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IC and Menstuastion!

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  • IC and Menstuastion!


    I was curious to know do any of you feel your symptoms are worse or intensified while you are on your period or they get better?

  • #2
    For me, they get worse just before and during my period.
    Diagnosed with IC in April 2011. Medications and IC treatments did not help, diagnosed with PFD in September of 2013. Still searching for answers as to why I have never-ending frequency/urgency issues.

    Current medications/treatments:
    Pelvic physical therapy, valium suppositories, b and o suppositories, acupuncture, probiotics, magnesium, epsom salt baths

    Previous medications/treatments:
    Elmiron, Hydroxizine, Elavil, VESIcare, Series of rescue instillations using Elmiron, water, lidocaine, & sodium bicarb and self-cathing with instills as needed, D-mannose, Glucosamine, Hyophen (generic Prosed), Colostrum, IC diet, PTNS, chiropractic treatments, Desert Harvest Aloe Vera, CystoProtek


    • #3
      The week before was the absolute worst time of the month for me for both my VV and IC symptoms. THe week during was my best time of the month but I was still symptomatic. And as soon as my period ended, things would start building again. Just a vicious cycle


      • #4
        My symptoms are terrible at that time. I suffer terribly with my period and it seems everyting is inflammed which makes my IC symptoms bad at that time. I find mine starts a few days before my period and end a few day after. I'll say like Briza only to start all over again each month.
        Daughter your faith has made you well,go in peace, and be healed of your disease.(Mark 5:34)

        Detrol:only took one pill and it made me sick
        Elmiron:caused horrible pain(took 1 week)
        CystaQ:caused alot of burning and pain(only took one pill)
        Wellbutrin:only on it for three days as it caused alot of bladder pain
        Elavil:Took one pill and it caused a flare that lasted almost two weeks. It was the longest flare I've ever had. Never again..ouch
        Prelief:made my bladder burn and feel tingly.

        Uracyst:Started May 19 2011
        Enablex:take one pill daily with no issues
        Naproxen:for pain as needed
        Baking Soda with water:as needed and it's a God send. It brings down my pain within 20 mins.
        Venofer: Started April 2012 by IV for low Iron. I do not tolerate oral Iron so this is the route I had to take.Does not bother my bladder but did have other side effects. I take Benedryl with each treatment to avoid side effects.
        Supplements:Whey Protein powder daily
        Dessert Harvest Aloe It has been helping alot but I can only take it every two days as my "die off" reaction has been severe.


        • #5
          I too suffer the week before, during and after.
          IC diagnosis 3 weeks ago.
          Vesicare 10 mg once daily
          IBS and Gerd-Zegerid
          IC diet
          Elmiron 100 mg three daily
          Hydroxyzine 25 mg at night
          Amitriptyline 10mg at night
          Diovan 60/12.5 daily
          Topral 50 mg daily
          Zoloft 100 mg at night
          Klonopin .5 twice daily


          • #6
            It's the same for me as Phoenixgirl.
            34 years old, bladder symptoms all my life
            diagnosed with PFD and VV October 2009; IC May 2010

            Current meds:
            Cystoprotek 2 pills twice a day, Hydroxyzine 10 mg, Gabapentin 600 mg, Myrbetriq 25mg, Zoloft 25 mg, Mircrogestin, capsaicin cream (for vulva)
            Other past treatments:
            IC diet, physical therapy, Traumeel injections as needed, TENS unit, heating pad, instills with sodium bicarb, lidocaine, and mucosa compositum
            Tried and didn't work:
            Pyridium, Singlair, Nortriptyline, Elmiron, lidocaine and heparin instills (worked at first, then didn't anymore), various creams, acupuncture


            • #7
              I have had this problem before. Plus, my periods were really long and heavy which didn't help. Now, I take birth control pills and we tried out quite a few, but it was worth the effort because now I'm on pills that make my period extremely short and light, and I really don't have physical symptoms anymore (like cramps, bloating, etc.) This has helped my IC, esp. my IC pain tremendously. Something like this may be worth looking into, though I know going on BC pills is not an option for everybody.
              Have had IC symptoms since childhood, but did not seek serious treatment or become diagnosed until I was in college.

              24 yo F

              I've had a cystectomy with an Indiana Pouch. It was a success and has helped my symptoms and pain immensely.