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I hurt

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  • I hurt

    I have had some pretty severe pain with my IC for about 4 years. The pain is so bad that I had to fight for disability, and can't work. I have noticed lately that my urethra is extremely painful. It is like (sorry for the wording not sure how else to explain it,) like a knitting needle is being shoved up there and is being wiggled around. Definitely not a comfortable feeling. I have been tested for an infection and of course nothing. I am not sure what this is, but I would appreciate any input that you may have.
    Thank you
    Started Vaginal Valium Suppositories April 2014
    Hysterectomy April 2003 (for abdominal pain),Diagnosed with IC August 2003
    Diagnosed with Pelvic Floor Disorder 2004,Had right ovary and fallopan tube removed 2005
    Diagnosed with diverticulosis 2006,Interstim December 2006,Home Instillations 2007-not effective
    Diagnosed with Fibromyalgia November 2007,Appendectomy February 2008,
    Interstim repair December 2008,Removal of the Interstim August 2011,
    6 Hydrodistentions from 2003-2009 Diagnosed with restless leg syndrome March 2014
    Diagnosed with Raynaud's Syndrome November 2013
    Ambien 5mg for sleep.
    Elivil 50 mg at bed
    Lisinopril 20mg in AM
    Effexor 225 mg
    Oxycodone 10 mgs 2 x a day for pain
    Baclofen 20mg 3x a day
    Phenazopyridine 200 mg as needed
    Omeprazole 20 mg at night
    Lyrica 450 mg daily
    Requip .50 mg at night
    Ketorolac 10 mg as needed for migraines

  • #2
    sorry to hear that. are u doing the IC diet? have u tried doing at home bladder installations 3x a week? I hear its a 80% sucess rate.
    Diagnosed with IC October 2009- through bladder biopsy (no glomerations or hunners ulcers found, just irritation)

    I have moderate-severe IC

    Currently stopped taking all medications due to pregnancy