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  • cfreela
    replied
    what's PFD?

    I have also complained about that same pain, but once I was one the IC diet and pelvic floor exercises my pain has pretty much gone, except if I exercise too much.

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  • ads
    replied
    Thanks, but I am not close to being a doc -- just have been to a lot of them! LOL! Yes, many people with IC also have PFD. There are different theories on whether IC caused the PFD. Dr. Modwin's book is a must read on PFD. It saved my life more than once. You can buy it here on the ICN shop, Amazon or sometimes local bookstores.

    I wish you the very best. Hang in there and do the tests, which could provide valuable information about your condition and a help your doctor establish a good treatment plan. Test usually aren't fun, but can pay off in the long run.

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    Originally posted by jjj2007 View Post
    wow, you both really know your stuff! could be doctors. went to the uro/gyn and she did say i have PFD, still going to get more testing though. but, do people with ic have pfd also?

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  • jjj2007
    replied
    wow, you both really know your stuff! could be doctors. went to the uro/gyn and she did say i have PFD, still going to get more testing though. but, do people with ic have pfd also?

    Leave a comment:


  • ads
    replied
    I had this type of thigh pain for three years and after a lap to remove endo it went away. Although some of the other posters are also correct it can be caused by PFD. Both PFD and endo can cause thigh pain as you describe and lower back pain. Oh boy! It is so fun figuring out which one is causing our pain.

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  • leelee88
    replied
    If those areas feel tight and sore that sounds more like PFD...
    As far as the foods for some it takes hours and other it hits me right after i eat..

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  • jjj2007
    started a topic Back of thigh tension

    Back of thigh tension

    Have no idea if I have IC, but I get tension right below my buttocks and thighs. I have the heavy feeling, etc.
    Also, does a flare up happen immediately after having an offending food or is it slow to react?
    I drink coffee, chocolate, alchohol, but don't feel anything until hours later.
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