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Recently Diagnosed & Need Suggestions

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  • Recently Diagnosed & Need Suggestions

    I was diagnosed with IC in January after being in pain for 8 years and having many negative UTI cultures. My GYN referred me to an UroGYN who performed a cystoscopy and distention of bladder. These tests confirmed the diagnosis and he prescribed Elmiron, Urocit-K, Elavil and Prelif. I am glad to finally having a diagnosis, but is still a little frustrated. I love water, but drinking it all the time is boring! Also, I thought I will lose weight by following the IC diet, (I do cheat once in a while), but I am gaining weight because I believe the Elavil is increasing my appetite. I still have flares eventhough I am
    trying so hard to do the right thing! I had to reduce my work hours because it is exhausting running back and forth to the bathroom all day as if you have diarrhea. Also, when I do sit for more than 30 mins I have to get up SLOWLY because I have pain and/or spasms in my lower abdomen. I am thankful that my UroGYN is sending me to a female Physical Therapist who specializes in Pelvic Floor Dysfunction. Hopefully, she will help me strengthen my pelvic muscles. I need to see the light at the end of the tunnel.

  • #2
    I am on 25 mg of Elavil. I will try chamomile and mint tea. Thank you!


    • #3
      Hi mst
      I did experience appetite increases at 20mg of Elavil, you are not alone.
      I've found that if I increase my vegetables & eat whole grains it controls it a little better. I also try to have sweets only after dinner because if I start eating them during the day, I want them all day long.
      For beverages other than water:
      1. Blueberry juice (I dilute it & take a calcium citrate with it because it's high in oxalates)
      2. Pear juice (I get Looza brand or Hero brand from a health food or specialty grocery store)
      3. Peppermint tea (nothing in it except peppermint)
      4. Rooibos tea (I got one with vanilla & cream in it, delicious! I make it weak & dilute with milk & sugar)
      5. Cinnamon tea (Mexican tea - just cinnamon sticks boiled)
      6. Low acid decaf coffee made in the Toddy Maker (reduces acid even further)-Puroast house blend decaf low acid coffee, toddy maker & toddy maker filters all available in the ICN store linked at the top of the page. I also dilute this coffee with ice, milk & sugar.
      7. Pear juice mixed with carrot juice

      Welcome to the ICN! It does get easier over time, hang in there....

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

      New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
      Source - Pinterest

      Current treatments:
      -IC diet
      -Elavil 50mg at night
      -Continuous use birth control pills (4-5 periods/year)
      -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
      -Pyridium if needed,
      -Pain medicine at bedtime daily, as needed during the day several times per week
      -Antibiotic when doing an instillation to prevent UTI
      -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
      -Dye Free Benadryl 50 mg at bedtime
      -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
      -Managing stress= VERY important!
      -Fur therapy: Hugging the cat!