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What is your definition of pain free?

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  • leelee88
    replied
    Thanks again to all your replys.. I find it very interesting how we all cope with our pain..And consider what pain free means to us..

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  • megancolleen
    replied
    I haven't been pain-free for a moment in the past two years. I ALWAYS have some discomfort in my bladder. But often I'd rate my pain at a level 2...if I stop and focus on it, I feel the discomfort, but otherwise, it's very easy to ignore. This is what I now consider to be "in remission." I've sort of given up the idea of ever being pain-free the way I used to be. A manageable level of pain is what I hope for.

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  • Ginny
    replied
    Pain free to me is no pain. Usually if I have a good day I describe it as pressure instead of pain. I still know my bladder is not normal but I can not call it pain.

    Ginny

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  • jiriji
    replied
    For me it's a matter of which pain i focus on. If my sciatica is bad i don't really notice twinges in the bladder. On the other hand, if nothing else is hurting then i will be aware of bladder pain. It's all relative. Fortunately i've only had severe bladder pain on a few occasions - and by "severe" i mean pain that made me cry. But even then it wasn't as bad as childbirth (which in turn wasn't as bad as impacted gallstones). I thank God that the pain isn't any worse because i'm allergic to most analgesic drugs - can't take anything stronger than the paracetamol/acetaminophen and codeine combination.

    I feel very sorry for those of you who suffer severe pain with IC, and pray that you all go into remission soon and stay there!

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  • mary124
    replied
    Pain free to me means that I can function. Usually around 2-3; don't have to take any pain medications at all. (usually don't unless it gets to 5-6) - just depends; sometimes the pain comes and go so I will wait and see alot of times.

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  • leelee88
    replied
    Samathajane,
    Yes this is very normal symtom of IC, most people report that they have the feeling of having a UTI but do not have an infection. We usually consider that as a flare..I would suggest lots of water<I know more peeing but it helps in the long run. Peridium or Uristat for spasms and burning and a heating pad will help with pain.. Also warm baths help me..You will get past this..Sending you warm healing thoughts..

    Ronda

    Leave a comment:


  • samanthajane
    replied
    I read so much about the pain associated with IC but I dont seem to have terrible pain but just the most disgusting feeling of infection in the bladder/genital area (without an infection being present) which my doctor tells me is a form of pain. I had a hydro 6 weeks ago and was told again I definitly had IC but was wondering if this is a normal symptom. Does anyone feel this way?

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  • L. Thomas
    replied
    In the last 40 years I have had pain everyday. It is a part of my life. I’m not saying I embrace it, I just know it will always be there. I can’t consider pain-free to mean “to be without any pain”. Pain is like an ocean wave. If I run into it I will get slapped down and run over or I can learn to swim into it and let it float me to the shore. The minute Looking for the “pain free” experience only makes me feel my pain.

    When night comes the wave overtakes me. Most nights I cannot sleep without Rx for sleep and sometimes I need Demerol. I have no idea of the pain you must be feeling and I certainly would not discount your feelings. Evaluating pain is so subjective. I am just so thankful that I know there will be an end to the terrible pain I experience on a daily basis.

    On a scale of 1-10. I am no less than a 6 everyday (that would probably be something like having a cut that needs stitches or strep-throat).

    Pain from IC? I honestly don’t know. I think it is like “Oh I smashed my finger, I think I’ll bang my head on the wall. Now my finger doesn’t hurt. Anymore..” I think IC is the finger and the wall is my knee. Unlike those of you that have debilitating pain with IC, there will be an end to my pain. I will have 2-3 surgeries in the next 4 years. I will severely disabled physically. I will be on heavy duty pain med for a year or so and then I will have total knee replacement. Why do I wait? Total knee will never be as good as your natural knee. Is the pain worth it? Right now, yes but one day it won't be. I’ll have TKA and my pain will be gone.

    I can't give into the wave. I’ll turn into it and ride it to shore. For now this is the only way I can survive and be “pain free”.

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  • Waves
    replied
    Pain free from newbie

    I find this posting very helpful, having just been diagnosed.

    I guess for me, it's when I'm not aware of the pain . . . either it's not severe enough to be the main thing on my mind or I actually don't have any (in the past 6 months, that's been about 1 day or a few half days per month).

    And then there are the times when, especially difficult living alone, when I have to do everything and anything to stop or lessen the pain, no matter what else is going on in my life.

    Leave a comment:


  • Trishann
    replied
    When I saw the words PAIN FREE it was like Christmas and I get to open up the gift.

    Pain free to me is being able to go outside, being able to swim, be able to do even the smallest things. Even though it is not pain free I am grateful I still can get up and do things at times.

    Take care, Trishann

    Leave a comment:


  • soccermom32
    replied
    Pain free to me means no pain. I am not in any pain right now as I type this. I have lots of days that I'm not in pain, but I do always manage to get a momentary "twinge" sensation in my bladder. Like, its trying to remind me not to forget about it, LOL.

    Pain free to me means no pain meds needed!!

    Leave a comment:


  • amber sevy
    replied
    Pain free is a dream I wish I had just a few day a month. Godd days are when my pain with meds is under a 4. That means after I take a ms contin I can get my pain down to a 4. Thoes are the days I can clean the house and do fun things with my kids. I have had non stopp pain for 2 years now. before that I was able to deal with the pain better. I have had IC for 10 years now
    Amber

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  • LeeAnn
    replied
    pain

    I think pain free means no pain at all. As in, you forget you have a bladder altogether.

    I was lucky enough to have four days this weekin a row of no pain. That is seriously the first time in eleven years that I can say that. It has to be the Topamax.

    Then I had sex this morning and now I'm burning a little. And my frequency is up.

    But maybe it was b/c I ate 3 peanut m&m's yesterday.

    So no more of either for me!!! LOL.

    I'm still elated that I had four days of no pain. I had really lost hope that it would ever happen for me. I'm so thankful to have hope again.

    Leave a comment:


  • **Angie**
    replied
    On one of my last visits to my pain Dr she asked "what I wanted her to do for me". I responded "I want to be pain free". She said "that's unrealistic". Is it really?? I don't want to live at a pain level of what I call 2-3 with pain meds----which to anyone else would be a 3-4. When those pain meds don't work I'm at a 5-6. But like quite a few others I have had pain most my life. (due to kidney problems/endo and ando)

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  • leelee88
    replied
    Thanks everyone, I wish I could show your comments to the new URO im going to see, just to show her that I am not alone and so many of us suffer on a daily basis with IC, but hoping she is good enough to know enough about IC to realize this..Thanks again.. You all are GREAT!!(((hugs))) Ronda

    Leave a comment:

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