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Well- I had posted that I was feeling generally better even having almost completely normal days. I guess I didn't knock on wood. Last night was the worst. It started getting worse in the afternoon and then last night, I starting feeling this very odd sensation in and behind my belly button. I can't even explain it- almost like a tickle? Anyway- it got worse and worse and I was truly freaking out inside. If i didn't have a nursing baby, I think I would have went to the hospital just for some tranquilizers or something. This is so scary. I ate suspicious takeout food last night and maybe that was it. I had been sticking to the diet. Also I switched the kind of estrogen cream Iwas using from Estacr to a more gentle estriol suppository. Last night I put the Estrace back on in desperation. I am so scared. I have 3 kids to take of.
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wife, mom to three, theater professional
diagnosed- "mild" IC Feb 10, 2011
symptoms started on and off Nov 2010
urgency, frequency, general bladder discomfort,itching, and other nasty feelings
I am going completely holistic with herbs and diet to heal -
It could easily be from the takeout food; if it happens again, I think it would be a good idea to call your doctor.
Warm healing thoughts,
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
Patient Help: http://www.ic-network.com/patientlinks.html
Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined fool -
Thanks Donna. It has eased up a bit. I will NOT be trying any more questionable food for a while!!!! i am also going back to the original Estrace cream since overall I was doing a little better last week.
wife, mom to three, theater professional
diagnosed- "mild" IC Feb 10, 2011
symptoms started on and off Nov 2010
urgency, frequency, general bladder discomfort,itching, and other nasty feelings
I am going completely holistic with herbs and diet to healComment
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The bizarre feeling is back. Oh my God this is so frustrating. I would give so much to be back to my old self.
wife, mom to three, theater professional
diagnosed- "mild" IC Feb 10, 2011
symptoms started on and off Nov 2010
urgency, frequency, general bladder discomfort,itching, and other nasty feelings
I am going completely holistic with herbs and diet to healComment
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deirdre i can relate to the..scary feelings that youre not used to. things are going on with my body with this ic that i never thought could happen.it is frustrating and wishing i could go back to my old self too. one thing that really helped me is finding a counselor who deals with IC patients on a regular basis so i would have someone to talk/to vent about the situation besides online and its helping. *hugs* we will make itNewly IC diagnosed as of February 2011.
Medications I'm on that seem to work:
Zoloft- one once a day
Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)
Failed Meds:
Elmiron-after 4 months,digestive side effects got to be too much
tramadol-allergic
DMSO treatments(5-6)
probiotics
THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
AROMATHERAPY-candles,incense
Village Naturals Aches and Pains Peppermint Bath Salts
Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion
ACUPUNCTURE/HERBS
Significant pain relief so far.
MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
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***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***
Add me on facebook Angela Hasic
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Lord, make me an instrument of your peace;
where there is hatred, let me sow love;
when there is injury, pardon;
where there is doubt, faith;
where there is despair, hope;
where there is darkness, light;
and where there is sadness, joy.
Grant that I may not so much seek
to be consoled as to console;
to be understood, as to understand,
to be loved as to love;
for it is in giving that we receive,
it is in pardoning that we are pardoned,
and it is in dying [to ourselves] that we are born to eternal life.
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Flowerangela- Thanks hon! I feel better now thank God although not perfect. I've read alot of your posts and it sounds like you are having a really rough time with pain. I am thinking about you. And you are right-We will make it! it just might take longer than expected. ((hug))
wife, mom to three, theater professional
diagnosed- "mild" IC Feb 10, 2011
symptoms started on and off Nov 2010
urgency, frequency, general bladder discomfort,itching, and other nasty feelings
I am going completely holistic with herbs and diet to healComment
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