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  • #1

    Pain meds not working

    Hi guys,

    I currently am on ultram and vicodin for pain and today it seems like my pain is there much more so than usual. I am wondering, does your body get used to them and no longer help, or could it be that my IC is just getting worse? I'm in so much pain, especially on my right side. I also always have this pain that shoots down my right leg when I have a really bad flare (which I say flare, but my symptoms are pretty much continual). I have taken my three vicodin for the day and have taken all of my ultram and ibuprofen. So like I said, I'm not sure if the pain meds just aren't working or if my IC is just getting progressively worse. Has anyone experienced this?
    Thanks,
    Anne
    I am the mother to my beautiful son Parker Thomas.
    I have had IC for 10 years, and I also have migraines, endometriosis, pelvic adhesions, osteopenia, peptic ulcers, fibromyalgia, and PFD.
    I am currently prescribed Effexor XR 150 for depression/anxiety, 50mcg Fentanyl patch, Percocet for breakthrough pain, Klonipin for sleep and anxiety, and d-amphetamine salt xl for ADHD and excessive daytime sleepiness due to my pain meds, Pyridium, 10 mg of Valium (inserted vaginally to relax pelvic floor muscles, and I do bladder instillations once a day consisting of a mixture of 3cc Sodium Bicarbonate, 5CC Lidocane, & 22cc of Heparin. I also regularly use a prescribed TENS unit for pelvic pain, along with lots of rest in bed with my four, four-legged furry friends. (I once heard called "fur-therapy")
    There is always something beautiful around you, sometimes you just have to look for it!
    Tags: None
  • #2
    I think it would be a good idea to make an appointment with your pain management doctor. It could be that you need to make some changes.

    Also, some ICers have a problem with ibuprofen; I know I can't take it.

    Sending healing thoughts,
    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

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    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.     [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

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    • #3
      Ahhh I see what you mean. I am seeing Dr. McSherry, an IC specialist in New Orleans and she is my pain management doctor so I will talk to her as soon as I can. I am having the interstim implant part one on Wednesday, so I will talk to her about my pain meds then. I'm just having a horrible day pain wise and I really hate this. I will talk to her about possibly alternating them every few months. Because it has been almost two months that I have been on the vicodin every day three times a day and it was great until just recently. I don't know if I have a uti, but I will take a test as soon as I can. thanks for the advice!

      Anne
      I am the mother to my beautiful son Parker Thomas.
      I have had IC for 10 years, and I also have migraines, endometriosis, pelvic adhesions, osteopenia, peptic ulcers, fibromyalgia, and PFD.
      I am currently prescribed Effexor XR 150 for depression/anxiety, 50mcg Fentanyl patch, Percocet for breakthrough pain, Klonipin for sleep and anxiety, and d-amphetamine salt xl for ADHD and excessive daytime sleepiness due to my pain meds, Pyridium, 10 mg of Valium (inserted vaginally to relax pelvic floor muscles, and I do bladder instillations once a day consisting of a mixture of 3cc Sodium Bicarbonate, 5CC Lidocane, & 22cc of Heparin. I also regularly use a prescribed TENS unit for pelvic pain, along with lots of rest in bed with my four, four-legged furry friends. (I once heard called "fur-therapy")
      There is always something beautiful around you, sometimes you just have to look for it!

      Comment

      • #4
        Hi Anne,
        I'm in the same boat as you are today! I'm flaring from my monthly and nothing seems to help me today! Like Briza I'm also dealing with back or spinal issues. Today the Vicoden is barely taking the edge off! I've been almost in tears today from the bladder pain and I'm simply worn out from it! The only thing I can think of is to keep my heating pad close and pray for relief!

        I hope you feel better soon Anne!
        DX'd with IC 5/08
        other Dx's~SVT: had Catheter
        Catheter Ablation Aug 19,2010
        Migraines, PFD, Hypertension,
        Prolapsed Pelvic
        Organs and Degenerative Disc
        Disease, Kidney stones, Insomnia
        Two bulging discs w/tears and osteo
        arthritis in multiple joints in the spine



        Current Meds:Elmiron 400 mg per day
        Benicar Hct 40-25mg for Hypertension
        Norvasc 2.5
        Vicoden as needed for pain
        Cymbalta 30 mg
        Prelief
        CystaQ
        Prosed
        Lidoderm Patch

        Psalm 121
        I will lift up my eyes to the hills from whence comes my help? My help comes from the Lord, Who made heaven and earth.

        "Be Kinder than necessary because everyone you meet is fighting some kind of battle"

        Comment

        • #5
          HI Guys,

          Briza, Thanks so much for all of your advice. Aleet7, I really hope you get to feeling better too, as i know that my heating pad and the potty are my best friends. lol I will keep all of you posted on my interstim trial/ implant. My doc said in patients with my symptoms, my age, and with severe IC she has a 95% success rate with her patients. Hopefully wednesday goes well; I just pre- admitted and did all my blood work so its all set! I'm just wondering if I am going to be in pain from just having the lead sticking out, or if the pain will come with the second surgery... Idk. Anyways, thanks for the support! Keep y'all posted!

          Ann
          I am the mother to my beautiful son Parker Thomas.
          I have had IC for 10 years, and I also have migraines, endometriosis, pelvic adhesions, osteopenia, peptic ulcers, fibromyalgia, and PFD.
          I am currently prescribed Effexor XR 150 for depression/anxiety, 50mcg Fentanyl patch, Percocet for breakthrough pain, Klonipin for sleep and anxiety, and d-amphetamine salt xl for ADHD and excessive daytime sleepiness due to my pain meds, Pyridium, 10 mg of Valium (inserted vaginally to relax pelvic floor muscles, and I do bladder instillations once a day consisting of a mixture of 3cc Sodium Bicarbonate, 5CC Lidocane, & 22cc of Heparin. I also regularly use a prescribed TENS unit for pelvic pain, along with lots of rest in bed with my four, four-legged furry friends. (I once heard called "fur-therapy")
          There is always something beautiful around you, sometimes you just have to look for it!

          Comment

          • #6
            Hi Ann,
            I pray that the interstim works wonders for you! Please keep us posted!

            Best Wishes,
            Aleet7
            DX'd with IC 5/08
            other Dx's~SVT: had Catheter
            Catheter Ablation Aug 19,2010
            Migraines, PFD, Hypertension,
            Prolapsed Pelvic
            Organs and Degenerative Disc
            Disease, Kidney stones, Insomnia
            Two bulging discs w/tears and osteo
            arthritis in multiple joints in the spine



            Current Meds:Elmiron 400 mg per day
            Benicar Hct 40-25mg for Hypertension
            Norvasc 2.5
            Vicoden as needed for pain
            Cymbalta 30 mg
            Prelief
            CystaQ
            Prosed
            Lidoderm Patch

            Psalm 121
            I will lift up my eyes to the hills from whence comes my help? My help comes from the Lord, Who made heaven and earth.

            "Be Kinder than necessary because everyone you meet is fighting some kind of battle"

            Comment

            • #7
              I did it!!!! Interstim success!! :o)

              Hi everyone!
              I DID IT!!!! At 24yeats old and after suffering with IC for the past 9 years AND
              After a week of trial and absolutly wonderful success with the iterstim trial, I had the permanent interstim generator and lead put in today!! It has been wonderful so far (the trial week). I went from peeing every 20-30 minutes to peeingonce every 2-3 hours. It was been lifechanging over the past week. Today dr. McSherry implanted the generator, but the lead had to be placed in a different spot because the place it was located for my trial week was effecting the muscles of my right leg and foot. She gave me the option to go for another trial week, but I opted not to do that, so hopefull the spot it is in now will be just as successful! Today was the day of surgery though, so I still can't really tell. Especially since there is so much pain there too. I will keep you all posted! Thank you for all of your support!

              Anne
              I am the mother to my beautiful son Parker Thomas.
              I have had IC for 10 years, and I also have migraines, endometriosis, pelvic adhesions, osteopenia, peptic ulcers, fibromyalgia, and PFD.
              I am currently prescribed Effexor XR 150 for depression/anxiety, 50mcg Fentanyl patch, Percocet for breakthrough pain, Klonipin for sleep and anxiety, and d-amphetamine salt xl for ADHD and excessive daytime sleepiness due to my pain meds, Pyridium, 10 mg of Valium (inserted vaginally to relax pelvic floor muscles, and I do bladder instillations once a day consisting of a mixture of 3cc Sodium Bicarbonate, 5CC Lidocane, & 22cc of Heparin. I also regularly use a prescribed TENS unit for pelvic pain, along with lots of rest in bed with my four, four-legged furry friends. (I once heard called "fur-therapy")
              There is always something beautiful around you, sometimes you just have to look for it!

              Comment

              • #8
                One word of caution....be very careful with Ultram. It is an opiate, but has most of the sedative properties removed. It is also more addictive and harder to get off of than vicodin. I have had IC for about 7 years, but was only diagnosed about 1 1/2 years ago. Having had severe endometriosis for a very long time, when I developed IC I ignored the pain, and very rarely took anything for the pain. But in the last year, my pain has gone from crying when no ones looking to I will cut you if you don't get me something to stop this pain. So while it could be a tolerance developing, it also could be something else that has changed. Your IC could have worsened, or one of the aggravation factors could be playing a role without you realizing it. I used to be able to drink Diet Coke with out it effecting my bladder too much, now I take a sip and within 20 minutes my bladder starts burning. I also used to be able to tolerate stress, any more it drops me to my knees. Last week I was in the emergency room twice, and taking 12 vicodin/day. The week before that, I would not have imagined taking more than 2/day and of the lowest strength. There were several of us that just had a discussion about pain meds, and addicition vs physical dependancy. While I am not a doctor, or nurse, I have a husband that battles with an opiate and heroin addiction. The information I have learned over the last 4 years has blown my mind. Your pain specialist will be able to help you....hang in there we are all here for you.
                Medical History: Endometriosis, Epstein Barr, Confirmed Severe IC with Hunner's
                Current Medications: Premarin, Gabapentin, Soma, Ambien, Hydrocodone, Antihistamines, Prestiq
                Past Treatments:Cocktail Installations
                Looking into: Vitamin D, Vistril and DSMO

                "I can do all things through Christ who strengthens me"

                Comment

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