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I have been reading this forum to see if anyone has had anything similar to me and some do and don't but it seems everyone's symptoms vary anyway!
It all started back in October. I woke up one morning with a strange feeling in my bladder and urethra. I thought I was getting a UTI. Just waiting for the burning to start. It never did. I just had this pain right above my pubic bone which I believed to be my bladder. Its not a sharp pain more of the pain you feel when you have held your bladder for a very very long time. I also started waking at night to use the bathroom to relieve this feeling. I use to never wake at night to pee.
Anyway I finally got to the doctor about 2 weeks after taking a home UTI test. It only came back positive for Leukocytes(sp?) So I went. The in office test came back negative but I had dark urine. When she pressed on my bladder from the outside it felt as if she was pressing on a full bladder yet I just peed! She sent me home and told me that she was sending it out to the lab. A week later it came back slightly positive for group b strep and she put me on amoxicillin. 7 days later I did not feel better and called back and she put me on Bactrim which made me sick. At this point I was in the middle of a move. So we move and a few weeks later I find a doctor and go. Same thing, do a test and again it comes back positive for white blood cells. At this point I also noticed some mucus in my urine which he said is from the infection. He put me on macrobid and sent it out to the lab. The macrobid actually got me to sleep until like 5am instead of the 1:30-2 am usual waked up. Again it came back slightly positive for strep b. But my doctor was not convinced strep b was causing this UTI or that it was even a UTI. I go on more amoxicillin.
I am not feeling better and sick of these antibiotics. Yet I have good days and bad. I feel like I lost the normal sensation of having to pee. Right away it comes on as a painful full bladder. I always wake at night and if I lay on my side I have to get up more often. Laying on my back seems best. During the day on a good day I wont have any pain yet I still will get that full feeling at night and have to wake. On a bad I am in constant pain and even peeing does not usually make it much better. Sitting to long makes my whole pelvic area hurt. One time I thought my insides were going to fall out and at that point I thought maybe it was a pelvic floor thing.
Anyway my GP thought it was a gyno thing. So I went- not a fan she was a little out there. Anyway it was the most painful exam I ever had. When she was poking around in there it just felt like I had a full bladder the whole time and I did not as I just had peed. She said everything seemed to be ok but did not really listen to my complaints about my bladder. She did a test of the urine in her office and again leukocytes were there, my ph was off and there were ketones. I have never heard of these being off before so this was new. She put me on 10 days of macrobid and sent it off to the lab. I am on that now and does not seem to be helping. Maybe the first day or two I felt a little better but yesterday was really bad. I also so mucus again. Does anyone else have that??
Other symptoms- I do not have that urgency that if I dont make it to the bathroom I am going to have an accident. I am going a little bit more than normal but that all depends on how much I drink. Usually a lot of pee comes out though. On a bad day of pain I will go much more hoping to get some relief and on these days usually not too much comes out.
Oh and sex is slightly painful. It is almost as I can feel my urethra in there. If that makes sense at all.
I am waiting for the lab results then hopefully can get in to see a Urologist. I am scared to go though, all these tests sound painful!! Heard bad things about the cysto!!
Thank you if you have read all of this! Any insight?
If this is relevant- I am 28 yr old female with 2 kids and no prior history of UTI problems. I have had two. One over 10 yrs ago and another 4-5 yrs ago while pregnant. Both with the burning during urination and cleared up asap on antibiotics.
It all started back in October. I woke up one morning with a strange feeling in my bladder and urethra. I thought I was getting a UTI. Just waiting for the burning to start. It never did. I just had this pain right above my pubic bone which I believed to be my bladder. Its not a sharp pain more of the pain you feel when you have held your bladder for a very very long time. I also started waking at night to use the bathroom to relieve this feeling. I use to never wake at night to pee.
Anyway I finally got to the doctor about 2 weeks after taking a home UTI test. It only came back positive for Leukocytes(sp?) So I went. The in office test came back negative but I had dark urine. When she pressed on my bladder from the outside it felt as if she was pressing on a full bladder yet I just peed! She sent me home and told me that she was sending it out to the lab. A week later it came back slightly positive for group b strep and she put me on amoxicillin. 7 days later I did not feel better and called back and she put me on Bactrim which made me sick. At this point I was in the middle of a move. So we move and a few weeks later I find a doctor and go. Same thing, do a test and again it comes back positive for white blood cells. At this point I also noticed some mucus in my urine which he said is from the infection. He put me on macrobid and sent it out to the lab. The macrobid actually got me to sleep until like 5am instead of the 1:30-2 am usual waked up. Again it came back slightly positive for strep b. But my doctor was not convinced strep b was causing this UTI or that it was even a UTI. I go on more amoxicillin.
I am not feeling better and sick of these antibiotics. Yet I have good days and bad. I feel like I lost the normal sensation of having to pee. Right away it comes on as a painful full bladder. I always wake at night and if I lay on my side I have to get up more often. Laying on my back seems best. During the day on a good day I wont have any pain yet I still will get that full feeling at night and have to wake. On a bad I am in constant pain and even peeing does not usually make it much better. Sitting to long makes my whole pelvic area hurt. One time I thought my insides were going to fall out and at that point I thought maybe it was a pelvic floor thing.
Anyway my GP thought it was a gyno thing. So I went- not a fan she was a little out there. Anyway it was the most painful exam I ever had. When she was poking around in there it just felt like I had a full bladder the whole time and I did not as I just had peed. She said everything seemed to be ok but did not really listen to my complaints about my bladder. She did a test of the urine in her office and again leukocytes were there, my ph was off and there were ketones. I have never heard of these being off before so this was new. She put me on 10 days of macrobid and sent it off to the lab. I am on that now and does not seem to be helping. Maybe the first day or two I felt a little better but yesterday was really bad. I also so mucus again. Does anyone else have that??
Other symptoms- I do not have that urgency that if I dont make it to the bathroom I am going to have an accident. I am going a little bit more than normal but that all depends on how much I drink. Usually a lot of pee comes out though. On a bad day of pain I will go much more hoping to get some relief and on these days usually not too much comes out.
Oh and sex is slightly painful. It is almost as I can feel my urethra in there. If that makes sense at all.
I am waiting for the lab results then hopefully can get in to see a Urologist. I am scared to go though, all these tests sound painful!! Heard bad things about the cysto!!
Thank you if you have read all of this! Any insight?
If this is relevant- I am 28 yr old female with 2 kids and no prior history of UTI problems. I have had two. One over 10 yrs ago and another 4-5 yrs ago while pregnant. Both with the burning during urination and cleared up asap on antibiotics.
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