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  • #1

    Swimming Pools?

    I was just wandering if any of you have trouble with swimming pools. We are wanting to get one for this summer..I love to swim and I know it will be good exercise..Lord knows I need that.. The pool we are getting does not require alot of chemicals...Just need your imput....thanks
    Hugs
    Ronda

    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


    Link to Patient Handbook:
    http://www.ic-network.com/handbook/

    Diet Reference Sheet:
    http://www.ic-network.com/diet/icndi...tsheet0909.pdf

    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

    Meds I have Tried:
    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
    Lexapro< Bad reaction to this med!
    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

    Dx With IC in Nov 2006 with Hydro/Cysto
    Hydro/Cysto Caused Bladder to Rupture.

    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    Tags: None
  • #2
    Ronda
    I know I can't swim in pools...the chlorine is bad for my VV. I can swim in saltwater without any problems, (luckily I live near the beach because I LOVE to swim) but not pools. Hopefully the chemicals won't bother your symptoms

    Comment

    • #3
      We use Baquacil in our pool and it doesn't bother me. I don't do well in clorine.

      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.       [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

      Comment

      • #4
        A friend of mine just put in a pool with a "chlorine salt generator". He said "As far as chemicals it uses regular chlorine tablets in the winter as the salt system won't function when the temperature is below 65 degrees and acid just like other pools. The salt is supposed to be much better to swim in as it has about the same salt content of tears and about one tenth the level of the ocean." You may want to research this further as I know nothing about it. But it sounds like a more natural way to swim and better for the body. Good Luck!
        ~Diane
        dx: Spastic Bladder, chronic hematuria (that went away?), kidney stone... possible IC

        Medical History:
        c-sections: 1988, 1991, 1997
        Viral Arthritis 1998 (Like RA, but went away!! )
        Pterygium & Dry Eyes since 2005
        Hysterectomy (Fibroids) 2006
        ~~~~~~~~~~~~~~~~~~~~~~~~~

        Me & Jerry ~ Sammy & Ryan
        ~~~~~~~~~~~~~~~~~~~~~~~~~

        Comment

        • #5
          Thanks I will keep all this in mind
          Hugs
          Ronda

          ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


          Link to Patient Handbook:
          http://www.ic-network.com/handbook/

          Diet Reference Sheet:
          http://www.ic-network.com/diet/icndi...tsheet0909.pdf

          Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

          Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

          Meds I have Tried:
          Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
          Lexapro< Bad reaction to this med!
          Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

          Dx With IC in Nov 2006 with Hydro/Cysto
          Hydro/Cysto Caused Bladder to Rupture.

          Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


          ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

          Comment

          • #6
            I have a pool we didn't put up last year, right after I got ot a couple years ago, I took a shower when I got out. I have a 25 x 30 one now and want to put it up.
            'The will of God will never take you where the Grace of God will not protect you.'

            Comment

            • #7
              Trust me, I'm an expert on this issue! I coach a springboard diving team in the summers, and I have to go in the water (plus, I love it!). It'll be great if you can get a low chemical system, but even in hard water I have a solution that works for me: Smear petroleum jelly (vaseline) all over your crotch before you go in. The water can't penetrate, so it's almost like a "vagina goggle." LOL Really, this does work.

              Have fun spashing around!
              Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
              Wishing you happiness and good health, and all the best out of life.

              Peace, Carolyn
              ___________________________________________________

              Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


              On the Beach with IC

              Comment

              • #8
                Ok Thanks For all of your help........
                Hugs
                Ronda

                ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


                Link to Patient Handbook:
                http://www.ic-network.com/handbook/

                Diet Reference Sheet:
                http://www.ic-network.com/diet/icndi...tsheet0909.pdf

                Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

                Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

                Meds I have Tried:
                Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
                Lexapro< Bad reaction to this med!
                Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

                Dx With IC in Nov 2006 with Hydro/Cysto
                Hydro/Cysto Caused Bladder to Rupture.

                Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


                ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                Comment

                • #9
                  ok, but dose it do anything to the pool..
                  'The will of God will never take you where the Grace of God will not protect you.'

                  Comment

                  • #10
                    Ronda,
                    I have a pool and go swimming all the time, plus I go to water aerobics classes. Sometimes I think it may bother me but mostly I'm ok with it and I don't even care if it does, because I'm not giving that up too!! I love to swim and love the classes, but I may just try the Vaseline thing, never heard of that before, but sounds like a good idea!

                    Kari
                    Kari

                    I'm 47 years old, married 27 years. I have two wonderful boys and two wonderful grandchildren. I was diagnosed in 1994. Life has certainly thrown me many many surprises, all of which I'm trying to stay positive and hopeful, and I try to think about my blessings not my misfortunes, when possible. Stay Strong!

                    Comment

                    • #11
                      Well, Tig, there shouldn't be any effect on the pool from the vaseline -- as long as you're wearing a bathing suit...
                      Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
                      Wishing you happiness and good health, and all the best out of life.

                      Peace, Carolyn
                      ___________________________________________________

                      Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


                      On the Beach with IC

                      Comment

                      • #12
                        Thanks again.. We went to the pool place will know Monday if we can get financed. They do have chemicals that have no clorine in them, a little higher but will be worth it...Thanks again all
                        Hugs
                        Ronda

                        ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


                        Link to Patient Handbook:
                        http://www.ic-network.com/handbook/

                        Diet Reference Sheet:
                        http://www.ic-network.com/diet/icndi...tsheet0909.pdf

                        Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

                        Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

                        Meds I have Tried:
                        Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
                        Lexapro< Bad reaction to this med!
                        Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

                        Dx With IC in Nov 2006 with Hydro/Cysto
                        Hydro/Cysto Caused Bladder to Rupture.

                        Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


                        ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                        Comment

                        • #13
                          I can't do chlorine as I flare badly. We have a pool and did the frog system. It is supposed to be natural but it also bothered me. We switched to Bacqucil and I don't have any problems. Never tried a salt water pool so I don't have any advice there. Best of luck. -Vicki
                          Blessings and Hope

                          Current Meds.
                          OFF MY MEDS
                          Vivelle Dot: .10 changed every 72 hours
                          Compoounded Progesterone 25mg/night

                          Current Supplements
                          Hydroeye: 2 pills AM

                          Diagnosed
                          1995: Endometriosis
                          1998: Interstitial Cystitis
                          2006: Bladder Endometriosis, Total Hysterectomy and Bowel Re-Section
                          2008: Removal of Ovarian Remnant and Endometrial Cyst That was Obstructing Ureter
                          2012: Laparoscopic Removal of Adhesions and Staples

                          Comment

                          • #14
                            There's a generic for Baquacil now. The one we get is called Revacil I think. I found an out-of-the-way small pool supply place where it's about half the cost of the name brand.

                            Donna
                            Stay safe


                            Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                            Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                            Have you checked the ICN Shop?
                            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                            Patient Help: http://www.ic-network.com/patientlinks.html

                            Sub-types https://www.ic-network.com/five-pote...markably-well/

                            Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                            AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.                             [3MG]

                            Anyone who says something is foolproof hasn't met a determined fool

                            Comment

                            • #15
                              I tried swimming in a pool while on vacation. It didn't work for me for a few reasons:

                              1. I can't take pressure on my abdoman, so the swim bottoms bothered me (I think it would have been better if I went comando--but I obviously couldn't).
                              2. The feeling of water being on the "down there" region made me feel like I kinda had to pee.
                              3. Oddly, the chlorine gave me only mild irritation (kinda frictional feeling).

                              Medical "Issues":
                              IC
                              GERD
                              Tachycardia(resting rate is 125-130 )
                              Medicastions:
                              Tramadol-as needed (IC)-50mg
                              Elmiron 200mg twice a day
                              Levsin .125mg 1-2 pills 4 times a day

                              Comment

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