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  • smelly urine?

    do any of you get strong smelling urine when you have a flare - even if you don't have an infection? It is an odd smell that really has a rotten scent....sorry to be so blunt but I wonder if it is only me?

  • #2
    I get this too. My pee smells like a dead rat or something( sorry for the gross description). I thought maybe it was infection too, but my culture was clear.


    • #3
      HI I get that strong ukky smell too.......guess it's just the bladder revolting! LOL Roxie

      Double Spinal Cord Stimulator surgery 8/09
      Unsuccessful MiniArc sling surgery 12/07
      Dx'd Hypothyroid
      Dx'd Chronic Axonal Neuropathy & Myopathy
      June 2007
      Dx'd IC May 2006 (after suffering for 25+ yrs!)
      First Cysto 1979
      First Hydro 1981 (Many treatments since then!)
      Collagin"Durasphere" injections for urethra
      Gall bladder surgery Aug. 2004
      Gastric Bypass Dec. 2004
      Dx'd: Barrett's Esphogus July 2004
      Dx'd: Vaginal Atrophy 2005
      Bladder surgery 2000
      Dx'd: IBS 2000
      Hysterectomy (fibroids) 1999
      Laminectomy 1989
      Dx'd: Degerative Disk Disorder 1989

      For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
      I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra's amazing stuff!!:woohoo:


      • #4
        Yes, I get it too. Inflammation produces a lot of yucky things, and I guess they are smelly, too!

        *Diagnosed with severe IC in 2004
        *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
        *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
        *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

        **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


        • #5
          Thank you for posting this question, as I have wondered it myself. I've gone to the bathroom and thought DAMN, why does it smell SO BAD, how can I NOT have a UTI with how rank it is??? Sorry for TMI, but this answers my question...
          32 years old

          former Med/Surg RN

          endometriosis x 13 years (with attempted/ failed complete removal in June 2008), IC diagnosed with cysto/hydrodistention April 2007, second cysto/hydro in June 2008


          • #6

            If it isnt ammonia which is common, and if its really stinky then its probably indicans, a urine chemical which is rank.


            Meds: Melatonin 3mg @ bedtime if needed. Estrogen 1.5 mg troche and 0.1 mg Estrace cream.
            Diagnosis: IC, PFD (both in remission)


            • #7
              I read somewhere that when you eat asparagus it can make your urine smell like rotten cabbage, garlic, or even like a skunk smell. That is so weird. It also said that about 50% of the population will have this reaction and only about 50% of the population will be able to smell the scent. It can take about 15-30 minutes to have the smell after you eat asparagus. I tell you learn something new every day
              Miss Bessie

              Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.

              Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.

              Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of life


              • #8
                When I asked my urologist about ismelly urine she said it could also come from the bacteria in the vagina...

                I have that smelly urine sometimes. I wonder if it may be related to what I eat. I remember when I used to drink coffee, before IC, my urine would smell like cofee! I'm sure some of you experinced that in the past....
                Laser cervical surgery after abnormal pap (moderate dysplasia) in 3/2004
                UTIs since mid 2004
                Recurrent yeast infections since mid 2005
                IC dx 3/2006
                V V dx 12/2006
                Other conditions: IBS, allergies, dry eyes.

                Current IC medications:
                Elavil (since 12/06) 10 mg;
                Cysta Q (since 5/07)
                Rephresh acid jel every 3 days
                D-mannose, fish oil, Calcium Citrate, Multivitamins & garlic pills (sometimes)
                Probiotics Femdophilus or other brands
                Gy-Na-Tren for yeast infections (started using it as needed since 2010)
                Other Rx:Omeprazole 20mg; benadryl as needed, Restasis

                Past Meds and why I stopped them:
                Elmiron: March to September 2006: headaches
                Lyrica:2 weeks in 2006: headaches
                Cystoprotek: from Jan to April 2007: nausea

                Femcon Fe (2/07 to 10/07):caused spotting/bleeding
                BCP:Loestrin (since Ocotber 2007) to stop spotting for 2 months. V V worse. Stopped the pill in Nov 07.

                "Obstacles don't have to stop you. If you run into a wall, don't turn around and give up. Figure out how to climb it, go through it, or work around it"


                • #9
                  It can be from something you eat, from not drinking enough, infection --- or I sometimes wonder if I don't sometimes have a very sensitive sense of smell.

                  Stay safe

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                  I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                  Anyone who says something is foolproof hasn't met a determined fool


                  • #10
                    Me too! And I wonder if OTHER people can smell it too!
                    45 year old
                    IC symptoms, all my life
                    Severe endometriosis since age 13, hysterectomy Oct 06
                    IC diagnosed 1/11/05, Interstim implant May 09


                    • #11
                      I know when I use to drink wine, before IC dx, I would wake up and it would smell like the wine, yuk. Well now I don't drink, maybe one glass every 6 months, and I am glad, because when I go out of town with my friends and we go out, they drink too much, and now I wake up without a hangover and they are all going ahhhhhhh, of course I have my ic pain, but not a hangover.


                      • #12
                        thanks everybody for the replies- I think this time it was an infection - went to the doctor and had blood in my urine! No where close to that time so they put me back on another round of Levaquin.

                        You all take care and have a good weekend.


                        • #13
                          Re: smelly urine?

                          I've noticed it too.... but only after I started taking Desert Harvest freezes dried aloe Vera. Wondering if that is how my body absorbs the aloe vera