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A new symptom

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  • A new symptom

    Oh Joy! I have a new symptom! Ugh! I have been having this fun feeling of my urethra being pinched when I am just about done peeing. When I start to get this pinching feeling my stream seems to end right afterwards and I feel like I have emptied my bladder.
    Then I get up and flush and wash my hands and the sound of the water running makes me feel like I have to pee again. I sit back down on the toilet and go another 1/2 to maybe 2 oz. This is only a minute after I get up and I felt like I was done. I'm guessing this is part of the IC? Has anybody else had this problem?
    I guess I'll mention it to the uro since I go tomorrow morning to find out the results of my biospy that he did during my hydro. Wish me luck with that.

    I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
    1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
    2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
    I have tried every oral medication as well as rescue instills and DMSO.

    I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

    Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
    Also proud mom to the best Bullmastiff on earth, Claus

  • #2
    I have that same trouble daily, ans have had it for about 2 years now, if they tell you something that seems to help let me know, that is so frustrating.
    Wendy Cowan
    [email protected]

    IC since Oct 2005
    Endometriosis since Feb 2007


    • #3
      Sounds like the muscles down there are acting up.. Could be a sign of PFD..

      ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!

      Link to Patient Handbook:

      Diet Reference Sheet:

      Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

      Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

      Meds I have Tried:
      Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
      Lexapro< Bad reaction to this med!
      Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

      Dx With IC in Nov 2006 with Hydro/Cysto
      Hydro/Cysto Caused Bladder to Rupture.

      Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.

      ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


      • #4
        You know the longer i have this the wrose i think it is, if it is not one thinkg it is another. just today i though i was getting a sinus infection, i haven't been feeling all that well, but now i know it is going to be a big flair, waiting on the doc to call, i just started bleeding a few minutes ago, not good when we leave for California on Thursday. Any suggestions?
        Wendy Cowan
        [email protected]

        IC since Oct 2005
        Endometriosis since Feb 2007