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Sleep is no where to be found!!

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  • #1

    Sleep is no where to be found!!

    I am dealing with an issue that has never lasted so long. I am not sleeping at night or during the day for more than an hour and half to hours at a time. Then I wake up and of course pee, but then I can't get back to sleep. It really is starting to wear me down. I am not getting into that good sleep I need to every night. I have tried to stay awake later thinking that I would go to sleep and sleep better, but nope. So then I tried to take Ambien cuz I have been told that would sleep in 5 minutes, but nope it didn't help me sleep at all.
    I have a call into my PCP to see if he can get me something to sleep, but I haven't heard back from them all day. And I am not too sure what I will do if I don't get some sleep soon. I am up for any suggestions that anyone might have. I would appreciate all of them.
    Thank you very much,
    Kirsten
    Started Vaginal Valium Suppositories April 2014
    Hysterectomy April 2003 (for abdominal pain),Diagnosed with IC August 2003
    Diagnosed with Pelvic Floor Disorder 2004,Had right ovary and fallopan tube removed 2005
    Diagnosed with diverticulosis 2006,Interstim December 2006,Home Instillations 2007-not effective
    Diagnosed with Fibromyalgia November 2007,Appendectomy February 2008,
    Interstim repair December 2008,Removal of the Interstim August 2011,
    6 Hydrodistentions from 2003-2009 Diagnosed with restless leg syndrome March 2014
    Diagnosed with Raynaud's Syndrome November 2013
    Ambien 5mg for sleep.
    Elivil 50 mg at bed
    Lisinopril 20mg in AM
    Effexor 225 mg
    Oxycodone 10 mgs 2 x a day for pain
    Baclofen 20mg 3x a day
    Phenazopyridine 200 mg as needed
    Omeprazole 20 mg at night
    Lyrica 450 mg daily
    Requip .50 mg at night
    Ketorolac 10 mg as needed for migraines
    Tags: None
  • #2
    Unfortunatly sleep issues seems to go along with IC, a lot of us would give anything for a good night sleep.

    Good luck at finding something to help.

    MG
    My are with you all. May you all find a way to peace and joy in your lives.

    Comment

    • #3
      I notice that you have elavil on your medication list --- when I tried it, it made me super hyperactive, sleepless, and shot my blood pressure up to dangerous levels. I'm one of the rare people who had an "opposite" reaction to it; my doctor took me off the med immediately.

      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.       [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

      Comment

      • #4
        thank you guys for the support. Donna I have been taking Elivil for about 8 years, I am thinking that is not the issue....
        I am not sure what to ask my dr for. But I see two of my Drs. this week so I will see if I can get one of them to give me something. My PCP wouldn't give me anything for sleep he wants me to get it from my psychiatrist. So I have an appointment on this week I will see if she will help me with my sleep.
        Thanks again.
        Kirsten
        Started Vaginal Valium Suppositories April 2014
        Hysterectomy April 2003 (for abdominal pain),Diagnosed with IC August 2003
        Diagnosed with Pelvic Floor Disorder 2004,Had right ovary and fallopan tube removed 2005
        Diagnosed with diverticulosis 2006,Interstim December 2006,Home Instillations 2007-not effective
        Diagnosed with Fibromyalgia November 2007,Appendectomy February 2008,
        Interstim repair December 2008,Removal of the Interstim August 2011,
        6 Hydrodistentions from 2003-2009 Diagnosed with restless leg syndrome March 2014
        Diagnosed with Raynaud's Syndrome November 2013
        Ambien 5mg for sleep.
        Elivil 50 mg at bed
        Lisinopril 20mg in AM
        Effexor 225 mg
        Oxycodone 10 mgs 2 x a day for pain
        Baclofen 20mg 3x a day
        Phenazopyridine 200 mg as needed
        Omeprazole 20 mg at night
        Lyrica 450 mg daily
        Requip .50 mg at night
        Ketorolac 10 mg as needed for migraines

        Comment

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