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  • Question about Quantity and Frequency...

    I have been charting my pee for a few hours now...I go anywhere from 10 min to 20 minutes...and it seems to always be around 4 oz....is that normal for IC is that considered advanced stages..???

    I feel that my bladder is "full" and when I go each time 4oz seems to come out?

    Sorry if this is TMI

  • #2
    I don't know if it is normal or not, but I know when I am flaring I go about every 10 min. I also know that my bladder is considered a 3+ in terms of holes and irritation (which is the highest number my doctor uses to rate IC)

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    • #3
      well I just went 1 hour with out going...(i did take a 15 min hot bath during that hour)....So you only go that much during a flare? Ok then maybe thats what I am experiencing?

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      • #4
        You are going to need to keep your log over a period of time to get a good idea of your capacity and frequency. As far as saying is it later stages, that really isn't a good way to determine. You go when you feel you really need to but that doesn't mean that is the maximum your bladder can hold.

        If you have a hydrostention under anesthesia they can tell how much your bladder can really hold.

        Sandra
        Link to the patient information, everything from What is IC? to Disability
        http://www.ic-network.com/patientlinks.html

        American Urological Association Clinical Guideline
        Diagnosis and Treatment of Intersitial Cysitis/Painful Bladder Syndrom
        http://www.auanet.org/content/guidel...ent_ic-bps.pdf

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        • #5
          I dont know what a hydrostention? is...? but im guessing its what you said..they measure how much your bladder can hold? What do they do that for? Is it to compare that amount to what your feeling is full (amount)?

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          • #6
            Well, I have just typed two long replies and both times I have lost them prior to posting. I am going to have to give up for now.

            Try doing some research under the "Patient" tab in the upper left of this page.

            I will try to post more later or hopefully someone whose computer isn't acting crazy will explain a hydrostention and urodynamics and how the two measure actual capacity verses "percieved" capacity.

            Sandra
            Link to the patient information, everything from What is IC? to Disability
            http://www.ic-network.com/patientlinks.html

            American Urological Association Clinical Guideline
            Diagnosis and Treatment of Intersitial Cysitis/Painful Bladder Syndrom
            http://www.auanet.org/content/guidel...ent_ic-bps.pdf

            Comment


            • #7
              A hydrodistention is not necessary to measure bladder capacity. It can be measured during a cystoscopy done in the doctor's office.

              To try to answer your question --- when we have bladder irritation (flare) and are urinating frequently, it will usually be very small amounts --- but that doesn't mean that small amount is your bladder capacity. It just means that the bladder isn't liking having any urine there.

              I hope you find treatments that will help.

              Warm hugs,
              Donna
              Stay safe


              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
              Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

              Have you checked the ICN Shop?
              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

              Patient Help: http://www.ic-network.com/patientlinks.html

              Sub-types https://www.ic-network.com/five-pote...markably-well/

              Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

              AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
              [3MG]

              Anyone who says something is foolproof hasn't met a determined fool

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              • #8
                Thanks Donna...I like the way you explained that..about my bladder not liking the fluid there.

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                • #9
                  Sandra...thanks for trying to post to me... I wish you would have had more success with that. I will check out that tab.

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                  • #10
                    When I had my urodynamics test last May, I was only able to tolerate about 3 oz of fluid. For awhile, I was only able to hold 4 oz like you. I haven't measured recently, but I might be up a few ounces. So, to answer your question, 4 oz can be "normal" for IC patients.
                    ----------------------
                    -Amanda
                    34 years old, bladder symptoms all my life
                    diagnosed with PFD and VV October 2009; IC May 2010

                    Current meds:
                    Cystoprotek 2 pills twice a day, Hydroxyzine 10 mg, Gabapentin 600 mg, Myrbetriq 25mg, Zoloft 25 mg, Mircrogestin, capsaicin cream (for vulva)
                    Other past treatments:
                    IC diet, physical therapy, Traumeel injections as needed, TENS unit, heating pad, instills with sodium bicarb, lidocaine, and mucosa compositum
                    Tried and didn't work:
                    Pyridium, Singlair, Nortriptyline, Elmiron, lidocaine and heparin instills (worked at first, then didn't anymore), various creams, acupuncture

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