Comment


      • #4
        Yes. And I hate it.
        Kadi

        -------------------------------------------------------------
        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        ------------------------------------------------------


        New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
        Source - Pinterest
        "


        Current treatments:
        -IC diet
        -Elavil 50mg at night
        -Continuous use birth control pills (4-5 periods/year)
        -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
        -Pyridium if needed,
        -Pain medicine at bedtime daily, as needed during the day several times per week
        -Antibiotic when doing an instillation to prevent UTI
        -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
        -Dye Free Benadryl 50 mg at bedtime
        -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
        -Managing stress= VERY important!
        -Fur therapy: Hugging the cat!

        Comment


        • #5
          Yep. Yesterday I had a terrible frequency flare. I went to the bathroom every ten minutes for two hours. I was exausted when finished!
          http://www.TheCraftyEwe.etsy.com

          Comment


          • #6
            HI!
            Have you tried the over the counter product AZO? It comes in other brands....but works pretty much the same. It calms the bladder and kinda numbs it. It's great stuff for frequency...and cheap! If you don't already take Elavil.....I'd ask the dr. about getting a prescription for it. Take care......Roxie

            Double Spinal Cord Stimulator surgery 8/09
            Unsuccessful MiniArc sling surgery 12/07
            Dx'd Hypothyroid
            Dx'd Chronic Axonal Neuropathy & Myopathy
            June 2007
            Dx'd IC May 2006 (after suffering for 25+ yrs!)
            First Cysto 1979
            First Hydro 1981 (Many treatments since then!)
            Collagin"Durasphere" injections for urethra
            Gall bladder surgery Aug. 2004
            Gastric Bypass Dec. 2004
            Dx'd: Barrett's Esphogus July 2004
            Dx'd: Vaginal Atrophy 2005
            Bladder surgery 2000
            Dx'd: IBS 2000
            Hysterectomy (fibroids) 1999
            Laminectomy 1989
            Dx'd: Degerative Disk Disorder 1989

            For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
            I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

            Comment


            • #7
              Hi.
              I have pyridium here, but it makes my bladder feel worse. I also took elavil a while back for nerve pain and it gave me severe heartburn so I can not take it. It sucks that I am so sensitive to meds. I wish there was something I could take that I would not have a bad reaction to.
              Jen

              Comment


              • #8
                I often found that for me the side effects of medications for the frequency were worse than any slight benefits I saw. Of course we're all different so the medications work much better for other IC patients than for me. I found that for me diet modifications control the frequency and urgency. Might be worth checking out the IC diet information on this web site to see if it's something that could work for you. It takes much trial and error to discover what foods are your triggers, but I felt that in the long run it was well worth the effort.

                Comment


                • #9
                  Yeah that feeling of always having to go really stinks. I remember crying when I was at my worst and it was constant for a couple of months. I just wanted it to go away.

                  Diet changes have helped me as has Ditropan XL. I take 15 mg a day. I tried Detrol LA and it didn't do anything. Elavil doesn't work so well for me - I become a walking zombie. I've found that Pyridium does help, but only when I have an infection and not when it's just a flare.

                  Using a heating pad also helps it to feel better for some reason for some of us. I love my heating pad and always carry one of those patches with me in my purse. They don't get quite as hot as the heating pad, but they work in a pinch.
                  ~ Stacey

                  Comment


                  • #10
                    Yes, I had that problem for quite awhile, no matter what the medicine the doctors put me on. Thankfully, one of the docs put me on Vesicare and it has helped -- no longer have that frequency problem.

                    Comment


                    • #11
                      oh indeed!

                      Oh yess.... indeed! Happens to me all the time. I will go pee. Come back and sit down on the couch. Give my boyfriend and kiss, and head right back. He's all.. but.. but?!! haha.. yeah... I'm getting to know that when I feel like I still have to go, I should just stay there, so I can try to pee more, and get the hint its not going to happen for now... then when I go back.. and I actually feel pain? Then its time to go.. plus my body goes in full distress, so I really KNOW when it feels like I am about to have a heart attack, or anxiety attack...not recommended or anything.. but true nonetheless, all the best to you!! And much less trips the bathroom too!!
                      Love is a fruit in season at all times, within reach of every hand. ~ The Blessed Mother Teresa

                      Status: Diagnosed October 2006 via cystoscopy with hydrodistention. Max anesthetized bladder capacity only 250 cc's. Mast cells and pinpoint bleeding found.

                      Remission for me means less pain for more days than not. Frequency is inevitable with a bladder this tiny! That is ok though. The difference between when I was diagnosed and now, is that I have embraced that fact. Me and the loo, we are one.

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