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I noticed when I'm relaxed at home at night, watching tv, reading, etc. I don't go so much - maybe twice from 6 PM to midnight but during the day when I'm more active and anxious I go more often like every 2 to 3 hours. Of course I drink a little more water during the day than in the evening when I slow down my intake.
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HI! I've always noticed that I go less during the evening than during the day. I've attributed it to a few things....1) I drink more during the day than at night 2) when I'm relaxing in the evening....I'm not walking and moving so much so I go less 3) I seem to go less when I'm sitting. IC is SO crazy! Roxie
Double Spinal Cord Stimulator surgery 8/09
Unsuccessful MiniArc sling surgery 12/07
Dx'd Hypothyroid
Dx'd Chronic Axonal Neuropathy & Myopathy
June 2007
Dx'd IC May 2006 (after suffering for 25+ yrs!)
First Cysto 1979
First Hydro 1981 (Many treatments since then!)
Collagin"Durasphere" injections for urethra
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Dx'd: Vaginal Atrophy 2005
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disorder 1989
For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo: -
I definitely go more when I'm up and around than when I'm more relaxed.
D(\__/)
(o.O )
(> < ) This is Bunny. He's on his way to world domination.Comment
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Hmm, my bladder bugs me most when I'm wanting to sleep
Kadi
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I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
Source - Pinterest
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Current treatments:
-IC diet
-Elavil 50mg at night
-Continuous use birth control pills (4-5 periods/year)
-Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
-Pyridium if needed,
-Pain medicine at bedtime daily, as needed during the day several times per week
-Antibiotic when doing an instillation to prevent UTI
-Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
-Dye Free Benadryl 50 mg at bedtime
-"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
-Managing stress= VERY important!
-Fur therapy: Hugging the cat!
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I find I go more whenever I'm not home. If I'm home and know that a clean bathroom is just a few feet away I'm less apt to go frequently. I let myself wait and not go at the first suggestion from my bladder.
On the other hand, if I'm at work or out running errands, I will stop to use any bathroom that I know is relatively clean because I'm not sure where I might find the next one.
Traveling is the worst for me, I constantly think about my bladder while I'm on the road, thereby feeling like I need to go more often. Particularly if I'm driving or riding somewhere new and I have no idea where the rest areas and fast food places are - or how far apart they are.
For me there is very much a psychological aspect to my frequency.Comment
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I think I go more during the day when I'm at work because I am drinking more water trying to keep the burning at bay. When I'm at home I usually drink less. However if I'm flaring badly all bets are off and I may go just as much at home as I do during the day at work.Christine
I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
I have tried every oral medication as well as rescue instills and DMSO.
I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)
Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
Also proud mom to the best Bullmastiff on earth, Claus
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