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  • my symptoms a better understanding..please read

    I really don't feel I was to clear on things on my other post becuase I was so stressed out. So I am putting up the post to try and better explain my situation.

    I am a 28 y/o male I live in Charleston Wv ,and for the last year and a half I have had the constant urge to urinate , it is a 24/7 thing some days may be better than others but it is always there. some people mistake this for frequency , but I don't have frequency. I go to the rest room no more than what any normal person would. so please keep in mind it's the feeling of constantly having to go, NOT!! actually constantly going.

    I have also went to a urologist and all he did was send my urine off to be tested for infection and other things, and he said that everything came back normal except there is a small amount of microscopic blood in my urine. when I told him about my symptoms and how they were affecting my life and if he had anything that would help me control the symptoms, He just said well I don't think it will help but I will give you some over active bladder medication , then He just sent me out the door.

    This whole thing is so frustrating it has comepletly ruined my life and it has made me a irritable and mean person to be around. I am constantly having anxiety attacks and I am constantly on edge. I feel like the medical feild has turned it's back on me and I am all alone in this, and it is a frighting thing to be in.

    I have forgotten what it feels like to not have the feeling of having to urinate.
    I hope this is more clearer than my other post and that this has given everybody a better understanding of my situation. everybody here has been really nice and supporting here . I would appreciate if you all can leave me some reply's please.


    thanks
    Last edited by ICNDonna; 05-26-2011, 12:40 PM.

  • #2
    Hi, Sorry you've had the need to join us. You will find people who understand here.

    Many of us vary somewhat in our symptoms, and even for me my IC has a bag of symptoms -though not all of them may show up at the same time.

    I have had the constant urge to urinate , it is a 24/7 thing some days may be better than others but it is always there. some people mistake this for frequency , but I don't have frequency. I go to the rest room no more than what any normal person would. so please keep in mind it's the feeling of constantly having to go, NOT!! actually constantly going.
    This happens to me quite often and it's maddening. One isn't supposed to be aware of one's bladder every second of life. This constant urge sensation typically occurs with me after I have done something to irritate my bladder. Either not drinking enough pure untreated water or more often than not having eaten/drank something I should not have. So I have to ask if you've looked at the IC diet yet? http://www.ic-network.com/diet/ The cheat sheet link on that page was a major turning point for me symptom-wise.

    he said that everything came back normal except there is a small amount of microscopic blood in my urine. when I told him about my symptoms and how they were affecting my life and if he had anything that would help me control the symptoms, He just said well I don't think it will help but I will give you some over active bladder medication , then He just sent me out the door.
    Unless you have a long enough relationship with this Uro to suspect he was just having an 'off day' I would say it may be time to shop for another doctor. All uros are not equal. I've been blown off by quite a few doctors before I finally found one who took the time to listen and actually helped me.

    I do hope you find relief soon. With the right treatment and/or diet, lifestyle changes, etc, most of us do get to a better place!

    Vicki
    "The happiest people don't necessarily have the best of everything; they just make the best of everything they have."

    Comment


    • #3
      Many of us here have gone through several uros before finding one that is willing to take the time to help us. I had one uro tell me "Well there isn't much that really works for this." What a crock of you know what. My third is a gem although not quite up on everything she is open to new treatments and willing to try them. You may want to try another uro.

      Comment


      • #4
        I was just going to suggest a second opinion from a different urologist --- and the diet.

        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

        Comment


        • #5
          Thanks everybody for all the replies. I haven't looked into the diet but I Am definitely gone to. I am just so affraid I'm not going to find any help, I can't go online living this way. I am going to find a good URO. I am also really worried that it's is a nerve problem because I have a slipped disk and I suffer from bad sciatica pain. Does anybody think that could be what's causing the symptoms?

          Comment


          • #6
            Please do give the diet a try --- beginning today.


            Donna
            Stay safe


            Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
            Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

            Have you checked the ICN Shop?
            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

            Patient Help: http://www.ic-network.com/patientlinks.html

            Sub-types https://www.ic-network.com/five-pote...markably-well/

            Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

            AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
            [3MG]

            Anyone who says something is foolproof hasn't met a determined fool

            Comment

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