very embarassing

[MidnightMoon]

I dont know if this is in the correct part of the forum.

This is very embarrassing. I goggled this and saw some others in an old archive file had it so I don’t feel so horrible but still it is embarrassing.
I have not told my doctor about this because the embarrassment is just too much. I feel awful telling my doctor this, its just so embarrassing.

I’ve had bladder pain on and off for over a decade. It’s gotten gradually worse, and now I am noticing more and more, this other symptom with it.

When it gets bad now, i also feel like I need to orgasm, to get relief from the pain. It’s not a nice feeling, it is painful pressure and horrible. When the pain is bad i end up having to orgasm many times. I *have* to, to get relief. I cant wait, its so distracting and pressure feeling.

It is not about orgasms in a good way. It’s connected to the bladder pain. It hurts so bad and is so uncomfortable. Orgasm causes some relief.

This started happening on and off a few years ago and now its gotten worse and worse.

I don’t want to tell my doctor for fear of being seen as a nut case. I’ve had unsympathetic doctors about the bladder pain and that is bad enough. I don't want to tell them about this! Also as a child I was sexually abused (Ive seen a shrink for many years about this and consider myself relatively emotionally healed) but my doctors know about this and I fear that I will be seen as having emotional problems about sex which are causing my symptoms and I will be seen as a freak or something.

Does anyone get this pressure, pain need to orgasm thing also? Has anyone told their doctors? How did you tell them? How did they react?

Is this a symptom that others get also? I never used to get it but as the pains gotten worse it has happened.

[sailawaygrl]

I sent you a personal message (pm).

[ICNDonna]

What you're experiencing has happened to other IC patients so we all know what you're feeling can be a part of interstitial cystitis.

Sending healing thoughts,
Donna

[cmclien]

I read this can sometimes be a symptom. I was going to post a link to the article but couldn't find it. It makes sense that if you have swelling around that area it could give you that uncomfortable sensation. I understand your discomfort at telling your doctor and honestly I don't know if you need to since you have the bladder pain. I would only tell him if you really trust him, just my opinion.
You are not the first to post about this, there are others with the same symptom.
Just a thought, maybe a numbing gel would help (benzocaine). You could ask your doctor about this. Are you on other medications for your IC?

[Briza]

please see this link:
http://www.ic-network.com/forum/showthread.php?t=34448

[Briza]

and this one:
http://en.wikipedia.org/wiki/Persist...ousal_disorder

[MidnightMoon]

Hi Everyone thank you very much for replying. It is so helpful to know I am not the only one with this.
Thank you for replying and for the links too.
I had bad pain today.
Am starting the IC diet now.

The cold makes it flare for me, I think coffee also. I love coffee but today was so bad I will stop drinking it if it helps.

[hollyroseanna]

Yeah I get this everytime I have a flare up too, it's like its the only way you get relief, even just for a few minutes. It must just because it makes you feel tired, or releases natural painkillers or endorphins or something, or maybe it numbs your abdominal area for a while!

[Lindeee]

When I was first diagnosed in 1996 I had horrible urethral orgasms during my sleep....it was traumatic. I generally have a lot of urethral pain. I got on ativan at night and this helped. I don't have that symptom anymore....but do dream about having to pee a lot.

[cmclien]

low acid coffee

Hi Everyone thank you very much for replying. It is so helpful to know I am not the only one with this.
Thank you for replying and for the links too.
I had bad pain today.
Am starting the IC diet now.

The cold makes it flare for me, I think coffee also. I love coffee but today was so bad I will stop drinking it if it helps.

Have you tried the 50% less acid coffee? I drink that now and take a couple of prelief with it. There are a couple of different kinds and there is even a link to the puroast here in the food section of the website. You can also order direct from their website for additional flavors. You might be able to tolerate that. I only drink it in the morning and then switch to IC OK teas.