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  • Symptoms better with Ovulation?

    Since my period came back in February, Ive noticed that my IC/vulva symptoms are better during Ovulation.

    i dont have the burning after my urine stream, and I dont have the vulva burning either.

    I do notice that I urinate a little bit more but its like peeing water and not acid like i have on most days.


    Anyone know what hormones are more dominant during ovulation?

    If i could be like this all month, i could get my life back.

    thanks


    Lyme disease diagnosed 11/05
    vulvar vestibulitis diagnosed 2/06 -worst case she has ever seen..very bad.
    IC diagnosed with hydro/cysto- may 17, 2006

    Over growth of lactobicilli found 8/07 treating with doxy.

    Was able to get my first internal exam evaluation for PFD....wohoo 1/18/07:woohoo:

    8/22/07- was able to get my first speculum exam, with pap

    Strep D found in bladder with United medical labs May 2006
    2 strains of strep in stool culture 9/06
    high Strep ASO titre found 10/06

    NEW MED

    Capsasin cream-once a day for 20min,
    BUt wont lie it does burn

    About to start valium supositories for PFD

    Trigger point injections- oct 07

    Current meds:
    Neurontin- 100mg at night supposed to work up to 300mg if i can tolerate it
    Zanaflex 2mg
    IC and low oxalate diet, no sugar diet
    Xanax for appointments to help relax me since they cause so much pain

    Started PT 3/07, PT has really helped me in ways I never knew that it would

    Meds ive tried
    Lyrica
    Klonopin
    Singulair
    Claritin
    Pyridium
    Soma- can barely tolerate half a pill
    Atropine cream- didnt seem to work, although i found out I was applying the creams wrong
    Estradiol cream
    Urelle- caused worse bladder spasm and retention

    Various antibiotics for lyme which caused yeast and made the IC and VV worse

    waiting for the next chronic illness to pop up


    "Did you know?
    Every 15 seconds,
    a person is
    diagnosed with
    interstitial cystitis."
    Source: J. Dimitrakov, MD

  • #2
    I think hormones play a great role in IC patients..I know when I use to have a period the pain and burning was worse, so the doctor put me on continuios birthcontrol, so I never have a period.. I have found this helps greatly..

    I have also heard that when people who have IC are pregnant that they go into remisson.. So yes I think hormones can have all kinds of affects on IC...
    Hugs
    Ronda

    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


    Link to Patient Handbook:
    http://www.ic-network.com/handbook/

    Diet Reference Sheet:
    http://www.ic-network.com/diet/icndi...tsheet0909.pdf

    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

    Meds I have Tried:
    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
    Lexapro< Bad reaction to this med!
    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

    Dx With IC in Nov 2006 with Hydro/Cysto
    Hydro/Cysto Caused Bladder to Rupture.

    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Comment


    • #3
      Estrogen? I'm not really sure, but it's definitely something to bring up with your doctor.
      Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
      Wishing you happiness and good health, and all the best out of life.

      Peace, Carolyn
      ___________________________________________________

      Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


      On the Beach with IC

      Comment


      • #4
        It does play a big role. I know when I had my periods I would have lots of pain and burning, BCP did help. Talk to your doctor.

        Comment


        • #5
          I brought this up with my gyno on Monday, but he kind of didnt say anything about it. I brought it up with my uro too, but nothing was said about it.

          I think they just feel hormones play a role but nothing that can be done.

          Im going to keep asking until i get an answer.

          I have an endocrinologist appt next week, so maybe he will know....or find it interesting.


          Lyme disease diagnosed 11/05
          vulvar vestibulitis diagnosed 2/06 -worst case she has ever seen..very bad.
          IC diagnosed with hydro/cysto- may 17, 2006

          Over growth of lactobicilli found 8/07 treating with doxy.

          Was able to get my first internal exam evaluation for PFD....wohoo 1/18/07:woohoo:

          8/22/07- was able to get my first speculum exam, with pap

          Strep D found in bladder with United medical labs May 2006
          2 strains of strep in stool culture 9/06
          high Strep ASO titre found 10/06

          NEW MED

          Capsasin cream-once a day for 20min,
          BUt wont lie it does burn

          About to start valium supositories for PFD

          Trigger point injections- oct 07

          Current meds:
          Neurontin- 100mg at night supposed to work up to 300mg if i can tolerate it
          Zanaflex 2mg
          IC and low oxalate diet, no sugar diet
          Xanax for appointments to help relax me since they cause so much pain

          Started PT 3/07, PT has really helped me in ways I never knew that it would

          Meds ive tried
          Lyrica
          Klonopin
          Singulair
          Claritin
          Pyridium
          Soma- can barely tolerate half a pill
          Atropine cream- didnt seem to work, although i found out I was applying the creams wrong
          Estradiol cream
          Urelle- caused worse bladder spasm and retention

          Various antibiotics for lyme which caused yeast and made the IC and VV worse

          waiting for the next chronic illness to pop up


          "Did you know?
          Every 15 seconds,
          a person is
          diagnosed with
          interstitial cystitis."
          Source: J. Dimitrakov, MD

          Comment


          • #6
            Bizzare, I had the same thing this month but got the pain relief only for the one day.

            This seems to say it's progesterone that rises when ovulation actually takes place.

            http://www.menstruation.com.au/perio...ualcycles.html

            I believe progesterone is dominant during pregnancy as well.

            I'ts good you're seeing an endocrinologist. I'd be interested to hear what you learn. I'll be seeing one too but it will be a couple of months b4 I get in.

            There are ways to influence the balance of your hormones w/ natural medicine and of course hormones drugs. I am certain hormones play a role myself.

            Comment

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