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Having a tough time.. need comfort please

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  • Having a tough time.. need comfort please

    Tonight the feeling of having to urinate is really bad. It is giving me bad anxiety, I just feel on edge like I'm about to have a nervous breakdown. This feeling is very hard to describe it's a feeling of having to urinate although it is slightly different. Does anybody know what I'm talking about? Besides this symptom there is another symptom I have noticed. My perineum is tender to the touch. Could that have anything to do with the constant urge to urinate?

  • #2
    Hi, solideogloria ~ I'm sorry you're having such a difficult time tonight. I think I know the feelings you're talking about. It could be that your bladder is very irritated. I saw that you didn't get too good a response from your doctor. Please consider looking for someone else who listens and is understanding of what you're going through. I was lucky and found my fantastic doc the 2nd time trying. These can be such frustrating feelings and like you said, change your life dramatically to the point of feeling like it's ruined, but......don't give up!

    I know in the beginning of my symptoms the word "bladder" was in my vocabulary constantly 24/7 and the anxiety was totally out of control. It wasn't until I got onto a good treatment plan that the symptoms quieted down, my emotions calmed and I began to see a somewhat "normal" life once again.

    I usually use my rice bag heated in the microwave to help with the tenderness I think you're talking about. Maybe you could try that. I'm sure you'll get many suggestions from others as well, sharing what works for them.

    Please don't give up. Most of us here have felt the same hopelessness but usually can find some help. It may not be a quick fact it's trial and error for many of us, but it's truly worth trying.

    Blessings that you'll be able to find some help soon. There are so many here to offer suggestions and just a shoulder to lean on.

    Keep us posted.
    Never heard of IC til suspected....Never knew so many suffer from it. Praying for a cure. I've found can you...keep the hope.

    11/2007 IC Symptoms began during recovery of surgery for bladder susp & hysto: painful/urge/freq urination up to 50 times a day, pain walking, even water hurts.
    8/2009 Susp IC; 1/2010 Treatment began; 2/2010 Diag PFD, PT, Surg remove mesh; 5/2010 Surg, 2nd bladder repair, vag vault/sm int prolapse repair, IC confirmed in surg; 7/2010 Diag Candida Esophagitis, Gastritis, Diviticulosis, Gallstones,
    8/2010 Surg gallbladder
    TREATMENTS (updated 4/15)
    IC Diet since 8/2009 (Able to vary 4/15)
    Heparin/Lidocaine/Bicarb/Kenalog Instills 1xDay
    Aloe Vera Capsules, (2) 2xDay, Loratadine 1xDay
    Pantoprazole, Prelief, Pyridium up to 3xDay, Premarin Cream 3xWeek
    *DISCONTINUED since feeling better: Celexa 10mg daily*, Fiber supp*,
    Gabapentin 12/2011 worked well *, Macrodantin 100mg after instill*, Probiotics*, PT-PFD*, Valium Vag Suppositories: Cyclo/diaz/lido, 10/5/62.5mg *
    PROB MEDS: Elavil, up to 50mg 1/2011 ret&hbp, Urelle ret, Vesicare ret


    • #3
      I feel like all I ever talk about is my bladder, my pain, my need to pee, how I can't pee when I feel like I need to. I hope that you are able to calm and get some rest.


      • #4
        I'm sorry you're having such a difficult time right now. I do have some suggestions that might help. Be sure you are drinking enough water. I know it can seem like it will just cause more frequency, but if the urine is diluted it isn't as irritating. Another suggestion is to use a squirt bottle to rinse the area after urinating and gently blot the area --- don't wipe --- with plain white, unscented toilet tissue.

        Stay safe

        Elmiron Eye Disease Information Center -
        Elmiron Eye Disease Fact Sheet (Downloadable) -

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help:


        Diet list:

        AUA Guidelines:

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

        Anyone who says something is foolproof hasn't met a determined fool


        • #5
          solideogloria: I hope today finds you feeling better. I know that awful feeling & it is horrible! Always check for a bladder infection when you flare, just in case. If ice doesn't help, try a hot bath (no bubblebath) Hope you feel better soon!!


          • #6
            thanks for all the replies, I really appreciate them all. the truth is im feeling no better today