Is this part of IC or do I have something else wrong with me?

[GriffsMommy]

Okay, it's 3:30am in the morning. I woke up to go to the bathroom and then tried to take the puppy out to go to the bathroom. It's raining really hard though so she doesn't want to go.
Let me get to the point I am so so sore. I did do a lot of errands today. This morning we went to the farmers market but that only took about 20 minutes, then I went to the grocery store and then went home and gave Griffin a bath and waited for my friend to visit from Maine. We just took the kids to the McDonald's playland for maybe half an hour. We got back from there and I did make a quick run to Kmart and then came home and made dinner. For most people that would be an easy or light Saturday. I on the other hand now am aching almost from head to toe. My feet hurt, my legs hurt, my arms hurt, my back hurts. Is this because I did too much and because I'm not very active due to all of the pain that I'm in or is this something else? I mention to my hubby that I am sooooo sore soooo much of the time and he says that it's just because I'm so inactive and ends the conversation there. I am just so sick of my whole body hurting in addition to my bladder and pelivs Ugh! thanks for listening.

[waterflow]

Yeah, I get that way too if I do to much the day before and it doesn't have to be a whole lot anymore either. Partly for me it is from not being very active and out of shape and some because my body aches all over from the IC too. We just never win you know? Hope the soreness goes away fast.

[tigger_gal]

I too feel that way, but it could be something else.

[GriffsMommy]

Alright, at least I know that it's not just me. I'm just so worried that I'm going to turn up with something else that's wrong with me. My bladder has been killing me though the past few days so maybe that's why everything aches. I can't wait until Wednesday to find out the results of my biopsy and hopefully try some new treatments.

[ICNDonna]

I ached all over when my potassium level got too low. You really do need to get a little exercise every day --- even if you have to start out with a five minute walk. Our driveway is about a block long and I make at least two trips down it daily --- morning paper and afternoon mail.

Warm hugs,
Donna

[Kara Isabel]

Have you thought about seeing a rheumatologist and finding out if you have Fibromyalgia? I had the same symptoms as you and was diagnosed with fibromyalgia and myofascial pain syndrome, it seems to be pretty common with IC. I'd make an appt with a rheumy and make sure! They usually rule out lyme disease and some other possible things too.

Hope you feel better,
Hugs,
Kara

[GriffsMommy]

Thanks for the suggestion Kara. I was starting to wonder if maybe I have fibro but I'm going to wait and see how I feel a little bit longer. I'm going to make the family go broke with all of these dr appts and tests, ugh!

[DaniBelle]

I know what you mean...

about the idea of having to go to another doctor, paying another bill for tests, but you if your symptoms continue, you could try to find out what's going on two ways. If you regularly see a primary care doctor, he can draw blood, send it for testing to see if your 'SED' rate indicates Fibro. If you go straight to a rheumatologist, he/she will do blood, urine, exam head to toe, even looking at the capillaries in your hands. Hopefully, you just 'overdid' it that day, because from what you described, your activity was ALOT! I can only be on my feet 30 to 45 min. (and that's moving slowly). Once I'm get in line to buy my groceries, a get an instant IC flare (happens everytime) and can't wait to get home so I can recline with my heating pad. My pain mgmt. doc said that FM is like a teenage girl, you never can tell why it acts up when it does and how long the flares are going to be AND why they are worse at some times more than others (I personally think it's stress and food related). One clear sign after I was DX'd with IC that I also had FM was that I would wake up 5 out of 7 mornings feeling like I'd been run over by a truck. I have difficulty making a fist and my feet feel tender and swollen. As soon as I take my pain meds, it gets better, but never really completely goes away. Soma helps alot. I hope you don't have FM, but it's one of those conditions that is a tag-along with some people. Alot of people who have had gyn problems (cysts, endometriosis, etc.), IBS, and IC develop Fibro. I truly wish you don't have this 'cause sometimes it's worse than the IC in the morning times. Makes me feel like I'm 97 instead of 47. Anyway, in my case, the big indicator was that I'd wake up in the morning crying and wondering why my body was sooooo sore. I wish you well. Take care and have the tests done you feel will help you the most. There are many others on this site who know alot more about Fibro than I do, so just keep asking questions. ICNDonna had a good point about the sodium. It would be good to have that checked as well.

Praying for you,

Danita

[sami4]

Kara

That little dog is sooo darling. What kind is he?
Sammi

[ihurttoo]

I agree with the others. So many possibilites, huh? It really could be any of them, or it could be the IC. One other possibility to throw out there is a Vitamin D deficinecy could also cause the the exhaustion and aching. I had no idea why I was suddenly much more achy than normal, and figured mine was the Fibro or IC. But, during a routine Rhem visit, she did bloodwork and checked for Vitamin D deficiency along with a host of other things. Sure enough, I was severely deficient, and never would have known! She started me on prescription strength Vitamin D and I feel alot better. So, you never know!

I hope they figure out whatever it is and you start feeling better soon! Hopefully, it will be something with a quick fix. ****crossing fingers and toes**

Hugs,
Amy

[**Angie**]

I was going to add that feeling lousy all over "I can't make a fist with out it hurting and that my feet are swollen". Isn't that funny?? I wanted to know if anyone else feels this way too....I guess so. It's real hard to get around when your body aches so much. I'm having a hard time getting up and down my stairs--anybody else have this problem?? I think I'll have the fibro, Vit D, and the potassium checked. Sounds like a plan. But like ya all one more co-pay and I'll take us under. I also hate going in sounding like a hypochondriac. But if you have something wrong that can be fixed you need to help yourself to get well. Right?

[tacy99]

I was referred to pelvic floor PT a year ago. At my first consult when she asked where my pain was I said from my knees to my neck. She said that sounded normal to her. I have been in PT all this time and have gotten so much relief from the chronic pain. My pee issues remain, but having less pain is welcomed.

[Shasha]

my goodness amy

I agree with the others. So many possibilites, huh? It really could be any of them, or it could be the IC. One other possibility to throw out there is a Vitamin D deficinecy could also cause the the exhaustion and aching. I had no idea why I was suddenly much more achy than normal, and figured mine was the Fibro or IC. But, during a routine Rhem visit, she did bloodwork and checked for Vitamin D deficiency along with a host of other things. Sure enough, I was severely deficient, and never would have known! She started me on prescription strength Vitamin D and I feel alot better. So, you never know!

I hope they figure out whatever it is and you start feeling better soon! Hopefully, it will be something with a quick fix. ****crossing fingers and toes**

Hugs,
Amy

Dear Amy, I am so sorry to hear all the problems you are having . my daughter is 14 and she is going into have a cystoscopy with hydro destention on monday i hear from some people that there is alot of pain after so now i'm scared . also they think that she has endo . I hope you can find happiness with all your problems any advice you cuold give me would really help.

thank you shasha

[Shasha]

Alright, at least I know that it's not just me. I'm just so worried that I'm going to turn up with something else that's wrong with me. My bladder has been killing me though the past few days so maybe that's why everything aches. I can't wait until Wednesday to find out the results of my biopsy and hopefully try some new treatments.

Hi christine , I am new to this sight my 14 year old is going in for a csto with hydro on monday dont know what to expect. they also think that she might have endo. any advice?