I have had IC for many years but I get right sided abdominal pain quite a bit. I hurt on the left too but the right is worse. Sometimes it's really low, sometimes mid abdomen and it radiates around to the back, like my kidneys, and sometimes it's even higher. I stay constipated a lot so I wondered if that had something to do w/ it. I had my gallbladder taken out a few yrs back, so that's not it. I am not "sick" feeling. I just had a HUGE amount of labs drawn a while back and a full cardiac work up which was normal. I had my lungs xrayed and was eventually diagnosed w/ FM. Could it be scar tissue? Gosh, I can not afford to have a whole nother gammet of testing. Does anyone else get this? Mine comes and goes and seems to be worse w/ flares. What does appendicitis (sp) feel like? Any help or suggestions would be appreciated.
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Right Abdominal sided pain
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Right Abdominal sided pain
Was diagnosed with IC in 1993 after extensive endometriosis and total hysterectomy.
MEDS: Attarax, Zantac, Zanaflex, Oxycontin, Lortab, Urimax and daily instillations of Lidocaine, sodium bicarbinate and heparin (lifesavers)
Have used Elmiron & Elavil w/o any improvement
Now have a possible dx of fibromyalgia. Working on confirming that or hopefully ruling it outTags: None
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Did they by any chance to an ultrasound with all of these other tests. I woke up a little over a year ago with tons of pain on my right had side and it was horrible. Ended up in the ER and they found an ovarian cyst about the size of a softball that had attached itself way up under my breast and it was twisting everything all up. It hurt like hell, if your's is coming and going it might be something like this where it is twisting and then when it untwists you feel fine? I thought I might have appendicitis but then found out it was the cyst.Christine
I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
I have tried every oral medication as well as rescue instills and DMSO.
I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)
Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
Also proud mom to the best Bullmastiff on earth, Claus
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I had a total hyster about 15 yrs ago, don't have any ovaries anymore. I did have severe endometriosis that required multiple surgeries before they decided to do the hyster so I wonder if it might be some scar tissue. I went ahead and made an appt to see my gyno. Maybe they can do some general testing to rule out some other things w/o breaking my wallet. I wished I would have had my appendix taken out when I had my GB taken out. Why oh why???Was diagnosed with IC in 1993 after extensive endometriosis and total hysterectomy.
MEDS: Attarax, Zantac, Zanaflex, Oxycontin, Lortab, Urimax and daily instillations of Lidocaine, sodium bicarbinate and heparin (lifesavers)
Have used Elmiron & Elavil w/o any improvement
Now have a possible dx of fibromyalgia. Working on confirming that or hopefully ruling it out
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Ohhhh, okay, well obviously ovaries are not a problem. I believe that scar tissue is an issue, as I have also heart that even after a hysto endo can still grow back. I have endo as well so I have done lots of research. I hope that you start to feel better soon and get to the bottom of your problems.Christine
I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
I have tried every oral medication as well as rescue instills and DMSO.
I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)
Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
Also proud mom to the best Bullmastiff on earth, Claus
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I have the same pain when I am in a flare. I mainly have pain in my right flank area and thought it was my kidneys. I had my ovaries out last year & gallbladder. All blood test & test have been normal, so the uro thinks it is part of my flare.Meds on now:
dextro 10mg
5000mg Vitamin D- when tested, I was sooo low.
Compound Hormones- Had hysterectomy when 24, ovaries out 37
At night:
4mg Zanaflex- Fibro & PFD
plendil- Raynalds
I have Fibro, IC, IBS, PFD, Raynauds.
Tried:
Past Meds
Lexpro- changed to Cymbalta for better pain relief –off both
Ultram – three times a day. Helped , I was tired of always being so tired.
Elmiron-took for a year-
Topamax-Did not need anymore since on dextro.
Atarax- did not need anymore
Pictures: Hubby & Me, Ozzy, My three Sons!!
What a proud Mother I am!!
.
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Yeah, I wondered if it was IC pain. It's worse w/ flares. It's at an all time high right now too. I also had to stop doing the rescue instillations recently. I had a heck of a bladder/yeast infection from cathing and was scared to cath again. I really need to get back to do thing but they irritate my urethra soooo bad these days. I had been doing them every single day for almost 2 yrs!Was diagnosed with IC in 1993 after extensive endometriosis and total hysterectomy.
MEDS: Attarax, Zantac, Zanaflex, Oxycontin, Lortab, Urimax and daily instillations of Lidocaine, sodium bicarbinate and heparin (lifesavers)
Have used Elmiron & Elavil w/o any improvement
Now have a possible dx of fibromyalgia. Working on confirming that or hopefully ruling it out
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This is intersting because i get this same pain on my right side!!! I was concerned it was my liver and my CBC etc..came back ok. hmmm. Flares cause so many weird symptoms. I'm very glad to know I am not the only one who has this weird mystery pain!!!Mimi~
Currently battling:
Migraines
IC
Panic attacks/Anxiety Disorder
Current Treatments:
Pain Meds and Anxiety Meds
Gentle Physical Therapy
Yoga
Heating Pad~my best friend
Lots of hot baths w/ Epsom Salts & Baking Soda
Tens Unit
Prayer
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I get a sharp stabbing pain in my left side. It feels like a spear is pushed through right to my back. It was one of my first symptoms. I went to therapist for pelvic floor dysfunction and that pain is pretty much gone. If I start to feel it I start pain meds and clean up my diet immediately. My therapist also showed me some things to do at home. But I can't beat the back pain, I have that at some level everyday. Right now I am due for my period and not feeling so great. I really try to keep a great attitude and try to be thankful for all I have. But every once in awhile, like last week when I failed my liver function tests because of my meds- I take an hour to breath out and say this really sucks! And then I go on with my life which all in all is pretty great.
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Kimchi,I hear you about all the testing. I hope you can get some answers from your GYN. It is so aggravating not to know what is going on.
Kimchi it really can be from so many different things and the test will start ruling things out. I know it stinks. I wish there were an easier way to find things out.
SENDING HUGS, Trishann
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I have struggled with right side pain for years as well. I also have both kidneys full of stones, chronic kidney infection and a narrowing in the ureter there. I also get kidney pain that becomes constant and disabling. But antibiotics are all that will control it. The sharp side pain though continues to come and go. My GP did a sed rate test to check my appendics which wa good. I have ANOTHER IVP set up next week to look for a stone.....
You could have a stone as well. Have they checked!
ShellyShelly Matthewson
Private Researcher
IC Support Group Leader
Director of MOARK Interstitial Cystitis
www.moarkic.com
Also diagnosed with Meduallary Sponge Kidney Disease, with many kidney stones and chronic infection, Pelvic Congestion Syndrome, and
PFD
"And we know that all things work together for good to them that love God, to them who are the called according to His purpose." Romans 8:28
In His hands even IC (MSK, PCS etc.) can be a blessing and an opportunity to serve Him by help others. It is my heart to help others and to network patients and medical practitioners in Missouri and Arkansas!!
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Pain on right side
I just posted the same question. I have had this before but today it has been so bad. I feel like I am ready to deliver. I am like steel on the right side. I also have had a hyster complete so mine is not female. I was wondering what to do. I usually just blame everything on the ic, but it is localized pretty much on the right side. I feel like nothing on the left, sort of empty but my right is really screaming. I feel like ranting today so I will spare you. Hope all is well.
J.J. Ps pain is in rectum also. Does anyone have this also.
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I was searching through here because I was about to post this same thing! I have been having all right-sided pain and pressure, especially what feels like my ovary on the right. I had a falopian tube cyst removed on my right side so maybe scar tissue comes in to play for me, too? I have the back pain like you said too! SO weird. I just hope it goes away soon...I am so uncomfortable.Diagnosed: 07/11/07 after Cystoscopy - mild case of IC, I also have PCOS.
Medicines:
Elavil 25 mg - 2 x a day
Elmiron 100 mg/3 x a day
Macrobid - after sexytime
Pyridium - as needed - it helps!
metformin - for PCOS
Stopped taking: Detrol LA 5 mg and Vesicare 10mg
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I also have right sided pain alot!!!!!
I have also had a hysterectomy but they left my ovaries so two years later the pain was so bad that I had my right tube and ovary removed......I also have some pain on the left but most of my pain is on the right side. I am always worried that it is my appendix but it is usually just a pain that has no cause or reason. they never find out what it is so now I usually just blame it all on IC.........
It is nice to know that other people are having some of the same symptoms that I am.......Started Vaginal Valium Suppositories April 2014
Hysterectomy April 2003 (for abdominal pain),Diagnosed with IC August 2003
Diagnosed with Pelvic Floor Disorder 2004,Had right ovary and fallopan tube removed 2005
Diagnosed with diverticulosis 2006,Interstim December 2006,Home Instillations 2007-not effective
Diagnosed with Fibromyalgia November 2007,Appendectomy February 2008,
Interstim repair December 2008,Removal of the Interstim August 2011,
6 Hydrodistentions from 2003-2009 Diagnosed with restless leg syndrome March 2014
Diagnosed with Raynaud's Syndrome November 2013
Ambien 5mg for sleep.
Elivil 50 mg at bed
Lisinopril 20mg in AM
Effexor 225 mg
Oxycodone 10 mgs 2 x a day for pain
Baclofen 20mg 3x a day
Phenazopyridine 200 mg as needed
Omeprazole 20 mg at night
Lyrica 450 mg daily
Requip .50 mg at night
Ketorolac 10 mg as needed for migraines
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Hi Friends,
I am in alot if pain today on my right side. My back is killing me. Took my Norco, not helping.
I talked to one of my girlfriends this AM and she thinks it could be Diverticulitis. She had the same symptoms and had to have surgery because it got very bad.
I don't know, i'm just tired of being in pain and my right side/back feels like there is a hot poker there. I woke up with a minor flare too. Oh well
Hope you are all doing good!Mimi~
Currently battling:
Migraines
IC
Panic attacks/Anxiety Disorder
Current Treatments:
Pain Meds and Anxiety Meds
Gentle Physical Therapy
Yoga
Heating Pad~my best friend
Lots of hot baths w/ Epsom Salts & Baking Soda
Tens Unit
Prayer
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I have the right-sided pain too. It can be quite excruciating, it feels like someone has stabbed me through to my back too. This is where my pain is concentrated and since I just had surgery, I know it isn't scar tissue. It gets aggravated by bowel movements also.
Lisa
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