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  • #16
    425runner- When I'm out and have to use the restroom I wet some tp and take into the stall at a pubic restroom and wash off with it. Jill had recommended taking a small spritz bottle in your purse filled with water and using it to spray yourself off. We don't have bidets in this country that I've seen, but it sure sounds like a good idea to me.

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    • #17
      [QUOTE=425runner;574766I've tried Calcium - it made me constipated, can't take baking soda.[/QUOTE]

      You've got to take it with magnesium or yes, it will definitely constipate!
      Cindi


      Gelnique for frequency/urgency - works great
      Macrobid after sex
      Prilosec, continuous birth control pills
      synthroid .088mg, mucinex-d, restasis

      Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil

      Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.

      IC Diet Link: http://www.ic-network.com/diet/2009icdietlist.pdf
      AUA 2011 Guidelines to diagnosing and treating IC overview- http://www.ic-network.com/forum/showthread.php?p=571592
      AUA 2011 Guidelines to diagnosing and treating IC PDF: http://www.auanet.org/content/guidel...ent_ic-bps.pdf
      Great treatment flowchart on page 19 of the pdf

      Comment


      • #18
        Yes, I take 400 mg Mg Citrate at night with the Calcium. Are you saying to take 200 mg Magnesium with each dose of Calcium instead? Even then I'm constipated...the other meds I'm taking do that already and honestly, I haven't noticed any improvement with adding the Calcium.
        Dg. with IC 2/15/10

        Other conditions: depression, ADHD, lactose intolerance, celiac disease, chronic fatigue syndrome, IBS-C.

        Medications I'm on: Vyvanse 70mg, Xanax 1 mg as needed, Wellbutrin XL 150 mg, Vicodin 5/500 as needed for pain, Microgestin 1/20 continuously.

        Supplements I'm taking: Chondroitin Sulfate, N-acetyl-glucosamine, MSM 3gr/day, Pancreatin, B-5, Ester-C, and marshmallow root tea

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        • #19
          I have found for me personally I have to take about 50-50 or close to it. Most days I take 1000-1200mg magnesium and close to or maybe a little more in calcium. Thats too much for most people and will give them diarrhea. Alls it does to me is make me regular! I'm not suggesting you take that much but perhaps increase it until you find you have relief daily.

          My burning pee has finally gone away again. I really don't know what starts it and i don't know really why it ends but I should test my urine to see if those leukocytes are gone and post because I'm pretty convinced they're related in my particular circumstance. I took macrobid for about a week and did feel better even though no nitrates.
          Cindi


          Gelnique for frequency/urgency - works great
          Macrobid after sex
          Prilosec, continuous birth control pills
          synthroid .088mg, mucinex-d, restasis

          Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil

          Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.

          IC Diet Link: http://www.ic-network.com/diet/2009icdietlist.pdf
          AUA 2011 Guidelines to diagnosing and treating IC overview- http://www.ic-network.com/forum/showthread.php?p=571592
          AUA 2011 Guidelines to diagnosing and treating IC PDF: http://www.auanet.org/content/guidel...ent_ic-bps.pdf
          Great treatment flowchart on page 19 of the pdf

          Comment


          • #20
            It might be a little hotter than usual due to inflammation in the bladder that's heating it up. Maybe you should try some natural anti-inflammatories? Like flax seed oil. Exercise also reduces inflammation.
            Update! Feeling much better these days and no longer on any meds!

            Pelvic pain began July 2008. Urinary frequency began in November of 2008. IC Doctor says I'm one of the worst frequency patients he has had.

            Things that helped me the most: IC Diet, Elavil (30mg), Elmiron since June '09 (500mg/day).

            Previously tried and quit: one series of six instillations, Neurontin, Ditropan, Oxytrol, electric stimulation to the pelvic floor, Desert Harvest Aloe, Cystoprotek and Flomax, Hydroxyzine (50mg), Alesse Birth control (this helped my period flares when my symptoms used to be bad), PTNS (I think this helped).

            [/COLOR][/SIZE][/FONT]

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            • #21
              Yes, flaxseed oil is great. I take 6grams of that a day due to my dry eye syndrome but I know its just good for me all around. I also think the desert harvest aloe vera capsules go a long way in helping reduce inflammation too.
              Cindi


              Gelnique for frequency/urgency - works great
              Macrobid after sex
              Prilosec, continuous birth control pills
              synthroid .088mg, mucinex-d, restasis

              Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil

              Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.

              IC Diet Link: http://www.ic-network.com/diet/2009icdietlist.pdf
              AUA 2011 Guidelines to diagnosing and treating IC overview- http://www.ic-network.com/forum/showthread.php?p=571592
              AUA 2011 Guidelines to diagnosing and treating IC PDF: http://www.auanet.org/content/guidel...ent_ic-bps.pdf
              Great treatment flowchart on page 19 of the pdf

              Comment

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