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  • stacey79
    replied
    The good news is that the jumping bladder sensation has mostly subsided now that I'm back on Ditropan XL. Evidently the Enablex didn't help me. I found the Detrol was the same way. When I'd had bladder spasms in the past, they were very uncomfortable. These were just odd in that they didn't hurt.

    Unfortunately now I have a UTI, but at least the bladder isn't jumping around! (Of course, at this point, I'm not sure I'd mind if it just jumped right on out and left me alone!)

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  • journalibra
    replied
    Ya know, L. Thomas... the same thing has been happening to me. My bladder has been jumping around for years. I never knew what it was but it never hurt so I never told a doctor. I've been diagnosed with IC for 5 months and I still hadn't thought that symptom was important enough to let my doctor know. The spasms, for me, are usually not painful. I think I've only experienced painful ones every once in a while. I will definitally let my doctor know about my jumping bladder.

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  • geel
    replied
    I don't have anything concrete to offer here except to say my bladder as "jumped" too,three times that I can recall since January. The first time freaked me out (before diagnosis). I assume they were spasms. The jumping wasn't painful,a bit strange though because I hadn't had that feeling since my last pregnancy. Haven't felt it in awhile but I do have times when I lay down and I feel my baldder, it seems heavy. IC is a curious thing isn't it?!!? Your not alone on this one.
    Ellen

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  • L. Thomas
    replied
    You know I've been thinking about the "jumping bladder". I remember when I was in college sometimes when I would lie down my tummy would wiggle around and looked something like a baby moving around.

    It was in the area where the baldder is located. How odd, I wonder if that was an "early" symptom of IC?

    No one else had a tummy that did the belly dance on its own.

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  • Moonheart
    replied
    Before I had my hysterectomy I would feel little flutters. I was always thinking I was pregnant, getting my hopes up, and then big let down. After my hyst, I figured the flutters would stop because the uterus was gone. I didn't realize till recently that it was my bladder all the time. hth

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  • kadi
    replied
    Ditropan definitely helps me with bladder spasms. They're worst at bedtime, can feel like a butterfly beating its wings in my bladder. But, taking the Ditropan & Elavil together at night does control it most of the time.

    Leave a comment:


  • Katrina
    replied
    Well even if your doctor thinks it is something you have to deal with spasms are treatable! Sometimes PFD treatments helps....there are both natural and presciption antispasmodics, Chamomile has some antispasmodic properties and is often something people like the taste of so if that is what your doctor says, he is likely wrong!

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  • izazen
    replied
    Sometimes it feels good just to sit and rest your hand on your bladder.
    Mine often feels like its slightly trembling - also with no pain. The calming hand on it as little as 5 minute seems to relax it and will bring my anxiety level down to 3 or 4 from 8 (I have a gadget that measures it.)

    Leave a comment:


  • stacey79
    replied
    Good points. I just don't want to call and have it be something to deal with. I know, stupid reason. Oh, though, I did run out of Ditropan and have been taking Enablex instead for the last week and a half while I'm waiting for my Ditropan to arrive. That may be it. I've found before that Ditropan is the only one of those meds that helps me. I still will call tomorrow to double-check my theory, though. Probably not a bad idea.

    Leave a comment:


  • L. Thomas
    replied
    My urogyne wants me to call when anything new crops up even if it isn't painful. I end up starting the conversation, " I feel silly calling about this. It isn't causing me pain but I thought you might need to know that ....." They always say thanks for calling and we will tell him and get back to you. AND they do.,,sometimes he calls sometimes his nurses call.

    I think it is good to error on the safe side. What is the worst that is going to happen..they will laugh. I would never expect them to say "bug-off" or I would "bug-off".

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  • Katrina
    replied
    All new symptoms should be reported to your doctor!

    That said I do think that what your having is a spasm....they can vary a lot..some as mild that you don't really feel them other than a feeling of having to urinate...or it can be very painful...and most somewhere in the middle.

    have you done anything recently that would be extra work on your pelvis muscles? Excercise? straining when BM or urinating? holding it a lot?

    Leave a comment:


  • stacey79
    started a topic Jumping bladder

    Jumping bladder

    I'm a long-time ICer and am having a new symptom today. Basically, my bladder feels like it's jumping around. Sounds a bit wierd, I know. It's like a spasm, but it doesn't really hurt. It's been doing it off and on all day. I am in a bit of a flare from a day trip over the weekend.

    I'm wondering if I need to worry about calling my uro since the jumping sensation doesn't really hurt. Or I'm wondering if it will pass. I'm thinking if it lasts for a few days, I probably will call. Just odd to have a new symptom - especially since I've had my IC symptoms under control for over a year now.
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