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How long do flares last?

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  • How long do flares last?

    I was wondering what is the average time a flare lasts for everyone. This is my first flare and I've been in and out of pain and frequency for 2 weeks now. I go see a different Urologist tomorrow because my first one kind of brushed me off, telling me I had a fibroid and he'll see me in 6 months. Turns out the gyno didn't find a fibroid and says I have endometriosis but that's it. I'm in pain and frustrated, I've been following the diet religiously but I'm not getting much relief. I'm currently taking prelief, urelle and ultram.

  • #2
    Unfortunately, I had a flare that lasted 4 months straight. Then, it ceased for 1 1/2 months only to start bugging me again. My 3rd urologist said my bladder looks better through the in office cystoscopy he did, but I am still having burning. Yikes.

    6/04 dx Mild IC; 3/06 2nd hydro/cysto w/2nd uro; Moderate IC now. IBS dx 11/03. 6/08 dx Vulva Vestibulitis/Pelvic Floor Spasms. 7/20/15 Feels like I have moderate IC now. Burning again.

    tried & failed treatments: Urocit K 2x/day, Prelief & Atarax 25 mg 3/05-6/06; elavil 10mg 11/30/06-2/28/07 (stopped due to hunger); elmiron orally but had throat tightness;heparin instills 1x/mo 9/04-2/05;elmiron instills every 2 wks 7/05-2/06;20 DMSO 7/28/06-9/07.nortriptyline 10mg 4/07-10/07current meds/treatments:Tofrinal 25mg;Yasmin bc. Heparin instills every 2 weeks 2/08-present. Mix: 8cc lidocaine, 8cc heparin (40,000 units), & 3cc sodium bicarb. main symptoms: frequency & labia/clitorial burning


    • #3
      I think it really varies from person to person and it can vary for a person depending on what is causing the flare. My period can make me flare pretty much the whole time I have it. A food related flare may last a little less time. Stress can bring on nasty flares for me that can last awhile.

      I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
      1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
      2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
      I have tried every oral medication as well as rescue instills and DMSO.

      I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

      Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
      Also proud mom to the best Bullmastiff on earth, Claus


      • #4
        Hi Guys,

        I HATE the word flare!!!

        IC flares are felt differently by each person. Some of mine can last as little as a week or as long as 4 months! One good thing to do is to backtrack to see what may have set off the flare. Most times you can see a pattern:a food, sex, etc....

        Hang in there and remember to check with your uro for meds, instills, whatever - things that can make the flare more bearable.

        Have a nice weekend - Beth

        PS GRIFFS - LOVE the new words to shake your booty !!!!!!!!!!
        IC diagnosis 1999
        Meds: Elmiron
        hydroxyzine hcl
        DMSO as needed
        valium as needed
        librax 3x day

        TENS therapy

        Thanks to all on the boards - YOU have helped more than I can say!

        A person's true wealth is the good he or she does in the world.


        • #5
          I don't know...I actually appreciate the word flare. My IC comes and goes, so I do have flare ups. However, I can NEVER predict how long they will last. Some last a day, others have lasted months and months and months. That is the most frustrating part of this one really knows the answers.


          • #6
            My flares can last anywhere from about 3 days to several weeks. Right now I am in one worst flares ever. I have been flaring about 6 weeks. This one started with a uti. But the infection cleared about 3 weeks ago. Last week I had a cysto/hydro and found out that my hunner's ulcers had come back. I am going them lasered off next Friday.

            Let's keep praying for a cure.
            IC Symptoms began in early 2001
            Divorced : Sept 2002 (Partly due to IC)
            Diagnosed with IC in April 2004
            Most recent injury - Rupurtured Left Achilles Tendon
            Wed Jan 28 2009
            (Ice Storm Accident)
            2nd Achilles Tendon Surgery - May 28, 2009 after re-injury on May 17
            Other Injuries
            Broken Left Ankle - July 2004 ( fell off ladder)
            Broken Left Ankle (Again) - May 2005 (car accident)
            Sprained Left Ankle - November 2006 ( fell off my aunts porch on Thanksgiving Day)

            CURRENT MEDS
            Elmiron, Pyridium