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  • Question about the Pain

    I had a hydro with DMSO and kenalog yesterday. The doc said my bladder looked the best he's ever seen and he was able to get 900 cc's of water in there! This is incredible improvement for me. If the lesions are almost gone, the capacity is good, why do I still have so much pain all the time? I actually gave up a trip to Italy two months ago because I was in so much pain I just couldn't make it. I've always thought the pain was related to the lesions. ???
    Jan

  • #2
    I have no lesions, just glomularations (sp?), but I have severe pain, and I have had since before I was diagnosed. Even lortab doesn't help much, and my docs really don't like prescribing pain meds, I am really hoping that they will be able to find something that works for the pain. I tried Lyrica, and it helped some, but I started having tachycardia and palpitations. Its so odd.
    Good luck, I hope that you feel better soon. I wish it for all of us.

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    • #3
      DMSO can be very irritating. Hopefully once you have a chance to heal from the procedure you will have much less pain.

      Warm hugs,
      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
      [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

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