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  • If you could take away only one of your symptoms...

    I know we all have many symptoms and some of us have multiple illnesses. So if you could just take away one symptom, what would it be and why??

    I would take my perineum pain away. At least once a day I want to chop my perineum off. This really impacts my sitting. It's also frustrating b/c outside of the IC/pelvic pain world, most people don't even realize they have a perineum and never think about their perineum, but I am in a constant battle with mine.
    DX: IC, V, VV, PFD, Generalized Anxiety Disorder, PN (just chronic inflammation of the nerve, not an entrapment), Depression

    Current Treatments: Effexor XR, Gabapentin, Oral Valium, Methadone, Lidocaine, ice/heat packs, sometimes vaginal valium suppositories, Vicodin

    My Pelvic Pain Blog

    FB Fanpage for My Pelvic Pain Blog

  • #2
    Bladder pain. I would (and have)pee 100 times a day if I could just get rid of this pain.
    Katie-46 yr old female dx'd with IC after 15 years of symptoms off and on long term antibiotic use, GERD,IBS and now IC diet, gallbladder removed, endometrial ablation w/tubes tied
    Lexapro-20 mg
    Aciphex
    Ambien-as needed
    Percocet-7.5 up to 3 per day as needed
    Valium-10 mg x2 per day
    Phenergan-1 at night
    Prelief w/everything
    Now recovering from acute pancreatitis

    Currents treatments that help somewhat:
    Heating pad
    Hot baths
    Ice
    Being VERY still while lying down with legs elevated

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    • #3
      THE Pain!
      <center>
      <a href="http://s1086.photobucket.com/albums/j441/linda5552/?action=view&amp;current=Picture005.jpg" target="_blank"><img src="http://i1086.photobucket.com/albums/j441/linda5552/th_Picture005.jpg" border="0" alt="Photobucket" ></a>
      </center>

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      • #4
        I agree...the overall pain and frequency.
        Minds are like parachutes-they ony function when they are open.
        -Thomas DeWar-



        ICN Newbie Volunteer


        *ICN Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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        • #5
          which symptom

          Okay,
          If I had to pick just one, it would be the pain, but if the genie granted me more than one wish, I would add leaking and frequency.
          Now if I could just find the right lamp to rub!

          Comment


          • #6
            If I had to pick only one......

            That horrid searing/stabbing pain that comes at the end of urination.
            "The happiest people don't necessarily have the best of everything; they just make the best of everything they have."

            Comment


            • #7
              Increased frequency

              I was wondering if anyone had any tips about how to curb a spike in frequency? I noticed an increase in my frequency..from about 2 hours to now every 45 min - hour and I'm not drinking a ton..barely a water bottle during my work day. Its so frustrating because I work in a hospital now and its so fast paced that its hard to go and when I hold it in it stings. Does anyone have any suggestions? Thanks!

              -Whitney

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              • #8
                I wanted to add Vicki that I too get a sharp pain at the end of my urination or a soreness. I tried to explain it to my NP (nurse practioner) but she didn't really get what I was saying. It's not always stabbing it just feels sore at the end. Is this common for patients with IC?

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                • #9
                  Whitney, I'm not sure exactly how common of IC this symptom is, but I do know many people here have mentioned having it.

                  On the increased frequency thing, the first thing I do is to increase the amount of pure untreated water I'm drinking. I know, it sounds backwards! Your solution may depend on what is behind your increase in frequency though. When it happens to me it's usually that I ate something I shouldn't have, or I've become a bit dehydrated. So my increase in water either flushes it out or hydrates, solving the frequency. If my flare is the (rare for me) stress related flare, I still increase the water but it isn't quite so helpful.
                  "The happiest people don't necessarily have the best of everything; they just make the best of everything they have."

                  Comment


                  • #10
                    I hate urgency!...its the most annoying thing
                    Diagnosed with IC October 2009- through bladder biopsy (no glomerations or hunners ulcers found, just irritation)

                    I have moderate-severe IC

                    Currently stopped taking all medications due to pregnancy

                    Comment


                    • #11
                      Originally posted by bubbe1 View Post
                      Okay,
                      If I had to pick just one, it would be the pain, but if the genie granted me more than one wish, I would add leaking and frequency.
                      Now if I could just find the right lamp to rub!
                      I'm gonna go rub ALL the lamps in my house, just to be on the safe side!!!
                      Katie-46 yr old female dx'd with IC after 15 years of symptoms off and on long term antibiotic use, GERD,IBS and now IC diet, gallbladder removed, endometrial ablation w/tubes tied
                      Lexapro-20 mg
                      Aciphex
                      Ambien-as needed
                      Percocet-7.5 up to 3 per day as needed
                      Valium-10 mg x2 per day
                      Phenergan-1 at night
                      Prelief w/everything
                      Now recovering from acute pancreatitis

                      Currents treatments that help somewhat:
                      Heating pad
                      Hot baths
                      Ice
                      Being VERY still while lying down with legs elevated

                      Comment


                      • #12
                        My Uro asked me this question many times in the beginning and always told him I could not choose. Be in pain 24/7 but not pee or pee every 10-15 minutes for life without pain? I just can't choose.
                        Not to sound stupid but what is a perineum ?

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                        • #13
                          I so feel for all of you! Sometimes I feel like I am the only person in the world that goes to the bathroom every half hour! I am 42 but feel so much older than I am most of the time and this illness makes you so self conscious at times and can be quite depressing. Im sorry you all have this, but it is truly comforting to know that there are others out there that understand this frustrating problem. Maria

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                          • #14
                            The urethral burning!!!

                            Comment


                            • #15
                              I'd get rid of pain, it really limits my activity.

                              Waterflow, the perineum is the space between the opening of your vagina and anus.

                              Suzanne

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