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  • No Pain Or Presure Before Urinating

    I WAS READING THAT ONE OF THE COMMON SYMPTOMS OF IC IS PRESSURE OR PAIN THAT IS RELIEVED AFTER URINATING. I DON'T HAVE THIS, I HAVE MORE FREQUENCY AT NIGHT AND SOME BURNING. Occasionally I have pressure, but it seems like gas that won't come out(sorry to be graphic). It seems to feel worse with IC.
    Do most people have the pressure or pain when having to empty the bladder?
    Gwen

  • #2
    I have the urge to go alot but when I empty my bladder is actually when it hurts. It's like it spasms from me emptying it and then it can be really painful for a couple of minutes after I go.
    Christine



    I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
    1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
    2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
    I have tried every oral medication as well as rescue instills and DMSO.

    I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

    Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
    Also proud mom to the best Bullmastiff on earth, Claus

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    • #3
      Did that come after you had Ic for a while or have you felt that way all along? I don't have anything but burning!
      Gwen

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      • #4
        Gwen,
        Have you been Diagnosed with IC? I'm still confused about if I have it or not. I would have a mild case if I had it. I feel like I've been in the BR all day! It's 3:37 here, and I've gone about 7 to 8 times... I know that's nothing compared with many of you, but it's annoying. No pain today, so that's good. I get pain after voiding sometimes, but it hasn't happened in a while... :-). I don't have burning :-). It seems like everyone's symptoms are so different. IC is a strange disease.
        ~Diane
        dx: Spastic Bladder, chronic hematuria (that went away?), kidney stone... possible IC

        Medical History:
        c-sections: 1988, 1991, 1997
        Viral Arthritis 1998 (Like RA, but went away!! )
        Pterygium & Dry Eyes since 2005
        Hysterectomy (Fibroids) 2006

        ~~~~~~~~~~~~~~~~~~~~~~~~~

        Me & Jerry ~ Sammy & Ryan
        ~~~~~~~~~~~~~~~~~~~~~~~~~

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        • #5
          Diane, my Doctor Thinks I have it and we are trying elmiron and it seems to help. I have not has any of the tests done. I have had the symptoms since November and no UTI"s were found. I still fell symptoms or flares, But definitely better on Elmiron.
          Gwen

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          • #6
            Hi,

            I have no pain/pressure either and I sting for a long time after I go. I feel like my urethra is swollen by the urine.

            In the morning I can feel fine until I go, then the daily burning starts.

            I recently had a cysto-hydro and I have the pinpoint bleeding and scars most IC patients get. I am lucky not to have the frequency, but the pain is no fun either.

            Hope this helps.



            Originally posted by GWENDOLYN View Post
            I WAS READING THAT ONE OF THE COMMON SYMPTOMS OF IC IS PRESSURE OR PAIN THAT IS RELIEVED AFTER URINATING. I DON'T HAVE THIS, I HAVE MORE FREQUENCY AT NIGHT AND SOME BURNING. Occasionally I have pressure, but it seems like gas that won't come out(sorry to be graphic). It seems to feel worse with IC.
            Do most people have the pressure or pain when having to empty the bladder?
            Gwen

            Comment


            • #7
              For me, I'm like griffsmom or ic bob. I don't have the insane frequency, but I have burning quite a bit and my bladder area is really tender. I get most of my pain just AFTER I pee. I'm actually more cofortable when my bladder is a bit full. My uro said my bladder is likely spasming.
              mom_in_ma

              Comment


              • #8
                I don't have too much frequency, but I did in the beginning during the night.
                Now I don't have frequency as bad, but at night if I wake up, I always feel I have to go and I feel A little burning (but not too bad). I am always worse at night. During the day I drink plenty of water and I think that helps with the burning. Usually I don't have to go too often during the day, Although I probably go more than the average person.(I've always been that way anyway!).

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                • #9
                  Gwen my pain aftering urinating only started w/ the IC. Lately when I pee in the middle of the night or in the morning my bladder spasms like crazy and then I'm in tons of pain. Can't win, have to pee really bad and that is uncomfortable but then if I go then that really makes it hurt worse.
                  Christine



                  I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
                  1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
                  2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
                  I have tried every oral medication as well as rescue instills and DMSO.

                  I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

                  Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
                  Also proud mom to the best Bullmastiff on earth, Claus

                  Comment


                  • #10
                    mmhm

                    I don't have the frequency, I mean I go maybe 10 times a day, which is pretty much nothing compared to other stories I've heard. The thing that I have the most is the burning during and after urinating. Afterwards it'll burn, taper off, and then it'll kind of spasm, and I'll have to go again sometimes.

                    But the pain used to be so bad that I wouldn't pee without my mom, my dad, or boyfriend holding my hand. I realized that it's something I have to live with and I can't have someone hold my hand everytime I pee for the rest of my life (even though it would be nice)

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                    • #11
                      vEGACULA, I have some burning but not the spasm. I hope you feel better!
                      Gwen

                      Comment


                      • #12
                        Originally posted by GWENDOLYN View Post
                        vEGACULA, I have some burning but not the spasm. I hope you feel better!
                        Gwen
                        Hi Gwendolyn,
                        You may want to try advil.When I take it it helps me the first day.I need the advil for headaches sometimes.But a warning, the next day your bladder will burn like hell.This may give you a good indication if you have ic or not.
                        Heres something else to try.Try eating fried bananas.Like pollo tropical.If you have ic you will definetely feel your bladder hurting the next day.Bananas contain potassium.Bladders with ic hate potassium.Potassium is used in some cases to diagnose ic.Its true for me anyway.
                        I stay away from Gatorade too.Gatorade is a acid bomb for my bladder, and is loaded with potassium.
                        Regards,GoldSeals
                        54 year old male
                        Diagnosed with IC in 1994
                        Had symptoms since 1992
                        Three cystoscopies.One biopsy with hydrodistention.
                        This is what I have tried,Dmso cocktail,Elavil,Atarax,Hytrin,Detrol,Pyridium,Elmiron,Allegra,Augmenti n,Flomax,Ditrapan,Vesacare.
                        Sent urine samples about 10 years ago to the famous Dr Fugguzatto.Went through plenty of Dr's which took about 2 years for an IC diagnosis.I am considered having one of the worst IC conditions known to my doctors.
                        Thanks to reading the great info on this board I am presentally trying 3 more natural remedies.Msm,Glucosamine,and Quercetin

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                        • #13
                          I've tried advil and it didn't seem to hurt me and I eat bananas, but I will try eating one at night. OOOH, I am kind of scared, but it would be interesting!
                          Thanks!
                          Gwen

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                          • #14
                            Nope. No pressure or pain here. I just have that constant feeling of needing to urinate. No relief when done urinating.
                            [SIZE="1"][B]Be well, Alyssa :hi:[/B]

                            [

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                            • #15
                              Originally posted by GriffsMommy View Post
                              I have the urge to go alot but when I empty my bladder is actually when it hurts. It's like it spasms from me emptying it and then it can be really painful for a couple of minutes after I go.
                              Same here . Mine is painful after I go. Also have a lot of bloating. My tummy his huge......No rime or reason for it. I have been Diganosed just a few months ago. I am on Elmiron 3 times a day. Lucky to get 2 in for the day . I don't eat any thing . Alot of water. Still have a bloated tummy. Scared to death of sex. A killer during and afterwards. Thanks for me venting a bit.

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