Anybody NOT get up to pee at night?

[Mc2203]

Hi,

I went to my new uro today. I was quite pleased with him after seeing two useless ones! I have had constant frequency for a year now with three major flares and a three month break of manageable symptoms inbetween. Anyway... he thinks ic is less likely as I have no pain, although he's not ruling it out altogether, he just wants to rule out other things first. He's thinking I have an irritated/over-active bladder (I'm not so sure he's right about that but we'll see...) He said another thing which he finds strange is that I don't wake up at night to use the bathroom. He said this is a problem for all of his ic patients. Now and again I get up once in the night but that's only if I'm woken by my boyfriend as he gets up to go. When I wake up in the morning, I'm bursting to wee but it rarely keeps me awake. If anything, I looove getting in bed just to get away from it all...Although, I am a heavy sleeper, so maybe that why it doesn't wake me.

Anybody else not kept awake all night with their bladder?

[meissabarham]

I'm kind of the same way. I don't wake up in the middle of the night to go to the bathroom. Sometimes I do but not very often and when I wake up in the morning I feel like I'm going to burst. I don't have a lot of pain either not like some I have heard anyways. I do have a little and I have noticed it depends on the foods I'm eating or what I'm drinking too. I do have pain sometimes during sex, but not always. I'm on my 3rd uro too and this one didn't test me or anything he just talked to me and instantly said I had IC. Then he checked me and did an ultrasound and set up a cat scan. I go back Thrusday so guess I will see what he says then. I think mine is mild but I do have a lot of sudden urges and sometimes they feel like I'm not going to make it to the bathroom.

[Mc2203]

Thanks Melissa. Its so hard to know what to think when everybodys symptoms are soo different. So its good to know Im not the only one. Im sure people would do anything to sleep so I guess we should be grateful! Im glad you got your diagnosis. Not that it is ic but at least you can start to tackle it now. I am soo sure I have IC too- I just KNOW that Im gonna go through a load more tests & oab medications before I am given the diagnosis. I suppose it's a waiting game, Ive waited for a year though so another few months cant be so bad. Can I ask- have you ever had a cysto with hydro & if so, did it give you pain/make you worse in anyway? Im scared to have one of these incase it turns my frequency to pain!

Thanks, Sarah

[Mc2203]

By the way Melissa- I too have pain during sex. Im wondering how that could be caused by Over Active Bladder...hmmmm!!?!

[Jinny Jean]

I don't wake up often to go to bathroom at night either, maby once, and that is if I drink something before bed when I am not thinking.... I have had the same reply from a uro that my bladder was just "irritated and overactive, but never a true diagnosis of IC. I evenhad him stick a camera in my bladder (with out hydro though). and he said it was FINE, looked normal. Clearly my bladder is not normal. I am convinced I also have IC, but Im not sure if I am willing to have a hydro for the risk that it might make it worse. I also DO NOT have pain in general and not with sex either, and I am hoping it stays that way!! Gonna check out Elavil tommorow see if that might help with the frequency? Its driving me mad.

[meissabarham]

My 2nd uro said I had a OAB and I tried almost every med on the market for it and nothing seemed to help. I really don't know if an OAB could cause pain during sex or not. That would be something I would ask the dr or someone that knows more on the subject. lol I wish I knew cause that is what I was being treated for for a long time. I know many people say this Elmiron that the new uro put me on takes mths to work, but idk if it is me changing my diet which I do cheat sometimes cause I am having a hard time with not drinking some caffine. I love my dr peppers but at the same time my urges aren't as bad sometimes and I seem to be going to the bathroom better cause before I had a hard time going and feeling finished. I still have that sometimes but I feel it getting better too.

Jinny what is Elavil? I have heard many people say they use it but what exactly is it for?

I am the same as you girls I had my last uro say I had IC but that was just with talking no tests or anything yet. But I have tried everything else that it could possibly be and nothing elsed worked so I am sure this is what it is if not I don't what I will do. It gets very frustrating at times not knowing. I wish it was simpler to diagnose like some things are.

Well anyways good luck girls I hope you find something that makes you feel better.

[meissabarham]

Oh Sarah I have never had a cysto with hydro. I had surgery with my 2nd uro. He said he removed scar tissues and some other things I don't remember oh and he said he strected my bladder. Then with this new uro all I have done so far is the cat scan.

[meResque]

I definitely have IC, and do not urinate at night. I also do not have pain with sex.

I was diagnosed using the potassium sensitivity test, and have never had a cystoscopy/hydro. I urinate a bit more than "normal" but not too much. I'm afraid to try the OAB meds although I have some Detrol LA... I always have the fear that something I try will make things worse, and I really don't have it that bad compared to many on here!

[VCNJ84]

For the longest time I had no night time urination, then recently it started. Now I went on Enablex and it is helping. Once in a blue moon I can't fall asleep b/c I have to pee...but usually once I am sleeping i only get up once now.

[wolfaleena]

dr. mckinney nj

can anyone give me a good suggestion on an ic doc in NJ southern NJ
i have been seeing a doc in philly for 16 yrs and i need to find someone new... anyone know of doctor Mckinney in turnersville, nj ?? thanks.. i am not sure if i posted this in the right section if someone can let me know how to post here i am i little confused.. thanks

[VCNJ84]

can anyone give me a good suggestion on an ic doc in NJ southern NJ
i have been seeing a doc in philly for 16 yrs and i need to find someone new... anyone know of doctor Mckinney in turnersville, nj ?? thanks.. i am not sure if i posted this in the right section if someone can let me know how to post here i am i little confused.. thanks

I see doctor Daugherty at Delaware Valley Urology Mount Laurel office. I REALLY like him. He is so much nicer than my old uro.

[wolfaleena]

Vcnj84

VCNJ84 thanks so much .. i never heard of dr. daugherty i think i heard of delaware valley urology though. do they also have an office in woodbury nj that you know of? does he treat IC patients.. i have very very severe ic and have had it for about 20 years. been with the same doc for 16 yrs, but the doc i have been seeing is in philly and too difficult going over the bridge to pa.. looking for new doc in south jersey....

if you don't mind me asking, what has dr. daughtery been able to do for u has he helped ur ic and is ur ic severe?

wow i know i am aksing alot of questions that might be personal, and i apologize if they are too personal, but i really need to find another ic doc closer to home and that is very knowledgable, kind and respectful of their patients ,.. thanks so much for your time and consideration.

[Mc2203]

Oh Sarah I have never had a cysto with hydro. I had surgery with my 2nd uro. He said he removed scar tissues and some other things I don't remember oh and he said he strected my bladder. Then with this new uro all I have done so far is the cat scan.

Melissa, I too haven't had a hydro only had a cysto in office which usually does not show anything. I always have said I would refuse a cysto with hydro in case it made me worse because I think this frequency is bad enough without the pain. It's getting to the point now though that I would consider it just to get a diagnosis!! My uro hasn't suggested this yet but I'm thinking he might suggest one.

Also, I don't know if it's worth starting a new thread for this but I'll mention it here anyway. He has asked me to complete a voiding diary. He has said that the results of this will determine whether he treats me for ic or oab. I'm confused because I tend to pee larger/more normal volumes when not in a flare but just in a state of constant symptoms. IN a flare, I pee even more but smaller volumes and have constant discomfort. So I don't understand how the results will suggest ic or oab if it is different all the time. Im wondering which amount/volume hints toward oab and which to ic... hope you understand what I'm talking about I confuse myself sometimes!!

Sarah

Sarah

[ICNDonna]

Melissa, if you had a doctor stretch your bladder under anesthesia, that's called an over-distention --- or hydrodistention.

Donna

[meissabarham]

Donna thanks for that info. I had no idea thats what it was. I could never understand that dr. he always talked in dr ways and I had no clue. Plus it has been a couple years since I had that done. But yes I was in outpatient surgery when he stretched my bladder and removed what I thought he called scar tissue but he used a bigger word for it. He told me then my bladder walls were inflammed but he said I had an OAB. I don't know none of the meds worked and he wanted to do that surgery again and I refused cause it did make me feel worse.