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Constipation remedies, & which are IC-friendly

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  • Constipation remedies, & which are IC-friendly

    One of the other threads has turned to this topic, so I'm creating it under its own topic.

    Someone was writing that they are not finding magnesium supplements to be helpful for constipation, though some have written that they find the supplements help.

    I've been trying flax oil before bed, as one ICN person suggested, and I've been trying eating heaps of romaine lettuce.

    I also just bought some of the Acacia fiber from ICN, and I'll see if that helps at all. I'm wondering for anyone else who uses it, what's their preferred way of taking it?

    I'm thinking I may have to go back to some of the constipation medicines I have from when I was on morphine. Does anyone know if any of these are particularly problematic in terms of IC diet? :
    - Senecot (stool softener) capsules
    - Colace capsules / docusate sodium
    - Lactulose (liquid medicine, behind the pharma. counter but not prescript.)
    - Glycerin suppositories
    - Dulcolax suppositories
    Severe IC developed fairly quickly, autumn 2010.
    So severe that I was bed-bound & on 160mg/day morphine to cope with torturous pain levels, and unable to function other than hospital/medical appointments, for seven months. Then, miracle of miracles, something started working. I am steadily lowering the methadone dose level. I have been far out of that desperate nightmare hell zone for several months now and continue to improve.

    - Ranitidine (anti-histamine, H2-inhibitor) 300mg/day
    - Methadone 9 ml/day
    - Instillations:
    - 40ml Kenalog (steroid for inflammation) 2 x per
    week, along with rescue cocktail of heparin,
    lidocaine, sodium bicarbonate
    - 20ml Uracyst, monthly @ $100/per
    - Depo lupron injections for endometriosis, monthly @ $88/per

  • #2
    I have used Normacol and that seemed to help.. Used one pack a day. I have IBS with Constipation most of the time.. Just recently I stopped using it and trying just prune juice and hot water in the morning..and that seems to be working well----- it is not as bad tasting as it sounds... lol . I use flax flour as well but not every day.

    take care
    God brought me to it, He will bring me through it!!!

    Diagnosed 2003
    by cysto/hydro
    Elmiron took almost a year- made me sick, caused diarrhea
    Pyridium -Made me sick
    Detrol and Ditropan, Toviaz and Mrrbetriq- caused constipation and head ache.
    Tried DMSO instill- had 5 out of 6
    Started Oxytrol Patch-stopped using them after 3 months-- skin was getting irritated
    Cysto/hydro April 6th 2011-- on expansion only hold one cup
    IBS/ IC
    High blood pressure meds and Crestor
    Metformin (prediabetic)
    Sinequan (depression)


    • #3
      This topic definitely comes up alot. I'm one of the magnesium users but what people don't realize is you have to play with the dose to find that perfect fit between meds and magnesium for regularity. You need to start with 400mg and then increase it daily until you find continuous daily relief without diarhea. I take somewhere between 800-1200mg a day to offset the claritin, oab meds etc. I think 1200mg is about the upper limit of the recommended dietary allowance. I'll have to double check that but my pcp didn't seem concerned when I talked to her about it. I also eat about 25-35 grams of fiber a day but that isn't enough by itself for me.

      I do also like ducosate sodium and take it if needed. It doesn't bother my bladder.

      Whatever works is good in my book and these are just two things that have consistently worked for me.

      Gelnique for frequency/urgency - works great
      Macrobid after sex
      Prilosec, continuous birth control pills
      synthroid .088mg, mucinex-d, restasis

      Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil

      Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.

      IC Diet Link:
      AUA 2011 Guidelines to diagnosing and treating IC overview-
      AUA 2011 Guidelines to diagnosing and treating IC PDF:
      Great treatment flowchart on page 19 of the pdf


      • #4
        What I've found helpful is Metamucil Clear & Natural mixed into my hot milk with Pero (coffee substitute) each morning. I've used Milk of Magnesia, but don't like the diarrhea with that. Fleets enemas are helpful for occasional use (like post travel).
        Hope you find some relief soon, constipation is a miserable problem.

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

        New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
        Source - Pinterest

        Current treatments:
        -IC diet
        -Elavil 50mg at night
        -Continuous use birth control pills (4-5 periods/year)
        -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
        -Pyridium if needed,
        -Pain medicine at bedtime daily, as needed during the day several times per week
        -Antibiotic when doing an instillation to prevent UTI
        -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
        -Dye Free Benadryl 50 mg at bedtime
        -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
        -Managing stress= VERY important!
        -Fur therapy: Hugging the cat!


        • #5
          Milk of Magnesia worked for me when I had problems with that. I'm not sure that should be taken long term, however I think it's safer than a senna laxative or something like that. I also tried taking various fiber supplements to find what didn't flare me. I found that Metamucil Clear & Natural helped without causing increased IC symptoms.
          Update! Feeling much better these days and no longer on any meds!

          Pelvic pain began July 2008. Urinary frequency began in November of 2008. IC Doctor says I'm one of the worst frequency patients he has had.

          Things that helped me the most: IC Diet, Elavil (30mg), Elmiron since June '09 (500mg/day).

          Previously tried and quit: one series of six instillations, Neurontin, Ditropan, Oxytrol, electric stimulation to the pelvic floor, Desert Harvest Aloe, Cystoprotek and Flomax, Hydroxyzine (50mg), Alesse Birth control (this helped my period flares when my symptoms used to be bad), PTNS (I think this helped).



          • #6
            Beware of Miralax - it works for the constipation but not sure about its effect on IC - anyone else have something to say about Miralax?


            • #7
              I have used Senecot and it has worked fairly well. No flaring. I have found that helps with constipation the most for me. I also have tried Benefiber but that kind of did nothing.


              • #8
                I am gluten-free and cannot do Benefiber. I will try Senecot. I wonder how many people with IC should also be gluten-free, and don't know it?


                • #9
                  I do not know if Senacot has gluten in it... I would do an ingredient search online before getting it. I don't have gluten intolerance at all so it wasn't a factor for me when I bought it.


                  • #10
                    I was hoping my response, mentioning Gluten-free, might convince some others to investigate that. I get very infrequent flares now that I am gluten-free. I am sure Senecot is ok. You are very new to IC, I wish you luck in conquering it. I have had it since 1991 - very bad at first (2 years or so) and then subsiding bit by bit. I find a tspn of baking soda in a glass of water at first sign of a flare really helps a lot. Others do not agree.


                    • #11
                      miralax was a nightmare for me. I urinated every 30 minutes with burning. My doctor put me on this for constipation but I went off of it and all the symptoms were gone.


                      • #12
                        I use Miralax twice daily, 1 tablespoon of Lactulose syrup (generic prescription), 1 tablespoon of mineral oil daily, and a very high fiber diet. Sometimes even all of that is not enough.


                        • #13
                          one word - MAGNESIUM. very IC friendly. Usually 2 250mg pills at night is enough to fix you right up!


                          • #14
                            Originally posted by judy45 View Post
                            one word - MAGNESIUM. very IC friendly. Usually 2 250mg pills at night is enough to fix you right up!
                            There are differnet types of Magnesium. What type are you using?


                            • #15
                              psyllium fibre works VERY well. Just remember to drink more water when you take it..
                              28 years old
                              UTI's for 10 years
                              very bad urgency and frequency started Aug '10 Severe pressure, pain and burning in bladder, lower back, and thighs since May '11.
                              endometriosis removed (Sept 15th)
                              chronic pelvic pain since then
                              I currently take: elavil 25mg mg at night
                              clonazepam .25 mg daily for anxiety and nerve calming
                              baking soda occasionally
                              Marshmallow root tea/capsules occasionally
                              other: heating pad/ice packs daily
                              deep breathing
                              pelvic phsyio since jan '12

                              testing :cystoscopy ( urlogist said I have a small bladder but nothing abnormal)
                              many..MANY urine tests that all determine I do not have an infection.

                              ultrasounds for pre and post void (nothing abnormal)

                              things I would like to try :MSM, silver, medicinal mushrooms