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Very importatn question for all IC patients

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  • Very importatn question for all IC patients

    Does anyone of you have white particles that look like small snowflakes after they pee? I have had them since the start. In addition, the last drops when I pee are white, the same thing you have when you have UTI? I have had these two symptoms since the whole thing started....I am looking forward to your responses.

    These particles can't be yeast because I have been tested for that from the start. I am pretty sure it is related with my condition since I had them from the start.

  • #2
    You can search this is old posts, a lot of people have this, conscensis is it is the linning of your bladder being sluffed off.

    I get this when I flare, or get a UTI.

    MG
    My are with you all. May you all find a way to peace and joy in your lives.

    Comment


    • #3
      I do

      I too have the floating white stuff in my urine...I was under the impression that it was the lining of my bladder...hope this helpful.
      Started Vaginal Valium Suppositories April 2014
      Hysterectomy April 2003 (for abdominal pain),Diagnosed with IC August 2003
      Diagnosed with Pelvic Floor Disorder 2004,Had right ovary and fallopan tube removed 2005
      Diagnosed with diverticulosis 2006,Interstim December 2006,Home Instillations 2007-not effective
      Diagnosed with Fibromyalgia November 2007,Appendectomy February 2008,
      Interstim repair December 2008,Removal of the Interstim August 2011,
      6 Hydrodistentions from 2003-2009 Diagnosed with restless leg syndrome March 2014
      Diagnosed with Raynaud's Syndrome November 2013
      Ambien 5mg for sleep.
      Elivil 50 mg at bed
      Lisinopril 20mg in AM
      Effexor 225 mg
      Oxycodone 10 mgs 2 x a day for pain
      Baclofen 20mg 3x a day
      Phenazopyridine 200 mg as needed
      Omeprazole 20 mg at night
      Lyrica 450 mg daily
      Requip .50 mg at night
      Ketorolac 10 mg as needed for migraines

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      • #4
        I used to have it but have been in a "medicinal" remission with Elmiron for about 1 1/2 years and no longer have the white stuff.

        Comment


        • #5
          I have often noticed his, not all the time but sometimes. I had no idea what it was. Has anyones doctor noticed this?

          Comment


          • #6
            I get little red pieces (looks like tissue to me), and sometimes black spots, and blood clots.

            Comment


            • #7
              Even a healthy bladder will occasionally shed some white particles. I don't have them all the time, but sometimes see them.

              Donna
              Stay safe


              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
              Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

              Have you checked the ICN Shop?
              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

              Patient Help: http://www.ic-network.com/patientlinks.html

              Sub-types https://www.ic-network.com/five-pote...markably-well/

              Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

              AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
              [3MG]

              Anyone who says something is foolproof hasn't met a determined fool

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