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I had one at a festival where I had to sit in a tent for ages, that was horrible!
Or at a party where I had to leave
Or at a party where I had to leave
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my worst nightmare started at home. i pray to god i never get that bad again pray for a cure soon.
and lasted 3 months 24/7 non stop no pain meds.Last edited by Linda May; 03-17-2011, 02:58 AM.<center>
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I think mine was at work.
DonnaStay safe
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I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined foolComment
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I remember mine quite well. My hubby, son & I went on a fishing trip to Montana where we camped out next to the river. I had just crawled into the sleeping bag when I had the familiar twinge of what was to come.
I got back up, walked to the restroom facility (about 1/4 mile away) and Oh, the Pain! I didn't want to go back in the tent and disturb my husband's sleep so I sat in the pick-up. Not wanting to hang out at the campground toilets, every ten minutes I would climb out of the truck, walk to the restroom, have an agonizing pee, re-fill my water bottle at the bubbler, walk back to the truck. Repeat, repeat, repeat, the entire cold, damp night. It hurt to sit, it hurt to pee, it hurt to walk, -it was miserable!
By the time everyone woke up my flare had subsided but I was a post-flare zombie all day."The happiest people don't necessarily have the best of everything; they just make the best of everything they have."Comment
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During the 24 hours of 3 flights returning from Spain. Ugh. That was really bad.
Next time I fly to/from Europe, I may stop overnight on the East Coast of the US to at least have a break for an instillation, yoga, sleep halfway.Kadi
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I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
Source - Pinterest
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Current treatments:
-IC diet
-Elavil 50mg at night
-Continuous use birth control pills (4-5 periods/year)
-Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
-Pyridium if needed,
-Pain medicine at bedtime daily, as needed during the day several times per week
-Antibiotic when doing an instillation to prevent UTI
-Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
-Dye Free Benadryl 50 mg at bedtime
-"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
-Managing stress= VERY important!
-Fur therapy: Hugging the cat!
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Oh no they all sound horrible!
Its horrendous when you get a bad flare up away from the comfort of your own home
Even worse when you have no privacy!Comment
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Driving a short distance from point A to point B with no where to go!Comment
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