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Two Questions. Please Answer :)

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  • Two Questions. Please Answer :)

    Hi, i hve two things to ask you guys.
    first, do any of you guys get frequency to where its every ten minutes? Even after i urinate, i feel the urge to go. sometimes its even five minutes.

    second, does anyone get these sharp needle like pains that progressively get worse to the point that you have to take pain meds?
    Thanks

  • #2
    I get the frequency like alot of other ICers do.. Sometimes it is every 5 minutes like you... Do you take anything for the frequency? I know of several others that also have the sharp needle like pains as well.. It is common with IC.. Everyone has different symptoms though. This disease is so individualized..
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    • #3
      My frequency can be as much as 50 times per day, and just before my diagnosis, I would go as often as 60 times per day. I was completely house-bound. So yes, I relate to the every 5-10 minutes thing. Generally, as soon as I "go", I have to go again. I also get sharp pain......but I agree, there are so many of us that have many different symptoms. That is part of what makes IC so frustrating!

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      • #4
        And I do take pain meds. I don't think I could function at this point in my life without them...but I also have other chronic pain conditions....

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        • #5
          Oh yes thats happened to me.
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          • #6
            Yep. I know what you mean. I think it's just inflammation along the bladder wall that causes those symptoms. Long-term use of Elmiron has helped me with those symptoms. But I'm not totally rid of them. And some days I still feel like I need to go again right after I just did. It can drive you crazy.
            Update! Feeling much better these days and no longer on any meds!

            Pelvic pain began July 2008. Urinary frequency began in November of 2008. IC Doctor says I'm one of the worst frequency patients he has had.

            Things that helped me the most: IC Diet, Elavil (30mg), Elmiron since June '09 (500mg/day).

            Previously tried and quit: one series of six instillations, Neurontin, Ditropan, Oxytrol, electric stimulation to the pelvic floor, Desert Harvest Aloe, Cystoprotek and Flomax, Hydroxyzine (50mg), Alesse Birth control (this helped my period flares when my symptoms used to be bad), PTNS (I think this helped).

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