Announcement

Collapse
No announcement yet.

weird flare

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • weird flare

    I have had lots of painful flares but the other night was sreally bad. I woke up from a sleep with my bladder in pain. It was like lighning bolts all around my bladder, not so much the burning pain that I usually have. It is difficult to describe.
    symptoms: Pain, frequency, pressure
    triggers: stress, intercourse, soda, coffee, tomato sauces, artificial sweetners, msg , soy & scar tissue
    treatments: D-Mannoose supplement
    Diet free of wheat, soy, and dairy.
    Surgeries:
    4 laproscopies: 3 cystscopies, 2 w/ hydrodistention: breast reduction and revision:2 sinus surgeries
    Diagnosed with IC,IBS, PFD,TMJ (2012), endometriosis, dry eyes(2012), chronic sinus problems, allergies, multiple chemical sensitivity, adhesions, anxiety, depression,
    spinal problems(2012) Fibromyalgia (2012) adrenal fatigue (2012)

  • #2
    Have you been checked to be sure you don't have an infection? Are you sticking with your diet?

    I hope you're feeling better now.

    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment


    • #3
      Thank you Donna,

      I just started a new cocktail of instillations, so maybe that is contributing. I have been tested for an infection and it came back negative. I am keeping a bladder diary and also keeping notes on my flares.
      symptoms: Pain, frequency, pressure
      triggers: stress, intercourse, soda, coffee, tomato sauces, artificial sweetners, msg , soy & scar tissue
      treatments: D-Mannoose supplement
      Diet free of wheat, soy, and dairy.
      Surgeries:
      4 laproscopies: 3 cystscopies, 2 w/ hydrodistention: breast reduction and revision:2 sinus surgeries
      Diagnosed with IC,IBS, PFD,TMJ (2012), endometriosis, dry eyes(2012), chronic sinus problems, allergies, multiple chemical sensitivity, adhesions, anxiety, depression,
      spinal problems(2012) Fibromyalgia (2012) adrenal fatigue (2012)

      Comment


      • #4
        I mentioned to the nurse yesterday about my weird flare that I had. She did not seem concerned about it. then she did the bladder instill. Now I have an extremely sharp pain on the left side of my bladder that brought me to my knees. Now I am resting with my heating pad trying to rest.

        I have a bladder test on Wednesday and then I will see my dr to talk about my next course of action.
        symptoms: Pain, frequency, pressure
        triggers: stress, intercourse, soda, coffee, tomato sauces, artificial sweetners, msg , soy & scar tissue
        treatments: D-Mannoose supplement
        Diet free of wheat, soy, and dairy.
        Surgeries:
        4 laproscopies: 3 cystscopies, 2 w/ hydrodistention: breast reduction and revision:2 sinus surgeries
        Diagnosed with IC,IBS, PFD,TMJ (2012), endometriosis, dry eyes(2012), chronic sinus problems, allergies, multiple chemical sensitivity, adhesions, anxiety, depression,
        spinal problems(2012) Fibromyalgia (2012) adrenal fatigue (2012)

        Comment

        Working...
        X