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  • Would like to know who has Allergies

    Some of us on the ICN are wondering who all has some kind of allergies?
    I think there is a big link between allergies and IC.. Would like all of your opinions and comments

    Thinks Ronda
    Hugs
    Ronda

    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


    Link to Patient Handbook:
    http://www.ic-network.com/handbook/

    Diet Reference Sheet:
    http://www.ic-network.com/diet/icndi...tsheet0909.pdf

    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

    Meds I have Tried:
    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
    Lexapro< Bad reaction to this med!
    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

    Dx With IC in Nov 2006 with Hydro/Cysto
    Hydro/Cysto Caused Bladder to Rupture.

    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

  • #2
    I have mold and dust mite allerges. My poke test on the dust mites came up as 4+++ which is the most severe it can get Some times I get a scratchy feeling in my bladder and it feels similar to the itching I get inside my ears. I think there is a connection for sure.

    Erika
    IC diagnosed officially via cysto/urodynamics 1/26/07

    Grade II Endometriosis diagnosed via lap 12/11/07

    "Fall down seven times, Stand up eight."

    "Life is a tragedy for those who feel and a comedy for those who think."

    Current Treatments:
    Interstim Since 5/25/07!
    Birth Control

    Comment


    • #3
      Oh lets see, I am allergic to some meds, a couple foods, molds, grass, trees, cats, pollen ........incompetent doctors lol!

      In all seriousness, I have always had allergies and went through a spell in my teens where I was sick every 2 months from allergies. I do believe there could be a connection also.

      Comment


      • #4
        Food allergies: shellfish, fish, peanuts & other legumes, tree nuts, pumpkin seeds, soy

        Medication allergies: All oral antibiotics, except for Macrobid.

        Other allergies: 1. mold 2. dog if in confined space with it or dog owner's house is not clean
        Kadi

        -------------------------------------------------------------
        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        ------------------------------------------------------


        New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
        Source - Pinterest
        "


        Current treatments:
        -IC diet
        -Elavil 50mg at night
        -Continuous use birth control pills (4-5 periods/year)
        -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
        -Pyridium if needed,
        -Pain medicine at bedtime daily, as needed during the day several times per week
        -Antibiotic when doing an instillation to prevent UTI
        -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
        -Dye Free Benadryl 50 mg at bedtime
        -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
        -Managing stress= VERY important!
        -Fur therapy: Hugging the cat!

        Comment


        • #5
          I have a TON of allergies! Several foods, cats, pollen, dust, mold, some household cleaning chemicals and on and on! I'm either sniffling, in hives or wheezing!

          Certain foods and cats make me wheeze really bad! I can't even go into a house where there is a cat my allergies are so severe.

          I think they are connected for many of us.

          Kara
          Hugs and Wishes for Pain FREE days!!,
          Kara


          www.loveforearth.net ~reducing plastic waste one bag at a time~

          Facebook: Kara Kaiser
          Twitter: Love4Earth

          Me and my Guccigirl... she helps me through those painful hours!

          Comment


          • #6
            I am allergic to pollen, ragweed. dust mites, most flowers and flower scented perfumes, air fresheners and carpet fresheners. I'm also allergic to fish and blue berries.
            Work like you don't need money,

            Love like you've never been hurt,

            and dance like no one is watching

            Comment


            • #7
              Pre IC I was allergic to Amoxicillin, shell fish, latex and I was VERY VERY lactose intollerant. Post IC dx I developed an allergy to Percoct and my latex allergy got worse.

              Medical "Issues":
              IC
              GERD
              Tachycardia(resting rate is 125-130 )
              Medicastions:
              Tramadol-as needed (IC)-50mg
              Elmiron 200mg twice a day
              Levsin .125mg 1-2 pills 4 times a day

              Comment


              • #8
                I'm allergic to tomatoes, penicillin, sulfonomides --- pollens can be a problem at times, but not always, and I'm VERY allergic to cedar dust.

                Donna
                Stay safe


                Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                Have you checked the ICN Shop?
                Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                Patient Help: http://www.ic-network.com/patientlinks.html

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                I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                [3MG]

                Anyone who says something is foolproof hasn't met a determined fool

                Comment


                • #9
                  Thanks for all your replys
                  Hugs
                  Ronda

                  ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


                  Link to Patient Handbook:
                  http://www.ic-network.com/handbook/

                  Diet Reference Sheet:
                  http://www.ic-network.com/diet/icndi...tsheet0909.pdf

                  Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

                  Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

                  Meds I have Tried:
                  Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
                  Lexapro< Bad reaction to this med!
                  Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

                  Dx With IC in Nov 2006 with Hydro/Cysto
                  Hydro/Cysto Caused Bladder to Rupture.

                  Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



                  ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                  Comment


                  • #10
                    Count me in on the allergy clan! I have horrible seasonal allergies that have now just decided to stay all year round, lol. I noticed the biggest leap in med treatments working when I added in the hydroxyzine, so that's gotta mean something!!! I also am allergic to camphor, sulfa drugs, and tetracycline.
                    Hugs,
                    Tracey
                    How do you eat an elephant? One bite at a time...

                    Harry arrived 2/23/09!



                    *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                    IC Diet Cheat Sheet:
                    http://www.ic-network.com/diet/2009icdietlist.pdf



                    Dx's:
                    IC dx'd Nov 2004
                    Lymphocytic Colitis dx'd July 2005
                    Possible IBS
                    Current IC Meds
                    Vistaril 25mg in the evening
                    Previous IC Meds taken:
                    Cystoprotek - 2 caps 2x's a day
                    Elmiron, 100mg 3x's a day
                    Ditropan, 5 mg 3x's a day
                    Others:
                    Wellbutrin 150mg 2x's a day for Anxiety/IBS
                    Pepcid 40mg a day for GERD
                    Zytrec for Nasal Allergies
                    Align Probiotic daily for IBS

                    Comment


                    • #11
                      I had terrible allergies to dust and pollen that came on when I was 23. Surprisingly, around the time I got IC (25) me allergies went away. This year, I've only had them bother my 1 or 2 days so far.

                      Comment


                      • #12
                        I am allergic to work and exercise.

                        Seriously, I am allergic to codeine and witch hazel. Plus, this Spring I have had a horrible time with sinus allergies.
                        Sharon

                        Shopping??? Did someone mention shopping? I'll get my hat... ;-)

                        Where I can be found most days.



                        Link to the ICN Patient Handbook:
                        http://www.ic-network.com/handbook/

                        Link to the IC Diet:
                        http://www.ic-network.com/diet/


                        IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                        Comment


                        • #13
                          I have ALWAYS had a ton of allergies (even as a kid) my family as a whole is a major allergy prone family...

                          My Allergies: grass, dustmites, mold, pollen (esp. certain flowers), most dogs, some cats (my cat is a hypo-allergenic breed but even with her I sometimes have itchy eyes), most other fur animals, pineapple

                          My IC is always worse in March, when my allergies kick... every year I know in March I flare.

                          Comment


                          • #14
                            Boy do I have allergies

                            Boy do I have wicked allergies. I have strong allergies to many environmental allergens: all types of trees, severe grass allergy (allergic if I am outside with fresh cut grass for too long), cats, dogs, etc. I also get allergic asthma with hay, rabbits, guinea pigs, rodents, and especially birds (horrible with birds). I'm allergic to dust as well. Since starting Atarax, I have noticed an improvement in all allergies (nasal especially) and my bladder symptoms seem better (along with the Ultram). I am not allergic to any foods though. I also have skin allergies to hay, rodents, etc. Oh, I'm allergic to fluroquinolines (like Avalox).

                            So yeah, I fit that group of allergies and IC. I don't have severe IC (large ulcerations, burning, and peeing blood clots), but they think they got to it early before I had severe damage to my bladder/urethra lining.
                            Last edited by born2swim; 04-30-2007, 09:56 AM. Reason: Added a part
                            [SIZE="1"][B]Be well, Alyssa :hi:[/B]

                            [

                            Comment


                            • #15
                              Allergies

                              I'm allergic (itchy eyes, sometimes rash, runny nose, headache, itchy ears and throat) to practically every tree and grass in the midwest; anything with a smell or fragrance (most cleaning products, bath soaps, lotions); lanolin, cats (but not dogs) birds, mold, dust, hay, ragweed (UGH), latex. My primary that diagnosed me (not my ob/gyn) said that in his reading, he suspected an immuno-issue and since last year I have also had warts proliferating like crazy on my hands. I also wonder if there isn't a connection, but I have also had trauma to pelvic floor, groin, hamstrings and lower back, so we thought maybe the nerve issues I was having was just trauma, not the pain from my bladder which is a separate but related component. Took 6 years to diagnose the problem after having symptoms.

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