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  • #1

    Please Help me!!!!

    I'm not sure how to explain this but I'm going to give it my best. When I sit down up right I have so much pressure it hurts. Is that part of IC??

    When I lean back, the pressure is gone. This has just started happing again. It will be like this for a few days where I can't just sit down like a normal person. I have to kinda sit on my leg and roll into the sitting position.

    If anyone has any idea what this could be or what is going on.....PLEASE let me know.

    Thank you once again for everyone support and help in advance!!!
    Live your life to YOUR best, and Love to YOUR best!!!



    DX in 03 with Shingles
    Removal of Left ovary due to Cyst in 2005,
    I have had cyst since I started my period as a child age 12
    Hysterecotmy December 06
    IC DX March 07 by PST
    2 "rescue" instills in March 07
    Cyco May 07 confirmed IC
    Uro study June 07
    1st Pain Block July 17,08
    Hydro/Cysto Nov 11, 2008
    12-11-08 was told I had alot of inflamation

    Meds: Allergic to 6 things
    Premarin......taking the gen cause I get it at Walmart for 4$$
    Presique for my drepression :woohoo:
    Abilify for my depression
    Adderall ...found out I'm ADD...makes sense now
    Kolopin for anxiety
    Noroco for my pain
    Valtrex for my shingles as needed

    Sorry if my spelling is off on the meds [/FONT]


    http://community.webshots.com/user/s...host=community
    Tags: None
    • #2
      What kind of pain is it? I have the same problem but it is more burning and tingling when I sit down. I found out recently that I have nerve damage which is causing the pain.

        Comment

        • #3
          I have pain/ pressure on my urethra when I sit upright too. I always try to be reclined. I think a number of ladies on this board have that, there is an IC pillow for sale on this network that takes the pressure off your bladder... I've not tried it though.

            Comment

            • #4
              Well the pain is just from the pressure. It is not a nerve.....I don't believe so anyway. And it is not all the time. Just once in a while but when it starts it lasts for a few days. Truly it feels like a tampon is in the wrong way or something.....thank god I don't have to worry about that anymore. lol

              It is just a lot of pressure....but I only feel it when I sit down. Then of course due to the pressure then I get pain.

              thanks for the replys ladies....I will go check out that pilliow.
              Live your life to YOUR best, and Love to YOUR best!!!



              DX in 03 with Shingles
              Removal of Left ovary due to Cyst in 2005,
              I have had cyst since I started my period as a child age 12
              Hysterecotmy December 06
              IC DX March 07 by PST
              2 "rescue" instills in March 07
              Cyco May 07 confirmed IC
              Uro study June 07
              1st Pain Block July 17,08
              Hydro/Cysto Nov 11, 2008
              12-11-08 was told I had alot of inflamation

              Meds: Allergic to 6 things
              Premarin......taking the gen cause I get it at Walmart for 4$$
              Presique for my drepression :woohoo:
              Abilify for my depression
              Adderall ...found out I'm ADD...makes sense now
              Kolopin for anxiety
              Noroco for my pain
              Valtrex for my shingles as needed

              Sorry if my spelling is off on the meds [/FONT]


              http://community.webshots.com/user/s...host=community

                Comment

                • #5
                  Yup.. I cant sit stright up either I am either reclined or I sit with my foot under my butt..
                  Hugs
                  Ronda

                  ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


                  Link to Patient Handbook:
                  http://www.ic-network.com/handbook/

                  Diet Reference Sheet:
                  http://www.ic-network.com/diet/icndi...tsheet0909.pdf

                  Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

                  Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

                  Meds I have Tried:
                  Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
                  Lexapro< Bad reaction to this med!
                  Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

                  Dx With IC in Nov 2006 with Hydro/Cysto
                  Hydro/Cysto Caused Bladder to Rupture.

                  Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


                  ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                    Comment

                    • #6
                      me too. It hurts if I sit upright in one place too long. Lot of pressure on my urethra.

                        Comment

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