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Does this happen to anyone else?

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  • Does this happen to anyone else?

    Ok, so I notice that when I have a full colon (not nessecarily constipated) that my IC symptoms actually DISSAPEAR until I have a bowel movement and then they creep back. WHY would this happen!? Some days I feel like I should just place somthing up there so my symptoms would get better! Sorry if this is TMI, I am just curious if anyone else has this? Could it be something to do with the pelvic floor and nerves? Maby when the colon if full, it blocks the nerves in the bladder?
    28 yrs old,

    I have little to no problems now with my bladder, unless I am very stressed out, I forget to take Elmiron for a few days, or I eat or drink something that I know is a trigger...(i.e) like eating a tomato or drinking tea.... Took a long time to get here, but it IS possible to feel good again I just want people who are new to know that IT CAN get better, and for every one person who is suffering, there are hundreds of others who feel GREAT because they have control of thier IC.

    What Works: Tylenol 3's, Pyridium, Elmiron (Going on 4 years now!) HOT showers!!!

    Medications/ Vitamins: Elmiron-100mg 4x's daily Tylenol 3's/Advil (flaring) Vitamin D, WILD salmon oil 4x gels in the morning, Women's ONE a DAY multivitamin (the gummy kind doesn't make me flare) and PROBIOTICS!

    Me in my graduation gown!

  • #2
    Interesting, I'm pretty much the opposite. But then lots of women seem to flare with their period whereas I would tend to flare mid-cycle. Go figure!

    It does seem that there's some sort of link between what's going on in the bowels and how the bladder feels. Exactly what it is, your guess is as good as mine. Actually, your guesses sound pretty good!(?)

    "The happiest people don't necessarily have the best of everything; they just make the best of everything they have."


    • #3
      Have you tried the Elavil or the pelvic floor therapy? Both sound like they maybe could help.
      Definitely worth having a conversation with your doctor about....

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

      New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
      Source - Pinterest

      Current treatments:
      -IC diet
      -Elavil 50mg at night
      -Continuous use birth control pills (4-5 periods/year)
      -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
      -Pyridium if needed,
      -Pain medicine at bedtime daily, as needed during the day several times per week
      -Antibiotic when doing an instillation to prevent UTI
      -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
      -Dye Free Benadryl 50 mg at bedtime
      -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
      -Managing stress= VERY important!
      -Fur therapy: Hugging the cat!


      • #4
        That is strange. I have had my symptoms disappear after a good colon cleanse for test preps. My gastro is trying me on a fiber drink now because I have alot of rectal pressure too.


        • #5
          Yes! I am the same!

          Yes my bladder doesn't feel as bad until I have a bowel movement and then the frequency is worse. My doctor said he wants to sort my constipation out as ever since my bladder problems started a year ago, I have never had a 'normal' bowel movement... always constipated. He said this could be affecting my bladder. Kadi, it's interesting you said elavil might help this... I asked my uro about trying this yesterday and he said it wouldn't be suitable for me as I do not have pain...?

          Might have to ask my GP for it, she seems more willing to let me try stuff!


          • #6
            I had a doctor at one time who believed in 'cross nerve talk' between the bowels and the bladder, and also between the nerves in the muscles of the pelvic floor. Its all so interrelated with nerves in that area, that I can see how one could effect the other.


            • #7
              Straining when having a BM can cause the bladder to react. That is what my Doctor told me. Due to an operation I had I must take miralax for the rest of my life. Every other day. Something no one should do with out A doctor's direction. My bladder no longer acts up since I've been taking it. Darn it's awful how IC can affect so many parts of our bodies. BM, back pain, sleep. The list goes on. All we can do is eat that apple one bite at a time. Hope you feel better soon. Hug, Ziggy