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I've been okay lately in bed or lying on the couch, or walking...but my pain has been starting when I sit on a chair, in a car, or on the couch. It feels like it starts at the opening of my urethra. It just kind of feels like my urethra is really raw. Does anyone else's pain start from sitting? Thank you!
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HI! Yes that's how my urethra pain was. It's so miserable. Have you tried MSM gel for the pain? It has ended my urethra pain all together. I still use it once a day for maintence.....just in case......because I'm always worried it will return. But so far it hasn't. Good luck to you! Roxie
Double Spinal Cord Stimulator surgery 8/09
Unsuccessful MiniArc sling surgery 12/07
Dx'd Hypothyroid
Dx'd Chronic Axonal Neuropathy & Myopathy
June 2007
Dx'd IC May 2006 (after suffering for 25+ yrs!)
First Cysto 1979
First Hydro 1981 (Many treatments since then!)
Collagin"Durasphere" injections for urethra
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Dx'd: Vaginal Atrophy 2005
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disorder 1989
For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo: -
Hi Roxie,
Where did you get your MSM gel? Is it safe to use? Does it smell like garlic? Thank you!Comment
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HI! I get the MSM gel online at www.jacoblab.com It's clear, no smell at all and very safe to use. You can read all about it on the website. It's worked great for me. Roxie
Double Spinal Cord Stimulator surgery 8/09
Unsuccessful MiniArc sling surgery 12/07
Dx'd Hypothyroid
Dx'd Chronic Axonal Neuropathy & Myopathy
June 2007
Dx'd IC May 2006 (after suffering for 25+ yrs!)
First Cysto 1979
First Hydro 1981 (Many treatments since then!)
Collagin"Durasphere" injections for urethra
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Dx'd: Vaginal Atrophy 2005
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disorder 1989
For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:Comment
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Ok, I'm going to look at that right now, thank you!Comment
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Sorry to be a pain, Roxie...there are two gels on the site...do you know if you use the 50% or 70% gel? Thanks.Comment
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Hi, I've had this symptom for a long time now:-(. It's graduated to can't stand without getting pain and most of the time can't walk w/out pain for more than a short time. I'm sure not everyone goes that way.
Haven't found the answer yet. MSM gel didn't work for me but it might for you. Desert Harvest makes a gel for IC patients from Aloe Vera, I just got a sample and I'm going to try that. It's also supposed to help pain but I have to think the pain has to be more toward the outside of the urethra and not deeper, but Im not sure.
I know other people on the board have mentioned having the same problem.Comment
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