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I just got my period today and I feel a little better today. Yesterday I was a mess! Pain and urgency all day. Today I hardly feel anything. Is this common for everyone? I thought I'd be worse today on my first day of my period.
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I'm much worse with my period. That's just me. I've read that it can go either way but it seems that people do notice a difference during their period weather it's better or worse.Christine
I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
I have tried every oral medication as well as rescue instills and DMSO.
I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)
Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
Also proud mom to the best Bullmastiff on earth, Claus
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I sometimes have problems right before my period. If not before then my first day of the period. The pain is so bad i just lay with a heating pad. you should try a heating pad next time and see if it helps you.Comment
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My first year with IC and vulvodynia, the week before my period was pure torture. That doesn't happen much or nearly as bad now, and once I get my period, my symptoms have always calmed down by the end of the first day, and then I get my best relief during my period and for a few days afterwards.
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That was one of my 1st IC symptoms...3/4 days before my pd I'd feel like a had a raging UTI. Then it would calm slightly with my pd. After a couple years I still did the 3/4 days before--but then I started caring that pain into my pd along with horrible cramps. I went on birth control for about 1 1/2 yrs and that helped. Took care of the problem Apr 3...had a hysterectomy
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I am really bad during my period, The first 2-3 days I am ok, then bam, I have so much pain, I have to take vicodin. The pain also continues when my period is over with for about a week to 10 days.
I am glad I am not alone.
SueDx with IC April 30 2007
Dx with Endo Sept 2007
Supra Cervical Hysterectomy April 9 2009Comment
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me too
I always seem to have severe frequency/urgency right before my period and during the first two or three days. I find that drinking more water and decreasing my physical activity helps a great deal - not to mention my meds.
Hugs,
Beth
IC diagnosis 1999
Meds: Elmiron
hydroxyzine hcl
DMSO as needed
valium as needed
librax 3x day
TENS therapy
Thanks to all on the boards - YOU have helped more than I can say!
A person's true wealth is the good he or she does in the world.Comment
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