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  • Joint Pain

    I am having really bad joint pain in my shoulders, elbow, wrists, knees, and ankles. Nothing I do makes that pain go away. Some things help reduce the pain like adding heat or taking pain meds. I was wondering if this is part of IC and if anyone else had this problem.
    Kat

  • #2
    Have you had a blood test recently? If not, I suggest you ask your doctor about testing you for nutritional deficiencies, such as potassium and calcium.

    Donna
    Stay safe


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    • #3
      Yep me too and the doctor can't figure out what is going on. Is it part of IC, I don't think so, but I think because we do have IC it makes it worse on us.
      Hope your feeling better soon.

      Sending hugs, Trishann

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      • #4
        Is it on both shoulders, both knees etc? Does it feel worse when you first wake up in the morning? Do you feel like the Tin Man? If so, it could be Rheumatoid Arthritis. That's what I had when I had viral arthritis... good thing it only lasted 6 - 8 months... but it was miserable while I had it.

        They do have medications that can help. Definately talk to your Doctor!
        ~Diane
        dx: Spastic Bladder, chronic hematuria (that went away?), kidney stone... possible IC

        Medical History:
        c-sections: 1988, 1991, 1997
        Viral Arthritis 1998 (Like RA, but went away!! )
        Pterygium & Dry Eyes since 2005
        Hysterectomy (Fibroids) 2006

        ~~~~~~~~~~~~~~~~~~~~~~~~~

        Me & Jerry ~ Sammy & Ryan
        ~~~~~~~~~~~~~~~~~~~~~~~~~

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        • #5
          No, Its only in my left shoulder. Both my elbows but more in the left than right. My knees and ankles aren't as bad. And its not really at any certain time. It just hurts. And it just started about three days ago. It used to come on and off and bother me a little here and there. This is the first time it had lasted so long.

          Thank you all for you advice. I will ask my doctor the next time I see him!
          Kat

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          • #6
            Arthritis

            Diane...........
            Thanks for posting that info. I have been struggling with both my shoulders and elbows. I am suppose to go see a ortho next Thursday, but I am scared. Wish me good luck and Trishann I hope you get better.
            Blessings,
            Ruth

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            • #7
              This past Monday I started to notice my fingers were getting stiff. By Tuesday I was in severe pain despite Advil or Tylenol. I went to the doctor and he couldn't figure it out since it came on quickly, so he ordered bloodwork. Wednesday I was in tears, called him and he prescribed Prednisone. By Wednesday night I was 100% better. Still a little pain in my knuckles, but much better. I'm still waiting on my blood results.
              Looks like I'm an IC'er too

              Currently taking:

              Urised 1 tablet 4 x a day..My 3yo loves the fact that my pee is now blue

              Lexapro 10mg

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              • #8
                Are they achey? Like the way you feel when you get the flu? All I can say is that I have Fibromyalgia and I have problems with all of those places. Do you have back pain, too? How about your hips? Do you have problems with fatigue? Keep us posted with how you're doing, okay?
                **I could have my long list of current medications and diagnoses and the other medications that I've tried, but I'm going to focus on something more: words that inspire and motivate me to keep my head up and keep fighting.**

                "A bird doesn't sing because it has an answer, it sings because it has a song."
                "The honorary duty of a human being is to love."
                "The main thing in one's own private world is to try to laugh as much as you cry."
                "If you find it in your heart to care for somebody else, you will have succeeded. "
                "If you don't like something, change it. If you can't change it, change your attitude. Don't complain. "
                "The most called-upon prerequisite of a friend is an accessible ear. "

                These are all the wise words of my hero: Maya Angelou

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                • #9
                  what about Fibromyalgia?
                  'The will of God will never take you where the Grace of God will not protect you.'

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                  • #10
                    Hurting

                    Yes Andrea1 that is exactly how they are. I am tired of it. Does anyone take Celebrex.
                    Blessings,
                    Ruth

                    Comment


                    • #11
                      I'm not going to say you have Fibromyalgia, but your symptoms are very similar to mine and that's what I have. No back pain, though? That's kind of odd, I think.
                      **I could have my long list of current medications and diagnoses and the other medications that I've tried, but I'm going to focus on something more: words that inspire and motivate me to keep my head up and keep fighting.**

                      "A bird doesn't sing because it has an answer, it sings because it has a song."
                      "The honorary duty of a human being is to love."
                      "The main thing in one's own private world is to try to laugh as much as you cry."
                      "If you find it in your heart to care for somebody else, you will have succeeded. "
                      "If you don't like something, change it. If you can't change it, change your attitude. Don't complain. "
                      "The most called-upon prerequisite of a friend is an accessible ear. "

                      These are all the wise words of my hero: Maya Angelou

                      Comment


                      • #12
                        Pain

                        Andrea1............ what do you take or how do you handle it. Are there any blood work I cant get done.
                        Blessings,
                        Ruth

                        Comment


                        • #13
                          If you're asking if there's a blood test to diagnose Fibro, the answer is "no." Fibromyalgia is diagnosed by basically ruling out everything else. I had to rule out Myositis (muscular dystrophy), Rheumatoid Arthritis, structural problems, psychologial problems, Anemia, vitamin deficiencies and tons of other conditions that can be tested for in order to come to the Fibro diagnosis. It was a long and frustrating process. Ultimately, I did the research myself and sought out a dr. that works with Fibro and saw him. He confirmed my self-diagnosis at our first appt.

                          How is your sleep? With Fibro, we tend not to fall into a deep sleep, which causes further fatigue and increased soreness. I know that for a long time, I used to wake up several times during the night, not because I had to pee, but just because.

                          Treatment for Fibro is based on treating the symptoms. As of now, there is no cure, but it is definitely manageable. One way that I have kept my symptoms at bay, for the most part, is to reduce as much stress as possible and stay active. I play tennis for UC Davis, so I'm pretty active and, with the help of a great physical therapist, a fantastic doctor and a large list of medications, I made it through my first full season. If you do, in fact, have Fibro, you'll be able to manage, despite the lack of a cure.

                          My meds:
                          Cymbalta- for depression and it's supposed to help with pain, but it doesn't
                          Trazodone- to keep me asleep at night
                          Opana- when I need it to reduce my pain- doesn't really work for me, though
                          Elmiron- for my "IC" that I still don't think I have
                          Magnesium supplements- useful for smooth muscle maintenence
                          Prednisone- to help with inflammation during my flare-ups

                          I've also gone through a long list of medications in the past, I had to go through a lot of trial and error to find what worked best for me. If you have any other questions, by all means... ask. I'm around all the time Good luck.
                          **I could have my long list of current medications and diagnoses and the other medications that I've tried, but I'm going to focus on something more: words that inspire and motivate me to keep my head up and keep fighting.**

                          "A bird doesn't sing because it has an answer, it sings because it has a song."
                          "The honorary duty of a human being is to love."
                          "The main thing in one's own private world is to try to laugh as much as you cry."
                          "If you find it in your heart to care for somebody else, you will have succeeded. "
                          "If you don't like something, change it. If you can't change it, change your attitude. Don't complain. "
                          "The most called-upon prerequisite of a friend is an accessible ear. "

                          These are all the wise words of my hero: Maya Angelou

                          Comment


                          • #14
                            If you want some basic information on Fibro, I happen to have a couple of journal articles in front of me as I am writing a research paper on Fibro and the perception of pain (perfect, eh?)

                            "Fibromyalgia syndrome (FMS) is characterized by wide-spread musculoskeletal pain and low pain thresholds at specific sites throughout the body. Additional symptoms may include stiffness, fatigue, depression, impaired memory, sleep and balance disturbance, dry mouth, headaches, and/or sore throats. FMS is further complicated by its apparent random onset and sensitivity to emotional and physical stress, anxiety and depression."

                            They say that 11 of a list of 18 marked tender points must be painful and that it is typicall found in all four quadrants of the body (left and right side, above and below the hips). The pain also needs to have lasted longer than three months.

                            This is all the technical stuff, but my doctor wasn't as concerned with the mechanics as he was with focusing on making the pain better. Fibro changes so much all the time that it may be possible to fit the criterion one day but not the other. Sometimes, I'll have no pain in my neck and shoulders and then a day later, I'll feel like I lifted a bunch of weights the day before. It may help you to create a pain log and rate it every night, writing down exactly which parts of your body were bothering you. I've been doing it for 7 weeks now and it's really helping me to notice patterns within my body.
                            **I could have my long list of current medications and diagnoses and the other medications that I've tried, but I'm going to focus on something more: words that inspire and motivate me to keep my head up and keep fighting.**

                            "A bird doesn't sing because it has an answer, it sings because it has a song."
                            "The honorary duty of a human being is to love."
                            "The main thing in one's own private world is to try to laugh as much as you cry."
                            "If you find it in your heart to care for somebody else, you will have succeeded. "
                            "If you don't like something, change it. If you can't change it, change your attitude. Don't complain. "
                            "The most called-upon prerequisite of a friend is an accessible ear. "

                            These are all the wise words of my hero: Maya Angelou

                            Comment


                            • #15
                              pain

                              wow.................. I think (even though) I dont want to think this is what I might have, you have discribed all of my symptoms. It started in 9/2006 and I had 22 treatments of PT and I felt worse, I started Accupuncture and I have done about 7 treatments but it never goes away. The dr is now sending me to a ortho I am scared. I really dont know what to ask my dr to do. I am glad that I have written on these boards, you ladies know more than the dr themselves.

                              Andrea1 my sister in law is a gyno in UC Davis and my brother in law is a anesthisioligist (sp?) Any info you could provide me with would be great.
                              Blessings,
                              Ruth

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