Not sure if this is where I ask

[beandip]

This is random but if you are also on ibuprofen, which I was before I was diagnosed, it can cause a flare. Also, Elmiron can cause stomach upset like diarrhea that can cause a flare. If you take off the capsule and just take the medicine, you may feel better. Worth a try.

Colleen

[Paula A]

If you have only taken Elmiron for two weeks don't give up. I used to think that I was getting worse and that it wasn't helping but I gave it time and it has really helped me. I would never go off of it now.

[vm]

I agree with Sarojini - there is a small group of Icers whose symptoms get worse on Elmiron. I think it would be a good idea to talk to your doctor about it - just in case that's what's happening.

[Berkshire Road]

OW, tampons -- the last time I put one in, it set off a flare that has so far lasted two years and a half, and is only now beginning to improve. I would stay away from them, even if it means you miss out on doing something once in a while.

[humpieumpumkin]

I use playtex slmifits or tampax slender regulars-SPARINGLY. I mostly have to use pads because my pfd is so bad. As for elmiron, it made me very, very sick and didn't help. Elmiron is wonderful for many patients but it can take up to 6 months or longer to work!

Erika

[Sarojini]

Some people don't respond well to Elmiron, and I've heard a few say they felt worse on it. You might discuss that with your doctor.

As for tampon use, many ICers just cannot use them at all because it is too painful. I can do it since I only need low absorbancy ones, but I have to be VERY careful about how I insert it, because if I hit my bladder.... ooooohhhhh.... bad....

[NikkiK]

I have a couple of questions, First is that I was just recently diagnosed a couple weeks ago with IC and Fibromyalgia, however I have have the symptoms for quite some time. I have started taking Elmiron and trying to watch what I eat until I get the cookbook to go on the diet fully. However, I am noticing that I am having quite a bit more pain and frequency. I feel like I am getting worse, even though what I have read says that you shouldn't get worse. Is this normal or possible? Also, every time I put in a tampon, I feel like the pain is horrific. Is this normal???