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  • Strange Bubbling Feeling?

    I don't know how else to describe it. It feels like there are little tiny wet bubbles coming out of my urethra. (I know, gross.) But it doesn't feel like I am peeing or anything. Has anyone else ever felt like this? Sometimes if there are a lot they can get super painful until they finally go away or I wiggle my legs/pelvis around (looking rediculous mind you) and try and get them to come out.

    Sorry I don't have a better definition, hopefully this makes sense.

    Kitty!

    Just diagnosed w/PFD - Oh Boy!

    What I have tried: Elmiron, Lyrica, ,Methadone, Vicodin, Norco, Cystoprotek, imipramine, xanax, hydroxizine, trazadone, a bunch of anti-spasmotics and more I'm sure I can't remember.

    What I'm presently on:
    Noritriptyline 25 mg
    OxyContin 20 mg AM - 10 mg afternoon - 20 mg PM
    Zanaflex 2 mg at bedtime
    Percocet PRN for breakthrough
    Zyrtec
    Nasonex (allergies)
    Jolessa (b.c.)
    Physical Therapy 2x weekly

    Be my buddy?

    http://www.facebook.com/home.php?#/p...88&ref=profile

  • #2
    I have had this sensation a few times... it is not a regular occurence, but I know what it is like. I am not sure what it is.

    I did have really bad bubbles in my urine when I was having instills at the doc's office... it seemed the nurse was not tapping the bubbles out of the syringe used to insert the medication, so the air went into my bladder. Then when I peed the solution out, it felt like I was farting out my urethra!! How icky!!!

    (Now when I do instills myself at home, I don't use the syringe plunger -- I allow the solution to drain into my bladder using gravity. This eliminates the problem. )

    But if you aren't doing instills, and this sensation happens often and you find it painful... go to the doctor. Sometimes if that is severe it can indicate a fistula (or hole) between the urethra and vagina, etc. It probably isn't that, but you should be checked just to be sure.

    Good luck
    ****
    Jen

    *Diagnosed with severe IC in 2004
    *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
    *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
    *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

    **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Comment


    • #3
      HI!
      I've had that bubbling too. I think it's a little incontinence, just a drip coming out and if my urethra is tender then it will burn when it does that. It's a very uncomfortable feeling. Since using the MSM gel I don't get the burning when this happens....thank goodness! Roxie

      Double Spinal Cord Stimulator surgery 8/09
      Unsuccessful MiniArc sling surgery 12/07
      Dx'd Hypothyroid
      Dx'd Chronic Axonal Neuropathy & Myopathy
      June 2007
      Dx'd IC May 2006 (after suffering for 25+ yrs!)
      First Cysto 1979
      First Hydro 1981 (Many treatments since then!)
      Collagin"Durasphere" injections for urethra
      Gall bladder surgery Aug. 2004
      Gastric Bypass Dec. 2004
      Dx'd: Barrett's Esphogus July 2004
      Dx'd: Vaginal Atrophy 2005
      Bladder surgery 2000
      Dx'd: IBS 2000
      Hysterectomy (fibroids) 1999
      Laminectomy 1989
      Dx'd: Degerative Disk Disorder 1989

      For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
      I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

      Comment


      • #4
        I just went to my urogyno for this problem yesterday. They scheduled at CT scan looking for the fistula someone mentioned. I really don't think that's my problem, but I'll let you know what happens.

        I have never done any instills (unless the potassium sensitivity test counts, but I would never do that voluntarily again-- OUCH), so I know that's not the source of bubbles. To me, it seems as though there must be some sort of gas-producing organism in my urethra, or in my bladder, that makes the bubbles.

        My urethra hurts, all the time. I am on several medications to control the pain. I suppose it's possible one of the meds is affecting things, but I've been on them all for a while now. Are you taking Lyrica, Vesicare, or Ultram?

        Also, I have had IC ever since a terrible UTI that happened right after I got out of the hospital having my last baby (who is now 9 months old) via c-section. Any similarities there?

        I keep hoping more people will respond with something that makes all of this make some sense. My doctor seemed to think this was strange and unheard of, the bubbles. I'm going to print out whatever people write on this thread and bring it to him. I am so so so so tired of "specialists" treating me like I'm crazy. I KNOW when a bubble comes out of my urethra. It is NOT normal.

        Enough ranting...that rarely helps. Thanks for your post. I hope you find something out that will help everyone in this situation. For now, I'm going to order some MSM gel and see if that helps me.

        Comment


        • #5
          I have this quiet often feels kind of like something fluttering around down there...Its a very strange and annoying feeling..My brother-in law has bladder problems and he has mentioned the same symptom..Hope the doctor helps you find out what it is.. mine comes and goes
          Hugs
          Ronda

          ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


          Link to Patient Handbook:
          http://www.ic-network.com/handbook/

          Diet Reference Sheet:
          http://www.ic-network.com/diet/icndi...tsheet0909.pdf

          Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

          Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

          Meds I have Tried:
          Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
          Lexapro< Bad reaction to this med!
          Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

          Dx With IC in Nov 2006 with Hydro/Cysto
          Hydro/Cysto Caused Bladder to Rupture.

          Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



          ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

          Comment


          • #6
            i have a feeling like that,the way i have always describes it is it feels like i am 3 months pregnant,and i am feeling those first kicks,and since i had my tubes tied i know its not that.is that how it feels to you ladies?one more nuisance with this disease

            Comment


            • #7
              Sorry, didn't mean to abandon this thread - was out of town.

              So....I haven't tried MSM, mostly just because it comes and goes, although I notice it A LOT more at night. And no necessarily after sex (it's usually the reason we don't have it, lol.) I've never been pregnant, and I don't think it's a fistula because my old uro mentioned that and I was hoping he would look for one when he did my cystoscopy...but he probably didn't so who knows.

              About Lyrica...I've stopped taking it mostly because I noticed no difference with regard to my pain...the bubbling sensation remained.

              It comes and it goes and sometimes it's much worse than others...which is what I don't get. It's like someone lined up tiny little water balloons up and down my urethra and they're taking their sweet time to try and pop. Something like that anyway.

              Good luck everyone, hopefully one of us will figure out what on earth it is.

              Oh! Last thing...I've also noticed that my Vicodin is starting to no longer work against these bubbles!! It still works for that shattered glass in my bladder pain and most of the abdominal pressure...but not for the stupid gas bubble things. Weird.

              Kitty!

              Just diagnosed w/PFD - Oh Boy!

              What I have tried: Elmiron, Lyrica, ,Methadone, Vicodin, Norco, Cystoprotek, imipramine, xanax, hydroxizine, trazadone, a bunch of anti-spasmotics and more I'm sure I can't remember.

              What I'm presently on:
              Noritriptyline 25 mg
              OxyContin 20 mg AM - 10 mg afternoon - 20 mg PM
              Zanaflex 2 mg at bedtime
              Percocet PRN for breakthrough
              Zyrtec
              Nasonex (allergies)
              Jolessa (b.c.)
              Physical Therapy 2x weekly

              Be my buddy?

              http://www.facebook.com/home.php?#/p...88&ref=profile

              Comment


              • #8
                Thanks for the info. Your description (the tiny wter balloons) is right on the money for me, and for me also it is sometimes much worse than others. My CT scan is Monday, and I'm also supposed to have a laparoscopy done after that to see if I have endometriosis, since my other IC symptoms seem to worsen as my period approaches. I wonder whether there aren't some adhesions of some sort directly around my urethra? I swear, sometimes I think the worst part of this disease is all the wondering. I think I could accept the pain a lot better if I just understood what was causing it all.

                Comment

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