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A Poem About My Ic Friends

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  • #1

    A Poem About My Ic Friends

    MY IC FRIENDS

    IC FRIENDS ARE PEOPLE WHO UNDERSTAND HOW WE FEEL.
    IC FRIENDS ARE PEOPLE WHO HELP US EVERYDAY LEARN TO COPE AND DEAL.

    IC FRIENDS ARE THERE WHEN OUR WORLD SEEMS SO LOST.
    IC FRIENDS ARE THERE NO MATTER WHAT THE COST.

    IC FRIENDS DONT CARE WHEN WE RANT, RAVE, AND SCREAM.
    IC FRIENDS UNDERSTAND BECAUSE THEY ARE PLAYING ON THE SAME TEAM.

    IC FRIENDS SHOW COMPASSION WHEN ALL WE CAN DO IS CRY.
    IC FRIENDS BELIEVE IN US WHEN ALL OTHERS THINK ALL THIS PAIN IS A LIE.

    IC FRIENDS STAND TOGETHER AND WILL NOT EVER GIVE IN.
    IC FRIENDS STAND STRONG AND WILL NOT EVER LET IC WIN!!!


    HUGS TO ALL YOU!!
    MY IC FRIENDS
    RONDA
    leelee88
    leelee88
    Support Volunteer
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    Last edited by leelee88; 05-11-2007, 08:05 AM.
    Hugs
    Ronda

    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


    Link to Patient Handbook:
    http://www.ic-network.com/handbook/

    Diet Reference Sheet:
    http://www.ic-network.com/diet/icndi...tsheet0909.pdf

    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

    Meds I have Tried:
    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
    Lexapro< Bad reaction to this med!
    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

    Dx With IC in Nov 2006 with Hydro/Cysto
    Hydro/Cysto Caused Bladder to Rupture.

    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    Tags: None
  • #2
    Ronda that was great. thanks so much for sharing your poem
    'The will of God will never take you where the Grace of God will not protect you.'

    Comment

    • #3
      Aww that is so sweet. Everyone here as been awsome to me and I have recently found this site.
      Mia Sowell
      Fort Worth, TX
      2 Kids
      Ethan (3)
      April (17)
      Husband Eric (Very Supportive)
      Clinically Dxed 04-16-07
      Symptoms Since 2004

      Meds:
      Elmoron 400mg 2x Day
      Atarax 50mg 1x Day
      Xanex .50mg 8 hrs As needed
      Vicodin 5/500mg 4-6 hrs As needed
      Xanaflex 4mg 1x Day
      Urelief Plus 6 hrs as needed for Bladder spasms
      Prelief as directed

      Comment

      • #4
        That's sweet. Thanx for sharing.
        TexasHoney

        Let's keep praying for a cure.
        IC Symptoms began in early 2001
        Divorced : Sept 2002 (Partly due to IC)
        Diagnosed with IC in April 2004
        Most recent injury - Rupurtured Left Achilles Tendon
        Wed Jan 28 2009         (Ice Storm Accident)
        2nd Achilles Tendon Surgery - May 28, 2009 after re-injury on May 17
        Other Injuries
        Broken Left Ankle - July 2004 ( fell off ladder)
        Broken Left Ankle (Again) - May 2005 (car accident)
        Sprained Left Ankle - November 2006 ( fell off my aunts porch on Thanksgiving Day)

        CURRENT MEDS
        Elmiron, Pyridium

        Comment

        • #5
          You all are welcome.. I really do think the world of all of you.. It feels so good to be able to come to a place where people understand what we are going through..

          Ronda
          Hugs
          Ronda

          ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


          Link to Patient Handbook:
          http://www.ic-network.com/handbook/

          Diet Reference Sheet:
          http://www.ic-network.com/diet/icndi...tsheet0909.pdf

          Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

          Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

          Meds I have Tried:
          Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
          Lexapro< Bad reaction to this med!
          Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

          Dx With IC in Nov 2006 with Hydro/Cysto
          Hydro/Cysto Caused Bladder to Rupture.

          Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


          ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

          Comment

          • #6
            Ronda, I love the poem!
            Christine



            I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
            1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
            2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
            I have tried every oral medication as well as rescue instills and DMSO.

            I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

            Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
            Also proud mom to the best Bullmastiff on earth, Claus

            Comment

            • #7
              Wonderful poem! Thanks for sharing it!
              [SIZE="1"][B]Be well, Alyssa :hi:[/B]

              [

              Comment

              • #8
                Thanks for sharing with us. Truer words haven't been spoken.

                Comment

                • #9
                  Thanks all.. Poetry is my escape sometimes.. I use to write alot..And alot of times its the way I would express my feelings..
                  Hugs
                  Ronda

                  ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


                  Link to Patient Handbook:
                  http://www.ic-network.com/handbook/

                  Diet Reference Sheet:
                  http://www.ic-network.com/diet/icndi...tsheet0909.pdf

                  Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

                  Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

                  Meds I have Tried:
                  Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
                  Lexapro< Bad reaction to this med!
                  Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

                  Dx With IC in Nov 2006 with Hydro/Cysto
                  Hydro/Cysto Caused Bladder to Rupture.

                  Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


                  ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                  Comment

                  • #10
                    That's sweet, Leelee. Very nice poem. I'm glad you have an outlet in writing; you've had so much to cope with.
                    Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
                    Wishing you happiness and good health, and all the best out of life.

                    Peace, Carolyn
                    ___________________________________________________

                    Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


                    On the Beach with IC

                    Comment

                    • #11
                      Thank you for sharing your beautiful poem.

                      Donna
                      Stay safe


                      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                      Have you checked the ICN Shop?
                      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                      Patient Help: http://www.ic-network.com/patientlinks.html

                      Sub-types https://www.ic-network.com/five-pote...markably-well/

                      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.                       [3MG]

                      Anyone who says something is foolproof hasn't met a determined fool

                      Comment

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