I hurt

Kirs10

ICN Member

Join Date: Apr 2006

Posts: 449
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#1

I hurt

12-26-2010, 07:36 AM

I have had some pretty severe pain with my IC for about 4 years. The pain is so bad that I had to fight for disability, and can't work. I have noticed lately that my urethra is extremely painful. It is like (sorry for the wording not sure how else to explain it,) like a knitting needle is being shoved up there and is being wiggled around. Definitely not a comfortable feeling. I have been tested for an infection and of course nothing. I am not sure what this is, but I would appreciate any input that you may have.
Thank you
Kirsten

Started Vaginal Valium Suppositories April 2014
Hysterectomy April 2003 (for abdominal pain),Diagnosed with IC August 2003
Diagnosed with Pelvic Floor Disorder 2004,Had right ovary and fallopan tube removed 2005
Diagnosed with diverticulosis 2006,Interstim December 2006,Home Instillations 2007-not effective
Diagnosed with Fibromyalgia November 2007,Appendectomy February 2008,
Interstim repair December 2008,Removal of the Interstim August 2011,
6 Hydrodistentions from 2003-2009 Diagnosed with restless leg syndrome March 2014
Diagnosed with Raynaud's Syndrome November 2013
Ambien 5mg for sleep.
Elivil 50 mg at bed
Lisinopril 20mg in AM
Effexor 225 mg
Oxycodone 10 mgs 2 x a day for pain
Baclofen 20mg 3x a day
Phenazopyridine 200 mg as needed
Omeprazole 20 mg at night
Lyrica 450 mg daily
Requip .50 mg at night
Ketorolac 10 mg as needed for migraines
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needsrelief

ICN Member

Join Date: Nov 2009

Posts: 493
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#2

12-26-2010, 03:10 PM

sorry to hear that. are u doing the IC diet? have u tried doing at home bladder installations 3x a week? I hear its a 80% sucess rate.

Diagnosed with IC October 2009- through bladder biopsy (no glomerations or hunners ulcers found, just irritation)

I have moderate-severe IC

Currently stopped taking all medications due to pregnancy
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