Pain AFTER Urinating - Not Before

[Xylazine ICN Member Find all posts View Profile Close Xylazine]

So in my research, most IC patients have pain when their bladder is full. My excruciating pain comes AFTER I've emptied my bladder. I'm also having to wait about 1-3 minutes before I can empty my bladder and even then, I have to concentrate to finish urinating.

Anyone have their pain AFTER urinating?

[ICNDonna ICN Staff Find all posts View Profile Close ICNDonna]

When I'm flaring, I always have worse pain immediately after urinating. It's kind of like my bladder doesn't like to be completely empty.

Donna

[greeneyes ICN Member Find all posts View Profile Close greeneyes]

I have pain afterwards as well ,this is not to say I don't feel a nagging ache before but the stinging, burning sensation has always been after.

[Thingone ICN Member Find all posts View Profile Close Thingone]

Pain

I have really bad pain afterwards, but have pain before. Seems like I read a post recently that stated that pain afterwards was pelvic floor dysfunction related.

[ICNDonna ICN Staff Find all posts View Profile Close ICNDonna]

My theory (and it's MY theory only ) is that when the bladder is completely empty, and it collapses kind of like an empty balloon --- if the irritated top & bottom of the bladder touch at all (painful tissue touching painful tissue) it's going to hurt.

I do NOT have pelvic floor dysfunction.

Donna

[Thingone ICN Member Find all posts View Profile Close Thingone]

Pain after

Actually I read this on the IC site in the section what is Interstitial Cystitis & Painful Bladder syndrome, not a post.


http://www.ic-network.com/whatisinterstitialcystitis/

[honeymuffin ICN Member Find all posts View Profile Close honeymuffin]

My pain is pretty much always AFTER I go, rarely before (unless I'm in a really bad flare in which the pain is non-stop). I have an easy painless flow, then the burning sensation starts about 30 seconds later, and continues anywhere from a few minutes to an hour. On my really bad days it reaches its peak about 10 minutes after I go when I start feeling like my insides are being shredded with a knife.

I don't have pelvic floor dysfunction, but I have a nasty looking bladder as my hydro showed with several Hunners' ulcers. My uro says the feeling of pain after urinating is atypical, but then again I'm an atypical case in many ways. I also don't seem to be half as diet sensitive as many people in this board are.

[Xylazine ICN Member Find all posts View Profile Close Xylazine]

Thanks for the responses everyone! Good (well, not "good", but you know what I mean) to know I'm not the only one.

Donna, I agree with your analysis. I'd always kinda thought of it that way, but wasn't sure if I was going thinking about it correctly

It's especially bad at night/early morning when I have to get up to pee. Almost every time, I have to take Vicoprofen afterward (strangely enough, it's usually at least 4 hours apart).

[Melanie526 ICN Member Find all posts View Profile Close Melanie526]

I actually have pain before and after I urinate...I have the least amount of pain when my bladder has a little urine in it, but not too much.

[Melanie526 ICN Member Find all posts View Profile Close Melanie526]

Thingone...I'm so glad you mentioned that pain afterward might be a sign of pelvic floor dysfunction. My urologist suspects I have pelvic floor dysfunction. My gyno examined me the very next day, and he said he was almost 100% sure I didn't have PFD. I'm going to have a PFD therapist evaluate me (I guess that will be the tie breaker). If I have PFD along with my IC, that might explain why we are not having much success in treating my IC.

[Melanie526 ICN Member Find all posts View Profile Close Melanie526]

Donna...that makes complete sense to me.

[healingthoughts ICN Member Find all posts View Profile Close healingthoughts]

I have the exact same symptom. I have more pain AFTER urinating than BEFORE. My bladder always seems to feel better with some urine in it. I always thought this was atypical of IC. But its good to hear that others have this too. Has anyone found any treatment that works for this symptom?

[Thingone ICN Member Find all posts View Profile Close Thingone]

Pain

Melanie526

I found this post by jill (see below)"


cnmgrjill
04-22-2010, 02:36 AM
Before considering bladder removal, you absolutely should be assessed for pelvic floor dysfunction first by a seasoned professional with experience in diagnosis. Remember the golden rule.. pain before urination that is relieved abit when you empty your bladder is usually bladder wall pain. Pain after urination is usually spasms or PFD.

Also.. cheereo.. you didn't mention if she had Hunner's Ulcers or not. The new protocol for injecting triamcinolone into the ulcers is VERY promissing!!! Showing a good reduction of pain and discomfort in research studies.

I'm always happy to go through the various options and strategies before considering surgery with patients. Do it regularly. She can sign up for a coaching session or give me a call!

Jill


The golden rule stuck in my head because I was wondering why I have serious problems with the pain after in the mornings or when I get up in the wee hours of the morning. It really makes it hard to sleep. It can take an hour or more for the pain to subside. I'm glad you are going to PT to get evaluated. I'm hoping you get good news and find some relief soon.

My GYN sent me to PT just for IC, not PFD. I had a lot of problems with my muscles in the pelvic floor that my GYN was not aware of, but she sent me to the right person to evaluate me. My therapist's have been a bright light for me. Relaxation techniques, have helped me tremendously when flaring. I'm so thankful for these wonderful compassionate professionals.

[bri1121 ICN Member Find all posts View Profile Close bri1121]

I have pain afterwards as well ,this is not to say I don't feel a nagging ache before but the stinging, burning sensation has always been after.

That is exactly how I feel!! I do feel relief from the pressure of a full bladder but then get the stinging weird feeling after. And it tends to be worse when I actually have held it like at night.

[Melanie526 ICN Member Find all posts View Profile Close Melanie526]

Thingone

Thank you so much for the info...I met with a urologist today, and he scheduled me for a cystoscopy next week...he told me to find an IC specialist at Ohio State or someplace bigger (wish he knew of one to refer me to...I'm constantly trying to find doctors, and it's not the easiest thing)...he even mentioned bladder removal (which shocked me...I thought this was a last resort thing)...there are several things I haven't tried (Elavil, antihistamines, Elmiron, interstim, etc.), so he really caught me off guard...not the kind of thing I want to hear...I'm going to another urologist on Friday (I'm all about 2nd opinions, 3rd opinions, etc.).

BTW...How do I sign up for a coaching session? Also...did I read the post correctly? I can call and speak with Jill?