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Does anyone else have this problem? This isnnot a case of I "think" I need to go. It's been 2 hours and I've been drinking water and milk, so I know I need to go. I just can't seem to start. Any advice or tips are appreciated!!
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Katie-46 yr old female dx'd with IC after 15 years of symptoms off and on long term antibiotic use, GERD,IBS and now IC diet, gallbladder removed, endometrial ablation w/tubes tied
Lexapro-20 mg
Aciphex
Ambien-as needed
Percocet-7.5 up to 3 per day as needed
Valium-10 mg x2 per day
Phenergan-1 at night
Prelief w/everything
Now recovering from acute pancreatitis
Currents treatments that help somewhat:
Heating pad
Hot baths
Ice
Being VERY still while lying down with legs elevated -
Well
I just went a little bit but I had urethral spasms right after it started so that made everything stop. So I know it wasn't completely emptied. What do I do?Katie-46 yr old female dx'd with IC after 15 years of symptoms off and on long term antibiotic use, GERD,IBS and now IC diet, gallbladder removed, endometrial ablation w/tubes tied
Lexapro-20 mg
Aciphex
Ambien-as needed
Percocet-7.5 up to 3 per day as needed
Valium-10 mg x2 per day
Phenergan-1 at night
Prelief w/everything
Now recovering from acute pancreatitis
Currents treatments that help somewhat:
Heating pad
Hot baths
Ice
Being VERY still while lying down with legs elevated -
You might try sitting in warm water to see if that will relax your muscles enough so you can go. Please don't strain.
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
Patient Help: http://www.ic-network.com/patientlinks.html
Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined foolComment
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I'll try that. I'm sending you a PM Donna.Katie-46 yr old female dx'd with IC after 15 years of symptoms off and on long term antibiotic use, GERD,IBS and now IC diet, gallbladder removed, endometrial ablation w/tubes tied
Lexapro-20 mg
Aciphex
Ambien-as needed
Percocet-7.5 up to 3 per day as needed
Valium-10 mg x2 per day
Phenergan-1 at night
Prelief w/everything
Now recovering from acute pancreatitis
Currents treatments that help somewhat:
Heating pad
Hot baths
Ice
Being VERY still while lying down with legs elevatedComment
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I get that almost every time I have to pee. It is a symptom of pelvic floor dysfunction, which co-exists with I.C in 80% of patients. I have to strain hard to start the urine flow, which is often painful. I'm not sure of a solution. If I don't strain, the urine trickles out and takes forever. I think that physical therapy and muscle relaxants are supposed to help with this....Theres some good info on the ICA website.
http://216.235.204.192/Page.aspx?pid=361
Jem xComment
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Sometimes I have to read something in order to start. At times, I've even picked up a bottle of shampoo from the bathtub edge & read the label!!! Ok, I think this confirms that I'm now officially WEIRD.Kadi
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I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
------------------------------------------------------
New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
Source - Pinterest
"
Current treatments:
-IC diet
-Elavil 50mg at night
-Continuous use birth control pills (4-5 periods/year)
-Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
-Pyridium if needed,
-Pain medicine at bedtime daily, as needed during the day several times per week
-Antibiotic when doing an instillation to prevent UTI
-Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
-Dye Free Benadryl 50 mg at bedtime
-"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
-Managing stress= VERY important!
-Fur therapy: Hugging the cat!
Comment
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Kadi!!
Ok, you're not weird!! Here's weird - I turn on the water faucet and close my eyes and think about Niagra Falls!! Maybe we're both weird, I don't know! Whatever works, right??Katie-46 yr old female dx'd with IC after 15 years of symptoms off and on long term antibiotic use, GERD,IBS and now IC diet, gallbladder removed, endometrial ablation w/tubes tied
Lexapro-20 mg
Aciphex
Ambien-as needed
Percocet-7.5 up to 3 per day as needed
Valium-10 mg x2 per day
Phenergan-1 at night
Prelief w/everything
Now recovering from acute pancreatitis
Currents treatments that help somewhat:
Heating pad
Hot baths
Ice
Being VERY still while lying down with legs elevatedComment
-
I do crossword puzzles.
We're ALL wierd!
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
Patient Help: http://www.ic-network.com/patientlinks.html
Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined foolComment
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I used to have that problem, too! It was horrendous because my IC made me have to go so badly, yet I couldn't go. I was in pelvic floor physical therapy for a few months and I don't have that problem any more. That's probably caused by your pelvic floor muscles tightening too much around your urethra. Have you talked to a PT? But it has to be someone who specializes in pelvic floor dysfunction. Believe me, I first went to a regular PT who swore they could help, but I wasted time and money. The PT who was a specialist made all the difference.Update! Feeling much better these days and no longer on any meds!
Pelvic pain began July 2008. Urinary frequency began in November of 2008. IC Doctor says I'm one of the worst frequency patients he has had.
Things that helped me the most: IC Diet, Elavil (30mg), Elmiron since June '09 (500mg/day).
Previously tried and quit: one series of six instillations, Neurontin, Ditropan, Oxytrol, electric stimulation to the pelvic floor, Desert Harvest Aloe, Cystoprotek and Flomax, Hydroxyzine (50mg), Alesse Birth control (this helped my period flares when my symptoms used to be bad), PTNS (I think this helped).
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I don't even have a doctor to refer me to PT right now. I probably won't until the new year but I know there's a pt recommended on this site that's not too far from me so I'm definetely going to ask about it when I find a doctor who knows about IC and PT for pelvic floor dysfunction. Thank you. I'm glad I'm not the only one! Except I wish that none of us had to "work" while on the toilet!!Katie-46 yr old female dx'd with IC after 15 years of symptoms off and on long term antibiotic use, GERD,IBS and now IC diet, gallbladder removed, endometrial ablation w/tubes tied
Lexapro-20 mg
Aciphex
Ambien-as needed
Percocet-7.5 up to 3 per day as needed
Valium-10 mg x2 per day
Phenergan-1 at night
Prelief w/everything
Now recovering from acute pancreatitis
Currents treatments that help somewhat:
Heating pad
Hot baths
Ice
Being VERY still while lying down with legs elevatedComment
-
Yeah, I started to do Sudoku puzzles while in the bathroom, then I got worried I'd train myself to urinate while doing them, which could be problematic because I also like to do Sudoku on airplanes. So, I had to stop that practice... Ok, I'm thinking I now qualify as WEIRD.Kadi
-------------------------------------------------------------
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
------------------------------------------------------
New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
Source - Pinterest
"
Current treatments:
-IC diet
-Elavil 50mg at night
-Continuous use birth control pills (4-5 periods/year)
-Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
-Pyridium if needed,
-Pain medicine at bedtime daily, as needed during the day several times per week
-Antibiotic when doing an instillation to prevent UTI
-Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
-Dye Free Benadryl 50 mg at bedtime
-"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
-Managing stress= VERY important!
-Fur therapy: Hugging the cat!Comment
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As long as you don't pee in your airplane seat I think you're probably ok, lol!!Katie-46 yr old female dx'd with IC after 15 years of symptoms off and on long term antibiotic use, GERD,IBS and now IC diet, gallbladder removed, endometrial ablation w/tubes tied
Lexapro-20 mg
Aciphex
Ambien-as needed
Percocet-7.5 up to 3 per day as needed
Valium-10 mg x2 per day
Phenergan-1 at night
Prelief w/everything
Now recovering from acute pancreatitis
Currents treatments that help somewhat:
Heating pad
Hot baths
Ice
Being VERY still while lying down with legs elevatedComment
-
This disease definitely messes with our dignity!!Kadi
-------------------------------------------------------------
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
------------------------------------------------------
New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
Source - Pinterest
"
Current treatments:
-IC diet
-Elavil 50mg at night
-Continuous use birth control pills (4-5 periods/year)
-Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
-Pyridium if needed,
-Pain medicine at bedtime daily, as needed during the day several times per week
-Antibiotic when doing an instillation to prevent UTI
-Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
-Dye Free Benadryl 50 mg at bedtime
-"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
-Managing stress= VERY important!
-Fur therapy: Hugging the cat!Comment
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When my son had urine retention after surgery, a nurse friend suggested sticking his hand in warm water...worked almost immediately. My IC nurse today said to make sure your pants are dropped down around your ankles and sit relaxed. And what comes out doesn't need to be full force, just let it come out slowly and that's fine. (Obviously, I'm having some of the same problems at times!) She fully believes most of my problems are from pelvic floor muscle issues and has recommended PT to the urologist, who's on vacation this week. I have IBS-C, too (constipation dominant), and for that, many times I've picked up shampoo bottles or whatever I could find around to read. But, of course, it's those times that I so often forget my glasses and so can't read a thing anyway!!Pam
Diagnosed with:
IC September 2009 (symptoms are frequency all the time and some burning)
Graves' Disease June 2006 (thyroid issue)
Sleep Apnea February 2007
IBS-C so long ago I can't remember
HBP
Total hysterectomy 2015 (pre-cancer)
Meds/Treatments:
CPAP Machine (for sleep apnea)
Uribel
Metoprolol ER
Synthroid
Linzess and Magnesium for IBS-C
Love my furbaby, Turtle! Comment
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It's called hesitancy. If you don't get it all out of your bladder after you get up off the toilet, then you have retention also. A bladder prolapse or rectal prolapse can block your urine flow and make it hard to pea. Urethral strictures can do the same thing. I think you get this from the cystoscopy's. You can get urethral dilation for that. I've also had overactive bladder medications do this to me, and UTI's. You might ask your urologist about water pills and see if that helps if the cause can't be found, but you really need to find out why that is occuring. Also, if your bladder is really inflammed and irritated, it can bring on those symptoms.Comment
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