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  • Jumping bladder

    I'm a long-time ICer and am having a new symptom today. Basically, my bladder feels like it's jumping around. Sounds a bit wierd, I know. It's like a spasm, but it doesn't really hurt. It's been doing it off and on all day. I am in a bit of a flare from a day trip over the weekend.

    I'm wondering if I need to worry about calling my uro since the jumping sensation doesn't really hurt. Or I'm wondering if it will pass. I'm thinking if it lasts for a few days, I probably will call. Just odd to have a new symptom - especially since I've had my IC symptoms under control for over a year now.
    ~ Stacey

  • #2
    All new symptoms should be reported to your doctor!

    That said I do think that what your having is a spasm....they can vary a lot..some as mild that you don't really feel them other than a feeling of having to urinate...or it can be very painful...and most somewhere in the middle.

    have you done anything recently that would be extra work on your pelvis muscles? Excercise? straining when BM or urinating? holding it a lot?
    Faith, Hope, and Love,
    Katrina


    I believe God is using me. He uses me for God. Things I gain from all my suffering are meant to help others. I hope I can help you too. Email me or start a chat if you like my help or anything. I CARE!Illnesses: IC,IBS, IBD, GERD, PFD, Epilepsy, Endo, Allergies, RLM,Rapid heart beat, low blood pressure,Gastritis,Gall stones,Tendonitis,migraines, Shingles, Prolapsed pouch,ext. fatigue (current problem) I have seen periods of remission and I have seen them end and return. At this time remission is over and working on getting it back!

    IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    or find me on facebook http://www.facebook.com/kat671?ref=profile
    Be the Miracle! & Pay it Forward!

    [email protected] please contact me...I am here to help!

    Comment


    • #3
      My urogyne wants me to call when anything new crops up even if it isn't painful. I end up starting the conversation, " I feel silly calling about this. It isn't causing me pain but I thought you might need to know that ....." They always say thanks for calling and we will tell him and get back to you. AND they do.,,sometimes he calls sometimes his nurses call.

      I think it is good to error on the safe side. What is the worst that is going to happen..they will laugh. I would never expect them to say "bug-off" or I would "bug-off".
      TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
      My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985

      Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
      Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
      I post to encourage and offer total support for rescue instillations.
      Find me on facebook: L. Clark Thomas
      Louann

      Comment


      • #4
        Good points. I just don't want to call and have it be something to deal with. I know, stupid reason. Oh, though, I did run out of Ditropan and have been taking Enablex instead for the last week and a half while I'm waiting for my Ditropan to arrive. That may be it. I've found before that Ditropan is the only one of those meds that helps me. I still will call tomorrow to double-check my theory, though. Probably not a bad idea.
        ~ Stacey

        Comment


        • #5
          Sometimes it feels good just to sit and rest your hand on your bladder.
          Mine often feels like its slightly trembling - also with no pain. The calming hand on it as little as 5 minute seems to relax it and will bring my anxiety level down to 3 or 4 from 8 (I have a gadget that measures it.)

          Comment


          • #6
            Well even if your doctor thinks it is something you have to deal with spasms are treatable! Sometimes PFD treatments helps....there are both natural and presciption antispasmodics, Chamomile has some antispasmodic properties and is often something people like the taste of so if that is what your doctor says, he is likely wrong!
            Faith, Hope, and Love,
            Katrina


            I believe God is using me. He uses me for God. Things I gain from all my suffering are meant to help others. I hope I can help you too. Email me or start a chat if you like my help or anything. I CARE!Illnesses: IC,IBS, IBD, GERD, PFD, Epilepsy, Endo, Allergies, RLM,Rapid heart beat, low blood pressure,Gastritis,Gall stones,Tendonitis,migraines, Shingles, Prolapsed pouch,ext. fatigue (current problem) I have seen periods of remission and I have seen them end and return. At this time remission is over and working on getting it back!

            IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
            or find me on facebook http://www.facebook.com/kat671?ref=profile
            Be the Miracle! & Pay it Forward!

            [email protected] please contact me...I am here to help!

            Comment


            • #7
              Ditropan definitely helps me with bladder spasms. They're worst at bedtime, can feel like a butterfly beating its wings in my bladder. But, taking the Ditropan & Elavil together at night does control it most of the time.
              Kadi

              -------------------------------------------------------------
              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
              ------------------------------------------------------


              New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
              Source - Pinterest
              "


              Current treatments:
              -IC diet
              -Elavil 50mg at night
              -Continuous use birth control pills (4-5 periods/year)
              -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
              -Pyridium if needed,
              -Pain medicine at bedtime daily, as needed during the day several times per week
              -Antibiotic when doing an instillation to prevent UTI
              -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
              -Dye Free Benadryl 50 mg at bedtime
              -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
              -Managing stress= VERY important!
              -Fur therapy: Hugging the cat!

              Comment


              • #8
                Before I had my hysterectomy I would feel little flutters. I was always thinking I was pregnant, getting my hopes up, and then big let down. After my hyst, I figured the flutters would stop because the uterus was gone. I didn't realize till recently that it was my bladder all the time. hth
                http://www.TheCraftyEwe.etsy.com

                Comment


                • #9
                  You know I've been thinking about the "jumping bladder". I remember when I was in college sometimes when I would lie down my tummy would wiggle around and looked something like a baby moving around.

                  It was in the area where the baldder is located. How odd, I wonder if that was an "early" symptom of IC?

                  No one else had a tummy that did the belly dance on its own.
                  TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
                  My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985

                  Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
                  Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
                  I post to encourage and offer total support for rescue instillations.
                  Find me on facebook: L. Clark Thomas
                  Louann

                  Comment


                  • #10
                    I don't have anything concrete to offer here except to say my bladder as "jumped" too,three times that I can recall since January. The first time freaked me out (before diagnosis). I assume they were spasms. The jumping wasn't painful,a bit strange though because I hadn't had that feeling since my last pregnancy. Haven't felt it in awhile but I do have times when I lay down and I feel my baldder, it seems heavy. IC is a curious thing isn't it?!!? Your not alone on this one.
                    Ellen
                    Diag IC 2/07
                    Meds: Elmiron 100mg 3x day
                    Anxiety since 2001
                    Meds: sometimes nothing, right now xanax
                    TMJ(jaw joint trouble)
                    Meds: no present treatment

                    Comment


                    • #11
                      Ya know, L. Thomas... the same thing has been happening to me. My bladder has been jumping around for years. I never knew what it was but it never hurt so I never told a doctor. I've been diagnosed with IC for 5 months and I still hadn't thought that symptom was important enough to let my doctor know. The spasms, for me, are usually not painful. I think I've only experienced painful ones every once in a while. I will definitally let my doctor know about my jumping bladder.
                      IC Diagnosed: January 3, 2007
                      Pelvic Floor Dysfunction
                      Vulvodynia

                      Meds:
                      Estrostep FE
                      Urocit K
                      Prelief (as needed)
                      Urelle (as needed)
                      Darvocet (as needed for pain)
                      Singulair (for seasonal allergies affecting the IC)
                      Cymbalta (for the pain)

                      Have been on and off too many to list because of adverse reactions...

                      Comment


                      • #12
                        The good news is that the jumping bladder sensation has mostly subsided now that I'm back on Ditropan XL. Evidently the Enablex didn't help me. I found the Detrol was the same way. When I'd had bladder spasms in the past, they were very uncomfortable. These were just odd in that they didn't hurt.

                        Unfortunately now I have a UTI, but at least the bladder isn't jumping around! (Of course, at this point, I'm not sure I'd mind if it just jumped right on out and left me alone!)
                        ~ Stacey

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