Announcement

Collapse
No announcement yet.

question in regards to IC symptonms

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • ermkenne
    replied
    Hello cmwolf,

    I completely understand what you mean about rescue instillations. I have been doing them since August (took a bit to find the right one), and was doing them 2 to 3 times a week. Things were still not as great, and decided that in order to manage the pain I would need to do them daily. That hit me pretty hard. Even though I am still in pain daily, it is manageable. Some days are better than others. I think we all have high expectations at times, but sometimes it hits us that it is a chronic condition. We hope to reach that point of remission, but we need to be realistic also. I pursue anything I can for treatment: I am currently doing physical therapy (it has made cathing a heck of a lot less painful, and there have been some other benefits-even if they are minor). I use a TENS unit that I bought at CVS that helps with spasms, so that if I am going on a car ride and I am in pain prior, I can use it for 20 minutes and it will get me through the ride.

    I do my treatments daily as prescribed (some days I am in denial and don't want to do it, but my body knows I need it). Usually in the evenings closer to treatment time I start to have a little more pain. In the beginning it is about management. Find one goal for yourself as a person with IC and try to accomplish it. Mine is getting through the week with manageable pain, and not missing school as much. I am really getting there.

    Keep a positive attitude as much as you can (I know it is hard). I hope this helps, sorry if it is long. Message me anytime.

    Erin

    Leave a comment:


  • bladderpain451
    replied
    You can't really cure chronic inflammation but there are things you can do to prevent it from getting any worse. Avoid any food or drinks that irritate it. Avoid alcohol, smoking. Don't use NSAID's, they not only cause stomach bleeding, they can't ulcerate your bladder. I'm having trouble with that one, but I need to get my medications switched. And take your Elmiron to help heal your bladder lining. I don't know what else you can really do. You might ask your doctor for a narcotic if the pain gets extreme.

    Leave a comment:


  • cmwolf
    replied
    Hi Donna-

    Thanks for your answer. I guess I thought that Bladder Instillations helped immediatly. I will continue to give it a try and not give up so soon this time.

    Thanks also for the link to the diet. I need to look at it and see what foods i've started to let into my diet that can cause problems.

    Carla

    Leave a comment:


  • ICNDonna
    replied
    It's a little soon for the instillations to be working completely. If they are helping at all, they are worth continuing. The food list at the link in my signature below can be a huge help in managing diet. Even after 36 years with IC, I refer to it when I have questions about something I haven't eaten in a while or something new.

    Sending healing thoughts,
    Donna

    Leave a comment:


  • cmwolf
    started a topic question in regards to IC symptonms

    question in regards to IC symptonms

    Hi-

    I was diagnosed with IC 5 years ago. Thanks to medication and changes in diet I've gotten to the point where it's more manageable, but I'm still having problems almost every day. My main symptom is pain, most days I mainly have problems in the morning and evening, there still are times that the pain gets so intense that I don't even want to walk.

    My doctor is very good and is still willing to work with me. Currently he's retrying bladder instillations. This time they are helping some, but after 4 weeks I can't say they've put me in remission. My question is, Am I expecting to much? Do I need to accept that I'll be in pain most of the time? When I think of remission, I see it as a time, where you wouldn't know you had a problem.

    I am thinking of redoing the elimination diet to see if some of the foods which I could eat 2 or 3 years ago are not longer good for me.

    Thanks for your help.

    Carla
Working...
X