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  • #16
    I don't know what an ortho is going to do for you. I'd see a rheumatologist if you think you have Fibro. The ortho I saw initially told me to go get a pelvic exam to make sure I had nothing wrong with my "lady parts"... I swear to you those were his exact words... Needless to say, I don't have a good impression of orthos...

    What else would you like to know?
    **I could have my long list of current medications and diagnoses and the other medications that I've tried, but I'm going to focus on something more: words that inspire and motivate me to keep my head up and keep fighting.**

    "A bird doesn't sing because it has an answer, it sings because it has a song."
    "The honorary duty of a human being is to love."
    "The main thing in one's own private world is to try to laugh as much as you cry."
    "If you find it in your heart to care for somebody else, you will have succeeded. "
    "If you don't like something, change it. If you can't change it, change your attitude. Don't complain. "
    "The most called-upon prerequisite of a friend is an accessible ear. "

    These are all the wise words of my hero: Maya Angelou

    Comment


    • #17
      It has been my experience that it is okay for you to go into a dr. appointment and tell them what you think you have. You have far more insight into your body than they do, especially if you have never seen them before. When I was shipped from dr. to dr, I kept a detailed medical history... I'll attach it. It printed one out for each doctor I saw to show him/her that I am proactive with my health and that I know what the hell I'm talking about. In case you can't tell, I've had some really horrible experiences with drs, one actually told me... "You don't know what 'horrible pain' is. There are people out there who are dying from cancer- They know what horrible pain is." I kid you not...
      **I could have my long list of current medications and diagnoses and the other medications that I've tried, but I'm going to focus on something more: words that inspire and motivate me to keep my head up and keep fighting.**

      "A bird doesn't sing because it has an answer, it sings because it has a song."
      "The honorary duty of a human being is to love."
      "The main thing in one's own private world is to try to laugh as much as you cry."
      "If you find it in your heart to care for somebody else, you will have succeeded. "
      "If you don't like something, change it. If you can't change it, change your attitude. Don't complain. "
      "The most called-upon prerequisite of a friend is an accessible ear. "

      These are all the wise words of my hero: Maya Angelou

      Comment


      • #18
        The mods can feel free to delete this if it's too long, but this is what my medical history looked like... many things have changed since this was last updated, but it was really helpful for me...

        Current Symptoms:
        • Bilateral hip pain (since 10/05)
        o Constant, burning pain
        o Right side is worse
        o Exact source of pain cannot be located
        o Variance in level of pain
        • Leg muscles twitch and spasm occasionally
        • Neck and shoulder pain with knots and stiffness
        • Lower back pain
        o Diagnosed w/ Spondylolysis in ’01- previously better w/ rest
        • Hip joints “pop” regularly
        • Occasional knee pain
        • Pain and stiffness in ankles
        • TMJ- jaw locks and pops
        • Chronic fatigue (since mid ’04)
        • Lightheadedness/ Dizziness
        o Exacerbated when lying/sitting  standing or when climbing stairs
        • Fell down stairs twice without noticeable cause (10/05-11/05)
        • Psychological diagnoses- Major Depressive Disorder, Panic Disorder

        Tests:
        • MRI- 10/05- femur- stress reaction in right femur w/ inflammation;
        4/06- pelvis- ovarian cyst (6.0x4.8cm), Skene’s gland cyst (8mm)
        • X-Ray- 1/06- hips- normal;
        4/06- pelvis- uneven pubic symphysis
        • Ultrasound- 1/06- pelvic- normal;
        1/06- aortic- normal;
        1/06- abdominal- slight hydronephrosis in right kidney
        • CT Scan w/ Contrast- 2/06- renal function- normal
        • Blood- ’05-’06- slight anemia (11/05); all other tests- normal
        • EMG & NCV- 3/06- thigh, hip, lower back- normal
        • Bone Scan- 3/06- slight scoliosis, all other results- normal

        Treatment:
        • Crutches- 2.5 months- pain increased
        • Physical therapy- 4.5 months- pain increased
        • Aquatic therapy- pain increased
        • Heat/Ice- no response to pain
        • Light exercise:
        o Light jogging (10 minutes)- tolerance varied
        o Swimming (15 minutes)- tolerance varied
        o Elliptical (10 minutes)- tolerance varied
        o Walking (30 minutes)- tolerance varied
        • Trigger Point Acupuncture- no response to pain
        • Hypnotherapy- pain decrease while in hypnotic state
        • Medications:
        o Tylenol (OTC), Aleve (OTC), Ibuprofen (Rx), Celebrex (Rx)- no response to pain
        o Effexor XR- 225 mg- no response to pain
        o Medrol- 4mg- 6 day cycle- no response to pain
        o Relafen- 750mg, 3x/day- no response to pain
        o Flexeril- 10mg at night- no response to pain
        o Neurontin- 100mg, 3x/day- no response to pain- developed allergic reaction
        o Vicodin- 5/500, q 4-6 hrs- no response to pain
        o Klonopin- .5mg, 3x/day- severe dizziness, hallucinations, no response to pain
        o Tramadol- 50mg, q 4 hrs- no response to pain
        o Vicodin ES- 7.5/750, 3x/day- minor relief
        o Cymbalta- 20mg, 2x/day; 60mg, 2x/day; 60mg, 1x/day
        o Norco- 10/325, 2x with activity- pain decrease
        o Valium- 5mg, prn for withdrawal
        o Lodine- 500mg- no response to pain
        o Lunesta- 4mg, prn for insomnia
        o Baclofen- 10mg, prn for muscle spasms

        Current Medications:
        • Ativan- .5mg, prn- since 7/05
        • Cymbalta- 60mg, 1x/day- since 5/06
        • Norco- 10/325, 2x with activity- since 7/06
        • Valium- 5mg, prn for withdrawal- since 9/06
        • Lodine- 500mg- no response to pain- since 9/06
        • Lunesta- 4mg, prn for insomnia- since 9/06
        • Baclofen- 30mg, prn for muscle spasms- since 9/06
        **I could have my long list of current medications and diagnoses and the other medications that I've tried, but I'm going to focus on something more: words that inspire and motivate me to keep my head up and keep fighting.**

        "A bird doesn't sing because it has an answer, it sings because it has a song."
        "The honorary duty of a human being is to love."
        "The main thing in one's own private world is to try to laugh as much as you cry."
        "If you find it in your heart to care for somebody else, you will have succeeded. "
        "If you don't like something, change it. If you can't change it, change your attitude. Don't complain. "
        "The most called-upon prerequisite of a friend is an accessible ear. "

        These are all the wise words of my hero: Maya Angelou

        Comment


        • #19
          I had bursitis in my hips, too. I had cortisone shots and the pain went away.
          **I could have my long list of current medications and diagnoses and the other medications that I've tried, but I'm going to focus on something more: words that inspire and motivate me to keep my head up and keep fighting.**

          "A bird doesn't sing because it has an answer, it sings because it has a song."
          "The honorary duty of a human being is to love."
          "The main thing in one's own private world is to try to laugh as much as you cry."
          "If you find it in your heart to care for somebody else, you will have succeeded. "
          "If you don't like something, change it. If you can't change it, change your attitude. Don't complain. "
          "The most called-upon prerequisite of a friend is an accessible ear. "

          These are all the wise words of my hero: Maya Angelou

          Comment

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