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  • #1

    Frequency

    I'm sure this has been addressed in this forum before, but I thought I would throw it out there again:

    What treatment (traditional or alternative) has helped you the most with frequency issues?

    thanks.
    March 2011-Symptoms began
    May 2011-Tentative diagnosis by OB/GYN
    October 2011-Confirmed diagnosis -- IC/PFD

    Current treatments:
    Elmiron- 300 mg (Began 12/11)
    Hydroxyzine- 50-75 mg (Began 7/11)
    Tizabidine- 2mg 3xTID, if needed (Began 12/11)
    IC Diet-Began 5/11
    Pelvic Floor Therapy-Began 12/11

    Current Supplements:
    Cystoprotek
    Magnesium
    Fish Oil
    Biotin
    Tags: None
  • #2
    Hydrodistentions have helped me with frequency. I also take levsin for flares and it cuts way back on frequency.

    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.     [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment

    • #3
      I used to take Desert Harvest Aloe Vera and I found that helped me with Frequency. I probably will be going back on it myself.
      Diagnosed in July 2003

      Meds and supplements:

      Desert Harvest Aloe Vera
      Prelief as needed
      Megafood multi
      Fish oil (Nordic naturals)
      Probiotic (Mega food mega flora brand)
      Vitamin D (Carlson's solar gems 4000 IU)




      Favorite Quote:

      "Dance as if no one were watching, sing as if no one were listening, and live every day as if it were your last."

      Comment

      • #4
        Donna-interesting. I haven't run across that before. How long have you taken it? And, if you don't mind my asking, did you try any OAB prescriptions as well?

        Jacque-I'm taking DHA as well for about two weeks now. I can't tell much of an improvement. Of course, allergy season is in full swing, and I think that may be a big trigger for me.

        Thank you both for replying.
        March 2011-Symptoms began
        May 2011-Tentative diagnosis by OB/GYN
        October 2011-Confirmed diagnosis -- IC/PFD

        Current treatments:
        Elmiron- 300 mg (Began 12/11)
        Hydroxyzine- 50-75 mg (Began 7/11)
        Tizabidine- 2mg 3xTID, if needed (Began 12/11)
        IC Diet-Began 5/11
        Pelvic Floor Therapy-Began 12/11

        Current Supplements:
        Cystoprotek
        Magnesium
        Fish Oil
        Biotin

        Comment

        • #5
          Levsin is the brand name for hyoscyamine --- I have taken it for flares for at least several years.

          Donna
          Stay safe


          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

          Patient Help: http://www.ic-network.com/patientlinks.html

          Sub-types https://www.ic-network.com/five-pote...markably-well/

          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.           [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

          Comment

          • #6
            What helps me the most is eating really bland foods, TONS of vegitables. The more veggies I eat in a day the less bothered my bladder is... I dont eat sugar, bread, dairy, or any of the IC trigger foods either...I also drink alkalized water! I think Elmiron is finally starting to help as well
            28 yrs old,

            I have little to no problems now with my bladder, unless I am very stressed out, I forget to take Elmiron for a few days, or I eat or drink something that I know is a trigger...(i.e) like eating a tomato or drinking tea.... Took a long time to get here, but it IS possible to feel good again I just want people who are new to know that IT CAN get better, and for every one person who is suffering, there are hundreds of others who feel GREAT because they have control of thier IC.

            What Works: Tylenol 3's, Pyridium, Elmiron (Going on 4 years now!) HOT showers!!!

            Medications/ Vitamins: Elmiron-100mg 4x's daily Tylenol 3's/Advil (flaring) Vitamin D, WILD salmon oil 4x gels in the morning, Women's ONE a DAY multivitamin (the gummy kind doesn't make me flare) and PROBIOTICS!



            Me in my graduation gown!

            Comment

            • #7
              Re: Frequency

              Originally posted by ICNDonna View Post
              Hydrodistentions have helped me with frequency. I also take levsin for flares and it cuts way back on frequency.

              Donna
              Donna, did the Levsin ever cause diahrrea or retention?

              Comment

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